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Rum old game this one, isn't it?

User
Posted 21 Oct 2014 at 09:28

It strikes me that this journey has some right ups and downs. I guess that’s the truth whether you have a major battle with PCa or even just a brief brush with it.

It’s probably not just because of the direct fear of death, though that certainly contributes along with all the questions that come as consequences and sequels, such as, ‘How well provided for are my near and dear ones?’ ‘What was the point of my life?’ What – if anything – can I do to reduce the pain / stress / harm to others if I do “pop my clogs”?’

It’s also things like how functional or otherwise will I be? And if that is less than fully functional, then for how long and to what degree, and how will that affect me, my earnings / employability, my nearest and dearest? Will I become a burden to others? Is this all going to be one major ‘cat amongst the pigeons’ for my (our) hopes and life plans?

And, post-operatively, how do I feel about my loss of ability to have normal sexual orgasms, not now having seminal vesicles or prostate? Will I get my erectile function back and how long will it take? How does that leave me feeling about my sexual identity, which after all, is one intertwined piece of my overall sense of identity?

But I remember a line I read in a book – sorry I can’t remember which book it was now and I’ve long lost the book in question anyhow. The line was, basically, that sometimes in life, you just have to feel the fear and do it anyhow.

And it dawns on me that the most frightening part of the journey, seems always to be the bit that you are currently on.

I mean, I was pretty concerned (internally), though ‘cool’ on the outside, about the results of the MRI and bone scans. Ironically, I wasn’t all that bothered about the biopsy results, not even after I was given them. I was pretty concerned about the actual surgery - for some completely illogical reason, I got a spooky feeling that I wasn’t going to come out of it. Hey, I’m still here! Then, something I read spooked me about getting the catheter out, though that was, at least for me, a real doddle. I’ve been a bit concerned – more on a pragmatic level – about if this urinary incontinence remains, just how I’ll manage it on a day-to-day basis. Hey, I’m getting that pretty much under control. Not perfect, but vastly better than it was.

And having ridden those ups and downs, strangely, I’m not overly concerned about getting the results of the pathology. Whatever those results are, whatever cards I’ve been dealt, well, I’m just going to have to get on with the next bit of the journey, aren’t I? I mean there are things that I can change, or do something about, and things I just have to accept and get on with.

The whole thing really is something of an emotional roller-coaster and I'll put my hand up and admit that I’ve been in some dark places on some days on this journey.  I’ve had a lot of support from others, very especially from my dear OH. But I am learning that really the only way is to ‘feel the fear and do it anyhow’.

And it is rather like the fear you feel as you queue up for the roller-coaster ride, isn’t it? Though, that all feels rather different afterwards when you’ve ridden it, got off, and you’re walking away from it, doesn’t it?

Life is a journey. You can't move forward on a journey AND stay in the same place.
User
Posted 21 Oct 2014 at 15:30

Well said.
What's the other saying. "Nothing to fear, but fear itself".
We can only do what we can to help ourselves, be it change of diet, attitude or positive thinking.

We can't control the winds - but we can adjust our sails
User
Posted 21 Oct 2014 at 15:52

I think the phrase comes from a self help book by Susan Jeffers. One thing about having the diagnosis is that you cannot avoid the impact of it on your life. You can attempt to put it to one side but as your post demonstrates you are continually meeting new challenges and finding you have had to overcome them and I guess there will be more to come.

For me having Cancer becomes part of a number of constant reference points in my life. I have to acknowledge it, live with it, respond to it but I will try to also continue to respond to lots of other reference points - family, friends, work etc. it will not dominate my life as I have plenty I want to do but it is part, as you acknowledge, a calculation about what and how much you can do. I am finding fatique associated with nearly three years hormone therapy is something I have to factor in the day and so do so rather than bemoaning the fatique itself.

It's an attitude of mind that you are searching for which will sustain you through those dark days and give you sustenance in making the most of your life. You sound as if you are doing that pretty well thus far.

User
Posted 21 Oct 2014 at 16:30

Too right about the ups and downs. Since my (rather strange) urodynamic test earlier this year, I have been in "get on with life" mode because I assumed that Betsi Cadwallader Health Board had forgotten me. However, it was just a "normal" wait to see the specialist. Going there on Friday, the outcome of which will be either another operation or that nothing can be done, neither of which is particularly appealing. So here we go again......

Tony

TURP then LRP in 2009/2010. Lots of leakage but PSA < 0.1 AMS-800 Artificial Sphincter activated 2015.

User
Posted 21 Oct 2014 at 16:31

Hi Johsan and Yorkhull,

I guess it's much like many other things in life.  On the good days it's fine and on the not-so good days .....

(Actually, I associate the quote with Deborah Tannen, but maybe she was quoting someone else - I can't remember now!)

Life is a journey. You can't move forward on a journey AND stay in the same place.
 
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