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My Darling Husband- I NEED help!

User
Posted 11 May 2015 at 18:30

My husband was diagnosed with prostate cancer in october 2014. He didnt not tell me until Jan 2015, as he didnt want to 'ruin' christmas for myself, 2 sons and grandchildren. He has very bad gout in his hand and elbows so was seeking medical attention for that and during blood tests they found out he had prostate cancer which was a big shock to him, I cant believe he kept that massive diagnosis from me for nearly 3 months. They thought it may have spread to his bones so they did a scan of his bones but it came back clear. He gets very agitated he loves his sports and is unable to do them as they involve his hands and because of gout he is unable to do them. He also enjoys gardening which he he can manage but it gets too much for hm so he has to come inside. And now with the cancer its made things 10 times worse. He is so depressed he watches our sons and grandchildren doing things that he normally does, like gardening and sports and it is seriouly depressing him which makes him so upset and angry an I have t leave the room becasue I know it will be me that gts it in the neck, but I dont want to walk out of the room, I want to be a ble to talk to him. I want to be abe to tell him that everything is going to be ok but I just cant becasue I dont k ow if it will be! The doctors seem to be optimistic that they will get rid of it, so I thought upon hearing this, It will make him more optimistic but it is he is being s negative. That isnt our only issue, Since being diagnosed he hasnt come near me. We havent had sex he used to kiss me everytime he left the house and nw he just says bye and then leaves. He says I Love you every night before we go to bed but rolls over and goes straight to sleep. we used to be up until the early hours of the morning talking about thing such as our grandchildren and our children and what we are going to do the following day and talk about the good old times. I am seriously lost, Everything I say he bites my head off, He has started going to be really early for example, On a saturday we would order a Chinese, cuddle up on the sofa and watch Britains Got Talent or Factor and give our verdict on the acts but now im watching it alone. Its as if the cancer has already taken him from me and its destroying both of us. I know that may sounds realy selfis but thats how I feel. Any other ladies feeling like this? PLEASE help me.

User
Posted 11 May 2015 at 23:29
Originally Posted by: Online Community Member
Jade

I spoke to my GP to try to understand what I should do / say but I ended up screaming "it's not all about you" at him on New Years eve!

Maureen

Maureen, you made me smile - I have often felt like screaming at our GP too but never yet been brave enough!

Edited by member 11 May 2015 at 23:30  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 11 May 2015 at 20:46

Hello Jade and welcome.

Firstly I echo what Lyn says. To get the toolkit from the site (The toolkit is a set of booklets/leaflets which explain prostate cancer, emotions, sexuality etc) go to the Home page, then Information, then Our Publications. Well worth obtaining.

Secondly, no - you are not being selfish. Your reaction is perfectly normal as indeed is your husband's

He has had a terrible shock and on top of that he has been keeping that horrible secret clutched to his chest for three months.
He's in physical pain from other conditions too and is justifiably fed up with everything.
It is still very early days for him.

It's possible that he is shutting you out subconsciously. It maybe that his mind is telling him it will be better if he keeps his distance. He is afraid of his future, he may be afraid that he doesn't have one.
Do you have any indication at all what his treatment will be. Has he been able to tell you what his PSA/Gleason scores were.
Perhaps he feels that the closeness if sexual intercourse will weaken his resolve to keep you protected from how he feels so he rejects sex to avoid that situation.

From what you have said I have surmised that he appears to be in the cure camp.

Have you told him you are in this together. He might not know how this is eating away at YOU.
Our men are a strange bunch. Sometimes we have to get tough with them in order to get ourselves involved in their daily dealing with this cancer.

Like Lyn, I feel it's a lot to do with his other physical problems getting him down and this is just the icing on the cake.
Unless he can open up to you or his sons nothing will get resolved.

You, however, are not alone because you have found us.

We cannot drag his head out of the sand or give him a kick up the behind or any other kind of wake up call.

If you cannot persuade him to go and talk to his GP or you or his sons then you may have to grin and bear it for a while.

