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Where do I stand now ?

User
Posted 11 Feb 2015 at 16:55

Its been almost a year now since I had my partial nerve sparing prostate removal. I was 52 and in a 3 year relationship.

The relationship has now gone, and I feel less than a man.

 

I now longer have that spark that was me, to kick on !

 

Where has it gone,

Where has my confidence gone.

I wish, at times, that I never had this operation, as it seems like I am grieving...............

 

 

 

User
Posted 11 Feb 2015 at 19:49

Hi Happy Chap, although you are not sounding all that "happy" at this time, what has happened? When did you and your X part? Was it all hunky dory prior to your op? Looking back was it rocky?

Grieving is perfectly natural, part of you has died and gone, part of us, part of me, I went through grieving. It was painful even though I knew what it was, what it meant, what stages I would go through and that it would end in time. Have you spoken to anyone, your GP, friends, mates, family, Samaritans, don't knock them, they just listen, so I am told.

One year down the line is very early days, and the first anniversary of any such significant event is the worst time, worse than the event for many.

You are no less of a man, you may be a different man, at this time you may be a sad man, that's allowed, but your are still a man mate.

atb

dave

User
Posted 11 Feb 2015 at 22:14

Hi again

It may help us to advise and support if you can provide more details.

Was your operation sucessful ie negative margins...undetectable post op PSA

How is your continence?
How is your post op erectile function?

Sorry for being intrusive but did your relationship breakdown as a result of your Pca and associated issues?

All of these things can effect your confidence but it is not just about confidence. Many men dread the thought of being incontinent or not being able to 'perform' in the bedroom as they did pre-op.

Some men are happy to accept this in the knowledge that the sacrifice is worth it to get rid of the cancer. Other men find this incredibly difficult to deal with as they see their quality of life has greatly diminished.

If you have not been offered support to deal with the physical impact of the operation you should speak to your consultant, specialist nurse or GP. Clinical intervention can help with these issues but not always.

Sometimes the emotional impact is the more difficult issue and not necessarily as easy to treat. Others won't necessarily know how you feel nor can empathise. Not once as a clinician talked to me and my wife about the impact this has had on our relationship, because regardless of what others may say, this does effect relationsips. I remember the ED nurse showing me a range of gadgets for a pump like she was trying to sell me the.latest i-pad. I was sat there wondering how it had all come to this and pondering how was our life going to be the same again.

It does help to speak to others who have been through it which is why I suggested a support group.

Hopefully you can salvage something from this. It's not always normal but what is? You need to find your 'new' normal and that can take time.

If you are having difficulties with continence and erectile function it is still quite early days for you. I am two years post op and still working on getting the erectile function right, but hopefully slowly getting there.

Keep posting mate

Bri

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User
Posted 11 Feb 2015 at 19:49

Hi Happy Chap, although you are not sounding all that "happy" at this time, what has happened? When did you and your X part? Was it all hunky dory prior to your op? Looking back was it rocky?

Grieving is perfectly natural, part of you has died and gone, part of us, part of me, I went through grieving. It was painful even though I knew what it was, what it meant, what stages I would go through and that it would end in time. Have you spoken to anyone, your GP, friends, mates, family, Samaritans, don't knock them, they just listen, so I am told.

One year down the line is very early days, and the first anniversary of any such significant event is the worst time, worse than the event for many.

You are no less of a man, you may be a different man, at this time you may be a sad man, that's allowed, but your are still a man mate.

atb

dave

User
Posted 11 Feb 2015 at 20:33

Hi

If you reflect on what you have been through over the last year or so it's absolutely understandable how you are feeling.

As well as going through all this it sounds like you've lost the person you were probably relying upon for support.

You have caught the cancer early enough to have the tumour removed. So that's the easy bit dealt with. The aftermath is something different. It's often referred to as a roller coaster due to the many ups and downs we experience along the way. You will have good days, you will have bad days. But if those bads days are taking over it may be worth discussing with your GP.

It may be worthwhile checking if there is a local support group. It does help to talk to others who can empathise. Failing that PCUK offer a service where you can talk to men who have been through it.

Have you had decent post-op aftercare eg erectile dysfunction support etc?

One thing for sure you are not alone. You have hopefully rid yourself of the cancer. You are young so have many years ahead. But you just need a bit of support now to deal with how you are feeling. This is quite normal under the circumstances

Bri

User
Posted 11 Feb 2015 at 21:04
I just read your post and hope that you do not mind a woman posting a reply, obviously I cannot know how you feel about your operation but I do understand your sadness. My heart really goes out to you facing any kind of battle is so hard on your own. Believe me the main thing making you feel this way is the fact that your confidence has deserted you. This is a temporary abandonent but it really is up to you to try and encourage it to come back trust me you are no less of a man for having this happen. If that were the case this world would be full of half people.

