I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error

Diagnosed on 06.03.2017

User
Posted 12 March 2017 18:57:30(UTC)

Hi everyone ,

My name is Rick , I am 68 (69 in May) married with two grown up Daughters (47 and 49) and two grandchildren (25 and 29)

I retired from quite an active job at Christmas 2016

On Monday I was diagnosed with prostate cancer , I was not showing any symptoms ,my doctor did a blood test for something completely unrelated in December 2016 and was concerned that my PSA was 5.5 . Following this saw the urologist had a biopsy done and got the results on 6th March.

Of 12 biopsy samples taken 5 were contained cancer cells.Max tumour length 5mm

Gleason score 3 + 4 =7. Nothing was detected on the MRI scan

Prostate volume 40 PSA  density 0.13

The Urology nurse who gave me my results ,told there was a good chance it was curable as the cancer was contained within the organ.

I have been offered  Robotic assisted Prostatectomy  or Hormone treatment and external beam radiotherapy.

I have an appointment on Tues with the Urologist to discuss surgery and another appointment on Weds to speak with the consultant oncologist. I cannot thank the hospital staff enough , all have been very sensitive and respectful of my feelings.

I have read a lot of info. regards both procedures , a lot on this excellent site  plus I have met with a two local men who have had both procedures  and told me of their experiences.

I am currently leaning heavily to go with the robotic procedure I am aware of the side effects but will feel happier to get it removed completely.

I should add I am reasonably fit for an old boy ,for the last 6 years have gone to weekly Pilates classes, so know all about Pelvic Floor exercises (I'm doing them 3 times a day now).

I am very positive about things and feel grateful it's been found .This doesn't mean I'm looking forward to the treatment ! .

 I realise if it had been left and found later things might not look as bright.

I will update things after my next appointments  and in the meantime thank you all for posting some very useful and ,sometimes funny, and very informative posts

RegardsRick

Thanked 1 time
User
Posted 12 March 2017 18:57:30(UTC)

Hi everyone ,

My name is Rick , I am 68 (69 in May) married with two grown up Daughters (47 and 49) and two grandchildren (25 and 29)

I retired from quite an active job at Christmas 2016

On Monday I was diagnosed with prostate cancer , I was not showing any symptoms ,my doctor did a blood test for something completely unrelated in December 2016 and was concerned that my PSA was 5.5 . Following this saw the urologist had a biopsy done and got the results on 6th March.

Of 12 biopsy samples taken 5 were contained cancer cells.Max tumour length 5mm

Gleason score 3 + 4 =7. Nothing was detected on the MRI scan

Prostate volume 40 PSA  density 0.13

The Urology nurse who gave me my results ,told there was a good chance it was curable as the cancer was contained within the organ.

I have been offered  Robotic assisted Prostatectomy  or Hormone treatment and external beam radiotherapy.

I have an appointment on Tues with the Urologist to discuss surgery and another appointment on Weds to speak with the consultant oncologist. I cannot thank the hospital staff enough , all have been very sensitive and respectful of my feelings.

I have read a lot of info. regards both procedures , a lot on this excellent site  plus I have met with a two local men who have had both procedures  and told me of their experiences.

I am currently leaning heavily to go with the robotic procedure I am aware of the side effects but will feel happier to get it removed completely.

I should add I am reasonably fit for an old boy ,for the last 6 years have gone to weekly Pilates classes, so know all about Pelvic Floor exercises (I'm doing them 3 times a day now).

I am very positive about things and feel grateful it's been found .This doesn't mean I'm looking forward to the treatment ! .

 I realise if it had been left and found later things might not look as bright.

I will update things after my next appointments  and in the meantime thank you all for posting some very useful and ,sometimes funny, and very informative posts

RegardsRick

Thanked 1 time
User
Posted 12 March 2017 20:30:10(UTC)
Hi Rick
Sorry it's been necessary for you to join the club but it sounds as though you have been doing your homework and are pretty well prepared for what lies ahead.
It can be difficult making a final decision about what treatment options to go for but I am sure that whatever you choose it will be right for you.

All the very best with your PCa journey and it will be great if you could keep us updated to date with your progress. Treatments are constantly changing so I find it interesting to read of other people's experiences. Guess I might just be nosey.

Kind regards

Kevan
Thanked 1 time
User
Posted 20 March 2017 22:42:50(UTC)

Hi Rick,

Hope all goes well with OP. It's a major one so don't try to do too much too soon and be patient about after effects which may improve quickly but could take a long time.