Be patient. Get the Toolkit and leave them hanging around so he sees them. If nothing else they may make him open up to you.

Best wishes, keep posting and we'll keep supporting
Sandra

We can't control the winds - but we can adjust our sails
User
Posted 11 May 2015 at 20:55
Jade

I know exactly what you are going through, as Lynn says this is likely to be depression rather than PCa, my husband had a major heart attack in 2010 and was very ill but even when he had recovered months later he still suffered from "black moods", was distant and didn't really care about anything or anyone around him.

I know that everyone is different but after a couple of months I had a bit of a meltdown (and 4 weeks off of work) as his mental state was taking its toll on me, our daughter was 12 and treading on eggshells and visitors were ignored. I spoke to my GP to try to understand what I should do / say but I ended up screaming "it's not all about you" at him on New Years eve! To be honest, for him this was the best thing - he had no idea how he was behaving towards us and was mortified that he had upset our daughter. Long story short he is one of the founding members of the local cardiac support group and is the vice chair, he realised how important it is to talk to others - both sufferers and their families.

Is there a local support group that you can contact? The PCUK specialist nurses are very helpful and will be able to provide you with advice and guidance on whether they feel you would benefit from contacting a different organisation.

I wish you well and please do not think that you are on your own with this.

Maureen

"You're braver than you believe, stronger than you seem and smarter than you think." A A Milne
User
Posted 12 May 2015 at 00:34

I have to say my GP has been nothing but supportive. I will be eternally grateful to him for referring me straight away when my 2nd PSA result, (following one 2 years earlier), was received.

Paul

Stay Calm And Carry On.
User
Posted 12 May 2015 at 08:40
Originally Posted by: Online Community Member
Originally Posted by: Online Community Member
Jade

I spoke to my GP to try to understand what I should do / say but I ended up screaming "it's not all about you" at him on New Years eve!

Maureen

Maureen, you made me smile - I have often felt like screaming at our GP too but never yet been brave enough!

I think she screamed at her OH Lyn....but wouldn't it feel.like 'justice' sometimes if we did scream and rant at the GP

Bri

User
Posted 12 May 2015 at 21:25

Hi Jade,

You have been given some really good advice and help from other people on here, I just wanted to give a slightly different slant. I joined this forum 2 years ago , Trevor has an incurable prognosis I needed more than a shoulder to lean on , I needed other like minded people who understand what I feel and am going through I needed people on   a similar path. Trevor on the other hand couldn't even  utter the word cancer. He has never participated in the forum and 2 years on he still finds it difficult to talk about his diagnosis.  There is no right or wrong way of dealing with a cancer diagnosis . We are all individuals , quite simply I am just there for him when he needs me. In the begining I was like you , I wanted Trevor to talk to me and share stuff , slowly over time I have come to realise this is so huge it is such a personal thing that it is so hard to share your innermost fears . What do I do well I am just there to catch him when he falls. 

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 15 May 2015 at 16:46

All planned we are going next weekedn for 4 days, he doesnt have a clue bless him, cant wait to see his face when we see all his friends. 9 of us in total, should be a great few days. And I will definitley keep you updates Maureen

 

Thank you for our message Paul, My hubby's family were very much like yours, everything gets brushed under the carpet

 

Best Wishes

Jade

x

Show Most Thanked Posts
User
Posted 11 May 2015 at 20:12

Jade, I am not sure the Prostate cancer is the cause of your problems - from what you say he may have depression but it is the gout that is preventing him from doing the things he loves, not the cancer. If he has been diagnosed with early stage disease and offered curative treatment, has he started talking to you about which treatment he is leaning towards?

Honestly, I think you need to order the toolkit from this website and start reading - the more you understand the disease, the better you will handle him. From what you say, the only reason you might lose him is if he sticks his head in the sand and doesn't get treated! What have your sons had to say? Has their dad talked to them about whether and when they should also get tested?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 11 May 2015 at 20:46

Hello Jade and welcome.

