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Posted 09 August 2014 19:57:00(UTC)


Firstly sorry that you find yourself here but welcome . Sandra has advised that you get the Tool Kit and this is good advice it really is a good point of reference.

Until you get the results of the scans you won't have the full picture. PCA is a very unpredictable disease , some men have had high psa with no spread and some with a low psa have spread to bones etc.

I know in the early days that you want all the answers as quickly as possible, did your Dad get a gleason score when he had his biopsy, it would help other members to try and  advise you.

My OH was diagnosed last may and probably had one of the highest psa scores on the forum, 13000 he is now down to 15.2 and so far doing well. There are so many new treatments available and many more getting discovered all the time.

Keep posting, good luck for scans 


Julie X


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