Barry
Thanked 1 time
Show Most Thanked Posts
User
Posted 12 March 2017 20:30:10(UTC)
Hi Rick
Sorry it's been necessary for you to join the club but it sounds as though you have been doing your homework and are pretty well prepared for what lies ahead.
It can be difficult making a final decision about what treatment options to go for but I am sure that whatever you choose it will be right for you.

All the very best with your PCa journey and it will be great if you could keep us updated to date with your progress. Treatments are constantly changing so I find it interesting to read of other people's experiences. Guess I might just be nosey.

Kind regards

Kevan
Thanked 1 time
User
Posted 12 March 2017 20:36:46(UTC)

Well I was a bit worried for you at first - wondered how you had managed to have a daughter when you were only 10 but I see from your profile that you are actually 68 not 58 which makes more sense!!! At 68, I guess the potential risk of ED and dry orgasms is not so important and yet you are still young enough to recover from surgery without too many problems so your instinct to go with RP might be absolutely right.

However, don't close your ears to what both specialists have to say to you - with at least one 5mm core I would want to know how close to the edge that has crept and whether the surgeon is offering both nerve bundles spared, one nerve bundle spared or non-nerve sparing. That may make a difference to your risk of incontinence.

Your pelvic floor should be like a vice after all that pilates :-)

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard


User
Posted 13 March 2017 09:52:08(UTC)

Thanks Lynn ,I did start a family young  , but not that young ,have edited my post to the correct age !

thanks for your comments r

User
Posted 20 March 2017 19:43:37(UTC)

Hello all
Went to see the surgeon last Tuesday followed by the Oncologist on Wednesday who offered me another option of Bracchytherapy (as well as hormone treatment and beam radiotherapy).

I've weighed up all the odds, read loads of information ,scoured this site and have decided to stick with my first conclusion and go with the Robot Assisted Prostatectomy.

I'm booked in for the Op.on April 27th. one week after coming back from a long planned weeks holiday .I will post following the procedure to update the situation.

Regards Rick

User
Posted 20 March 2017 22:42:50(UTC)

Hi Rick,

Hope all goes well with OP. It's a major one so don't try to do too much too soon and be patient about after effects which may improve quickly but could take a long time.

Barry
Thanked 1 time
User
Posted 20 March 2017 22:50:30(UTC)
Hi Rick
I found that once I had made a decision it was like having a weight lifted and I have never looked back since.
Enjoy your holiday 😊
Thanked 1 time
User
Posted 21 March 2017 15:10:21(UTC)

Hi Rick We both share a similar pre treatment diagnosis Like you I opted for the Robotic Surgery and later required Salvage therapy  but I am pleased to say that despite problems with ED and incontinence my PSA seems to be on the decline. The support and advice on this forum is great. So enjoy your holiday  and then go for it  Good Luck Andrew

Thanked 1 time
User
Posted 21 March 2017 15:32:12(UTC)

You and your story sound very similar to mine.

If Surgery is your chosen option I would advise that you identify the surgical procedure option (it will be RARP but I believe (?) there are details of choices for the surgeon within that procedure) which has the best proven results for 'nerve sparing' and that you identify a surgeon who has the best proven track record of nerve sparing. They will use terms like "everybody's different" and "most people get use back within...blah, blah blah"

Also I would try to get the surgeon to agree to attempt to not cut out the internal (bladder) sphincter or at least explain why that cannot be avoided.

The surgeon's first priority is to make sure he cuts out anything that has any chance of being cancerous and in that regard it's easier for the surgeon to cut out more than less. You need to identify a surgeon who has the skill to cut out what needs cutting out and not cut out stuff that doesn't need cutting out.

Thanked 1 time
User
Posted 21 March 2017 17:39:04(UTC)

The science shows that robotic surgery does not reduce the risk of ED / incontinence Nomad, it just means you are in hospital and off work for a shorter time. Some men are not suitable for RARP due to previous surgery or because heart problems mean they cannot be tipped head down for hours on end. In some cases, open RP is the better option for getting a fine edge, if lymph nodes need to be removed or because of where the cancer is sited within the gland. You chose robotic because you believed it was your best option but that doesn't apply to every case.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard


Thanked 1 time
User
Posted 21 March 2017 17:41:25(UTC)

Hi Rick, almost identical to my diagnosis as well; ! had RP last August, age 66 and can only echo what advice others have given. I would also advise you to get as fit as possible before the op. My anaesthetist likened it to preparing for a marathon and put me on a strict regime of no alcohol, no white carbohydrates, 3 litres of water a day and lots of exercise for the 6 weeks prior. Not very enjoyable, but my recovery was very quick and no pain killers necessary from the day I left hospital. Of course there may be other factors involved, but I'm sure it contributed. Good luck.

Thanked 1 time
 
©2017 Prostate Cancer UK