Firstly I echo what Lyn says. To get the toolkit from the site (The toolkit is a set of booklets/leaflets which explain prostate cancer, emotions, sexuality etc) go to the Home page, then Information, then Our Publications. Well worth obtaining.

Secondly, no - you are not being selfish. Your reaction is perfectly normal as indeed is your husband's

He has had a terrible shock and on top of that he has been keeping that horrible secret clutched to his chest for three months.
He's in physical pain from other conditions too and is justifiably fed up with everything.
It is still very early days for him.

It's possible that he is shutting you out subconsciously. It maybe that his mind is telling him it will be better if he keeps his distance. He is afraid of his future, he may be afraid that he doesn't have one.
Do you have any indication at all what his treatment will be. Has he been able to tell you what his PSA/Gleason scores were.
Perhaps he feels that the closeness if sexual intercourse will weaken his resolve to keep you protected from how he feels so he rejects sex to avoid that situation.

From what you have said I have surmised that he appears to be in the cure camp.

Have you told him you are in this together. He might not know how this is eating away at YOU.
Our men are a strange bunch. Sometimes we have to get tough with them in order to get ourselves involved in their daily dealing with this cancer.

Like Lyn, I feel it's a lot to do with his other physical problems getting him down and this is just the icing on the cake.
Unless he can open up to you or his sons nothing will get resolved.

You, however, are not alone because you have found us.

We cannot drag his head out of the sand or give him a kick up the behind or any other kind of wake up call.

If you cannot persuade him to go and talk to his GP or you or his sons then you may have to grin and bear it for a while.

Be patient. Get the Toolkit and leave them hanging around so he sees them. If nothing else they may make him open up to you.

Best wishes, keep posting and we'll keep supporting
Sandra

We can't control the winds - but we can adjust our sails
User
Posted 11 May 2015 at 20:55
Jade

I know exactly what you are going through, as Lynn says this is likely to be depression rather than PCa, my husband had a major heart attack in 2010 and was very ill but even when he had recovered months later he still suffered from "black moods", was distant and didn't really care about anything or anyone around him.

I know that everyone is different but after a couple of months I had a bit of a meltdown (and 4 weeks off of work) as his mental state was taking its toll on me, our daughter was 12 and treading on eggshells and visitors were ignored. I spoke to my GP to try to understand what I should do / say but I ended up screaming "it's not all about you" at him on New Years eve! To be honest, for him this was the best thing - he had no idea how he was behaving towards us and was mortified that he had upset our daughter. Long story short he is one of the founding members of the local cardiac support group and is the vice chair, he realised how important it is to talk to others - both sufferers and their families.

Is there a local support group that you can contact? The PCUK specialist nurses are very helpful and will be able to provide you with advice and guidance on whether they feel you would benefit from contacting a different organisation.

I wish you well and please do not think that you are on your own with this.

Maureen

"You're braver than you believe, stronger than you seem and smarter than you think." A A Milne
User
Posted 11 May 2015 at 22:45
Hi and welcome to this excellent, support site.

I wanted to address the issue of sex. If he has PCA and you say he has but is curable, it may be that he can't actually have sex as it all depends on what's going on with his prostate. Some men are still able to get erections but not all, prior to treatment and many are not able after treatment (and often need help) so it's a very frightening time for a man.

It's a very tough time for you both, I'm hoping the advice given (see doctor, read the toolkit and see what local support groups there might be) will help you both. It's bad enough having gout and cancer without feeling depressed. If he has a curable form of the disease he will get treatment and he will recover, that's what he has to focus on.

Much love to you, seeing posts like this makes me realise once again how lucky I am that my hubby is open and remains very kind despite everything, and he hasn't really changed despite being in the incurable camp.

I'm hoping that you find someone to talk to (you can ring the nurses on this site too) and you are able to help your man get back to his previous good cheer.

Lots of love

Allison

User
Posted 11 May 2015 at 23:29
Originally Posted by: Online Community Member
Jade

I spoke to my GP to try to understand what I should do / say but I ended up screaming "it's not all about you" at him on New Years eve!

Maureen

Maureen, you made me smile - I have often felt like screaming at our GP too but never yet been brave enough!

