Hello Heather and welcome.
I cannot answer regarding radiotherapy and hormone treatments as our was different.
However, there are many men on here, some with incurable Prostate cancer, who are living with and will continue living with cancer for a long time to come.
Many of them have had higher PSA than your dads.
If you click on the name under somebody's icon, you will be able to pick up their profile and read their story.
Look at Yorkhull's for example.
Please don't despair at this stage. There are many treatments available and new ones coming in as time goes on.
I expect somebody else will be along at some stage to offer their advice.
In the meantime, you could look at the site's Toolkit obtainable by going to the Home page, Information then Publications. Have a look and see what would be relevant to you and order it.
If you want to speak to somebody then you can ring the nurses on the site for reassurance.
Best Wishes Heather
Sandra
We can't control the winds - but we can adjust our sails |
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Thankyou for your lovely reply Sandra it means a lot - I will keep all that in mind
Heather xx
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Hi Heather
My cancer had already spread when I was diagnosed aged 51 in Feb 2008 http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-frown.gif. Despite that I'm still here - check out my profile. Current PSA is 1720 and I've had everything but the kitchen sink thrown at this disease. http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-frown.gif. Still feeling fine and off to Paris this weekend for yet another "jolly". http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-frown.gif
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Hi Heather
My husband was diagnosed around the same time as your dad and had a PSA of 25 but was incurable. He's still here, still fine and not yet had to have chemo. I know you feel you want to have an idea of how long he has left, but no one knows. All men are different in that regard, and it might interest you to know that my hubby is on an old form of HT called Stillbestrill and has been for more than 18 months, his PSA is rising now and our next step is chemo or Enzalutimide - we are not 100% sure which it will be yet but we are not afraid, he has done so well so far I'm confident that he will continue to do so. We don't have any time frame in mind (I think it's best not to) and just feel determined to enjoy our lives. Allister is a real poster boy for both longevity with a very high PSA and lots of mets and for enjoying life - he is a really good example to us all.
Lots of love
Allison xx
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There you go Heather.
I knew the others would be along to reassure you and I'm sure they have.
Sandra
We can't control the winds - but we can adjust our sails |
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Wow Allistar what an amazing story and reassurance! Keep going you're doing awesome!
Allison what lovely words too it really does mean a lot to me. I have a big close family but me my dad mum and brother (29years old) he has his own life, dad and mum split 2 years ago we have never been extremely close family but we are getting there, so it means a lot to hear from you all it really does xx
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