You can try and tackle this on your own but you might find yourself going round and round in circles and getting nowhere, or you can reach out for help, posting on this forum is an admirable start it tells me for one that you do not want to feel this way at all.

Things will not change overnight it takes time to heal mentally from the breakdown of a relationship and that is even harder when dealing with a major physical crisis too. A cruel double whammy.

You can go to your GP, call the nurses on the number on the homepage and take any advice you think is helpful from those who reply to your post, You should also have a clinical nurse to support you at the medical facility where you had your operation and are having any follow up appointments they can also give you guidance and support for mental well being as well as physical help.

Things really do get better when you start to work with others that can help you it can take time but when the first happy event comes along, whatever that might be it will make you feel like a million dollars and then you will know that your confidence is returning.

I wish you all the very best and hope that you will keep in touch with us to let us know how you are getting along. Hang on in there

xxx

Mo

User
Posted 11 Feb 2015 at 21:43

Oh Happy Chappy.
Another woman to add a viewpoint, although really I can but agree with Edamo and the men.
Less of a man? Why is that?
Is the feeling based on the apparent failure of the 3 year partnership. Was that due to PC or its effects on that relationship?
The relationship may have ended even without the cancer.
You are only one year on from your surgery and although that feels like it will never end, your body has taken a massive mauling and needs time to repair. Your life has changed forever from the way it was before, but your new life is cancer free and your will body will heal in time.
Many men on here will tell you their stories of how difficult life can be WITH an understanding partner.
You, on the other hand are trying to struggle along on your own.
Please seek help, be that a listening ear from the nurses on this site, your GP or even just us.
IF you are having ED problems have you been referred to an ED clinic or nurse for professional assistance. If not, then seek that help out. If you had partial nerve sparing then there is still more to look forward to in the future in the way of relationships, but from what I understand from those men in your situation, the physical side doesn't happen just because you want it to - you have to do your bit to help it along via drugs or pumps.

Feel like a rant, then have one.
We understand the feelings but more to the point, if you keep in touch there will be people on here who can give you their slant on the feelings you have.

You are not alone on this path you are walking.

There's always a listening ear with us lot.

Whatever else you are feeling, the one of worthlessness or being less of a man is not valid.

You have been brave enough to tackle your cancer head on with major surgery. Don't regret that road you took. There would have been no guarantees whatever your choice had been. That's what cancer is like - unpredictable.

Your confidence will come back, you'll see. Please just give yourself time.

Best Wishes
Sandra

Edited by member 11 Feb 2015 at 21:44  | Reason: Not specified

We can't control the winds - but we can adjust our sails
User
Posted 11 Feb 2015 at 22:00

Wonderful to see a woman's, several women's, perspective, on your situation There are many men who's partners fail them, miserably. My hand shoots up here. Life lived on Facebook was all wonderful and lovely and sunshine and roses. Real life was totally tihs.

Happy Chappy, please please please get a hold of your life and seize it, and make progress, and enjoy your life.

dave

User
Posted 11 Feb 2015 at 22:14

Hi again

It may help us to advise and support if you can provide more details.

Was your operation sucessful ie negative margins...undetectable post op PSA

How is your continence?
How is your post op erectile function?

Sorry for being intrusive but did your relationship breakdown as a result of your Pca and associated issues?

All of these things can effect your confidence but it is not just about confidence. Many men dread the thought of being incontinent or not being able to 'perform' in the bedroom as they did pre-op.

Some men are happy to accept this in the knowledge that the sacrifice is worth it to get rid of the cancer. Other men find this incredibly difficult to deal with as they see their quality of life has greatly diminished.

If you have not been offered support to deal with the physical impact of the operation you should speak to your consultant, specialist nurse or GP. Clinical intervention can help with these issues but not always.

Sometimes the emotional impact is the more difficult issue and not necessarily as easy to treat. Others won't necessarily know how you feel nor can empathise. Not once as a clinician talked to me and my wife about the impact this has had on our relationship, because regardless of what others may say, this does effect relationsips. I remember the ED nurse showing me a range of gadgets for a pump like she was trying to sell me the.latest i-pad. I was sat there wondering how it had all come to this and pondering how was our life going to be the same again.

It does help to speak to others who have been through it which is why I suggested a support group.

Hopefully you can salvage something from this. It's not always normal but what is? You need to find your 'new' normal and that can take time.

If you are having difficulties with continence and erectile function it is still quite early days for you. I am two years post op and still working on getting the erectile function right, but hopefully slowly getting there.

Keep posting mate

Bri

 
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