Edited by member 11 May 2015 at 23:30  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 12 May 2015 at 00:34

I have to say my GP has been nothing but supportive. I will be eternally grateful to him for referring me straight away when my 2nd PSA result, (following one 2 years earlier), was received.

Paul

Stay Calm And Carry On.
User
Posted 12 May 2015 at 08:40
Originally Posted by: Online Community Member
Originally Posted by: Online Community Member
Jade

I spoke to my GP to try to understand what I should do / say but I ended up screaming "it's not all about you" at him on New Years eve!

Maureen

Maureen, you made me smile - I have often felt like screaming at our GP too but never yet been brave enough!

I think she screamed at her OH Lyn....but wouldn't it feel.like 'justice' sometimes if we did scream and rant at the GP

Bri

User
Posted 12 May 2015 at 09:06

I was joking .......

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 12 May 2015 at 09:30
Oh Jade

if I could reach out and give you a big hug I would. This horrid disease does things to our loved ones that we could never imagine and the impact it all has on us can be devastating too.

First things first, your Husband is probably in a lot of significant pain from the gout, I have rheumatoid arthritis thankfully it is now in full remission but I can remember many times when it hurt so much I could cry and probably did. The frustration at not being able to hold onto a mug of tea or use a teacup if the handle was too small, not being able to pick things up and even worse finding it hard to even use loo paper was very hard to deal with. That in itself is enough to make a man grumpy.

To then be told the very frightening news that he has PCa must have been like a train hitting him full on. His immediate instinct was to protect you and your family through the Christmas you had all been looking forward to (he may have known he was in no mortal danger) was brave but for you it seemed like he was keeping a secret from you. Not telling you straight away may have actually made it harder for him now so he needs reassurance that what he did was OK, a little misguided but OK.

I guess now the hardest part is going to be to get him talking with you about everything he knows so far, also you being able to reassure him that you are there for him every step of the way. If he does not go to kiss you then step up and kiss him. If he does not hold you in the night then snuggle up to him or just hold his hand. Talk to him even if he doesn't talk back. If he goes off to bed early go with him it may be that he slowly starts to realise you are not running away from this. You may need to resort to the firmer approach but I hope that he will respond to you without that. If you really are getting nowhere is there a really good friend or even a Relate counsellor who could help. It is so critical that he involves you and that he sees you supporting him for his future mental and physical well being.

Allison has made a very valid point, he may be withdrawing because he can no longer get or maintain an erection his hormones will be all over the place and we know what that can do.So that will frighten him and challenge his masculinity and the last thing he would need is rejection because of it. This disease does this but it is not necessarily going to stay that way.

Is there a chance that he has been on the internet googling information that may be completely irrelevant in his particular case, there is stuff out there about advanced metastatic PCa and small cell aggressive PCa and all sorts of other things that can frighten the most Herculean men.

You mention that you do not want to get it in the neck so I presume that he sometimes retorts with angry words (nothing worse I hope) once again this can be hormones think of our worst ever times with PMS and you will have some idea of what is happening to him. I am not condoning this but he may genuinely not realise just how unbearable it is. It is also possible that the medical team have started him on some kind of hormone treatment if they have this might be making his mood worse.

He may not actually have clinical depression just a natural one considering all he is going through. As soon as he realises that that dark cloud is being lifted with someone else sharing and supporting him he may stat to slowly improve. His gout should also respond to medication although it can take a little while to get under full control. Try to ensure that you both treat the two things entirely separately at least until you get things stable.

follow the advice of others about learning up yourself via the toolkit it will be a great help going forward. Stay with us here and know that there are plenty of us here who can and will give you the support you need.

Best wishes

xx

Mo

User
Posted 12 May 2015 at 12:51
Lyn & Bri

It was my OH that was on the receiving end 😃 , sadly the GP visit was a wasted journey as he offered ME anti depressants! Needless to say another appointment has never beenever booked with him!

Jade

Does your husband have a close male friend that he could talk to? My OH had his head in the sand several weeks ago but I managed to "engineer" a conversation between him and a very good friend of his who has health problems. They went out for a beer, or 2, together and when he came home he seemed much more relaxed - not solely due to the beer! He's now opened up about having prostate cancer, we are actually talking about it rather than me having a one sided conversation and he seems to be much more his normal self. I'm sure that the number of requests for PSA testing in our area will have risen in the last 2 weeks.

Hang on in there

Maureen x

"You're braver than you believe, stronger than you seem and smarter than you think." A A Milne
User
Posted 12 May 2015 at 21:25

Hi Jade,

You have been given some really good advice and help from other people on here, I just wanted to give a slightly different slant. I joined this forum 2 years ago , Trevor has an incurable prognosis I needed more than a shoulder to lean on , I needed other like minded people who understand what I feel and am going through I needed people on   a similar path. Trevor on the other hand couldn't even  utter the word cancer. He has never participated in the forum and 2 years on he still finds it difficult to talk about his diagnosis.  There is no right or wrong way of dealing with a cancer diagnosis . We are all individuals , quite simply I am just there for him when he needs me. In the begining I was like you , I wanted Trevor to talk to me and share stuff , slowly over time I have come to realise this is so huge it is such a personal thing that it is so hard to share your innermost fears . What do I do well I am just there to catch him when he falls. 

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 12 May 2015 at 21:59

As regards gout, is your husband on medication for this with Allopurinol on another drug so the excess uric acid (which forms crystal in joints) is passed out in his urine or otherwise counteracted? I have found that Allopurinal helps stop further build up of crystals and reduces pain but will not cause affected joints to repair. As with other forms of arthritis, pain can intensify and reduce at times. Whilst PCa will be the primary concern, it is sensible to take measures to avoid gout taking a greater hold if this is not already been adopted.

Barry
User
Posted 13 May 2015 at 15:38

We went to a hospital appointment a few days ago to discuss his treatment options and the doctor recommended going home and discussing the options together and but he doesnt want to talk about it. My sons have been brilliant so supportive. My youngest is currently working a lot so he hasn't seen his dad for a few weeks but he is bringing his wife and grandchildren up on the weekend to see him and they are going to watch the football so my son has said to me he will try and have a word with him in private.

And thank you for your reply

x

User
Posted 13 May 2015 at 15:50

Thank you so much Mo for your reply, It really has been a great help

 

Best Wishes

Jade

 

User
Posted 13 May 2015 at 15:55

Hello Maureen.

 

He has a few close friends but they live a far way away, I think I am going to take him on a surprise trip to London for the weekend to see something in the west end and meet up with friend like we did in the good old das, maybe me go out for a girly day at a spa and send him out with the boy to play golf

 

best wishes

Jade

x

User
Posted 13 May 2015 at 17:31
Jade

That sounds like a great plan, I hope you have a lovely time. A change of scenery, some laughs and a round of golf may do him the world of good and a girly spa day sounds fab. Hopefully your son will be able to break the ice and explain how you are feeling.

We are due to return to the hospital next week to make the decision on which treatment route to go down, so we're at a similar stage to you.

Say in touch

Maureen x

"You're braver than you believe, stronger than you seem and smarter than you think." A A Milne
User
Posted 13 May 2015 at 17:59

I was brought up in a family where issues were never discussed, but brushed under the carpet. I have been determined not to be so withdrawn which is why I am as open on here as it's possible to be in the hope it will help men like your husband to open up. I hope he comes round and faces honestly and openly what he is up against. In the end, I have found my PCa far easier to cope with by discussing the issues I have faced.

Paul

Stay Calm And Carry On.
User
Posted 15 May 2015 at 16:46

All planned we are going next weekedn for 4 days, he doesnt have a clue bless him, cant wait to see his face when we see all his friends. 9 of us in total, should be a great few days. And I will definitley keep you updates Maureen

 

Thank you for our message Paul, My hubby's family were very much like yours, everything gets brushed under the carpet

 

Best Wishes

Jade

x

 
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