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Chris J's Journey

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User
Posted 05 Oct 2017 at 22:09

Chris and Ell, you are both amazing and I have appreciated all the advice Chris has thrown my way over the last year.
You are so right about needing to talk. Something me and my OH are not managing much of at the moment but I will keep trying.

User
Posted 06 Oct 2017 at 07:57

Keep going Chris

"Incurable cancer does not mean it is untreatable and does not mean it is terminal either"
User
Posted 10 Oct 2017 at 20:14
Stay strong, Chris. Your latest words ring true for all of us trying to come to terms with this awful illness. Cliches are easily said but your strength and personalty still inspire.
User
Posted 08 Dec 2017 at 14:51

For those still following my journey ............
I LOVE my new Onco --- the Prof at Southampton. He must know his stuff as he's heading up the latest immunology research.

Today was a very worrying appointment knowing that my post-op , post HT PSA has risen to 12 from 7.6 exactly 3 months ago . I felt sure I was on to the dreaded castrate level injectable HT with thrown-in Chemo on top . But guess what ? All my other bloods were within levels , and I reported a healthy me with no noticeable new pains anywhere . He again said he will not chase a PSA result alone with treatment -- not after scans that prove no spread anywhere . Bless him he has given me another 4 months respite but with a full CT and Bone scan prior to that appointment to be on the safe side. Or if I get any pains we will react into it immediately. I feel so chuffed that Elaine and I have put so much effort into researching this disease and that I have not been put through needless treatment ( in my instance ) like RT and injectable HT just on a whim when I am enjoying a good standard of life post-op , and working to help others , and as I posted a few days ago I am now enjoying full normal sex with the help of just a daily Cialis.
Naturally he did yet again state that I still have PCa which is multiplying and which WILL need treatment at some point , but for now we are facing it head on and have 4 months of freedom hopefully !
Tonight we are putting all the decorations up , and since my liver seems to be functioning 100% ( the greatest shock ) , I'm going to have a few. Sorry to be upbeat , but you're all on the coaster from hell and it has its highs and lows !
Sending sincere wishes and love from us both to all that have had recent sad news :-((
Chris and Elaine xx

User
Posted 08 Dec 2017 at 14:53

Great news Chris, long may it continue

Arthur

User
Posted 08 Dec 2017 at 15:57

Good news for you both! 

Enjoy the festive season...

I'm having a few tonight also Chris...

I'll raise a glass .....or two.....or three.......or more.... to your continuing fight against this disease.

Best wishes

Luther

User
Posted 08 Dec 2017 at 16:04

After the terrible news on this forum over the last month this is just what we needed to hear.

Enjoy mate

Don't deny the diagnosis; try to defy the verdict
User
Posted 08 Dec 2017 at 16:18
Fantastic stuff Chris, I will be having a few too and will raise a glass to you.

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User
Posted 08 Dec 2017 at 16:46

Brilliant news, so pleased for you both. Celebrate the moments, love and thanks to you both, your support has helped me through bleak moments when I could not share my thoughts with David as he was so low. We are going to hang our decorations tomorrow, and we will also raise a glass to those living with or have a loved one with this horrible disease. Well done both, enjoy.

User
Posted 08 Dec 2017 at 16:52

I haven't post for a while but been aware of what happening here.
So glad to hear the news, Chris.
Enjoy Xmas time, you have a god reason now ;).

xx

Lola.

User
Posted 08 Dec 2017 at 17:35

Are you mad ? "Sorry to be upbeat" ? WHY? you daft man.

Good for you. Shout it from the housetops, enjoy your drink and revel in the next four months

Christmas will be fantastic for you I know !!

We can't control the winds - but we can adjust our sails
User
Posted 08 Dec 2017 at 17:59
Fantastic news Chris . Deck the Halls and Party that’s what I say.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 08 Dec 2017 at 18:06
CJ

Great news, so pleased for you all.

Thanks Chris

User
Posted 08 Dec 2017 at 18:26
Great, Chris. Nothing like a decent doctor who is treating you, not the disease!
User
Posted 08 Dec 2017 at 18:53
What a lovely piece of news to read.

I am so pleased for you both as I know from following your posts what a roller coaster you ride.

Thanks for sharing.

User
Posted 08 Dec 2017 at 21:06
Best wishes to you and wife ,enjoy xmas and new year .

Debby

User
Posted 08 Dec 2017 at 22:34
Great news chris, enjoy a lovely christmas with your loved ones,ive learnt so much from your posts, you and others give so much to us who are at the start of this journey, its helped so much getting advice from real people, it means so much, i dont think you all even realise how selfless you are sharing your journeys to try and help others and to try and put things into perspective for new members, my oh booked for high dose brachy 29th december then 15th january radiotherapy to pelvic lymphs and prostate so at least we get xmas, hes been on zoladex 3months so far not many side effects apart from the e.d and lost libido..once again thank you..jo.x
User
Posted 08 Dec 2017 at 22:41

Fabulous news Chris, great to hear this.. have fantastic Christmas, it sounds like you have struck gold with your consultant.
Clare x

User
Posted 09 Dec 2017 at 10:32
Brilliant news, what a relief, and what a time to get some good news too Chris 👍
User
Posted 09 Dec 2017 at 10:41

Great news Chris, don't post very often but read your posts, have a fab christmas.

User
Posted 09 Dec 2017 at 11:13

Hi Chris

I agree with HenryA on the good news and finding a doctor who treats the person rather than just whatever illness is good find.

Good luck

Ray

User
Posted 09 Dec 2017 at 11:39

Brilliant news Chris. Have a great Christmas with your family

Bri

User
Posted 09 Dec 2017 at 20:44

It all sounds good to me.
Have a great Christmas and New Year.

All the best

Paul

User
Posted 12 Dec 2017 at 07:17

Good News Chris .

Merry Christmas and all the Best for The New Year .

 

Kevin .

User
Posted 12 Dec 2017 at 13:06

Well done, Chris.

Now enjoy Xmas plus my heartfelt good wishes to you and your family for 2019.

David

User
Posted 12 Dec 2017 at 16:13

Great news

 

Ulsterman

User
Posted 12 Dec 2017 at 16:39

Your onco sounds great Chris. Enjoy the freedom from treatment, have a great Christmas with those you love.

Sending best wishes, Ian.

Ido4

User
Posted 12 Dec 2017 at 19:48

Ahh, that's a great update xxx

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 14 Dec 2017 at 10:32
Good to read such an upbeat update. Don't apologise! Best wishes to you both.
User
Posted 14 Dec 2017 at 22:15
What a fantastic post! Merry Christmas xxx
User
Posted 18 Dec 2017 at 19:10

What a greT attitude you have. Really inspired me tonight. Merry Christmas x

User
Posted 20 Mar 2018 at 10:37

In much the same position as Nikon Steve .......
Came home from hols last Friday and had chest , abdomen , pelvis CT scan and full bloods. Was knocked flat on my back Saturday as I think I reacted to the Iodine contrast. Worked Sunday to keep myself busy , then yesterday spent 5 hours at hospital having a full body bone scan. Terrified them coming out at end of scan and asking whether I’d had dental work or a large accident or surgery etc etc. He confirmed that both my knees were shot but that’s a separate issue.
I was contacted and told my Psa is 24. Exactly doubled from 12 in precisely three months so not good.
Onco appt this friday so naturally S****ing ourselves. I’ve got two shifts at the care home weds and thurs to keep me busy. We simply can’t believe they won’t find anything this time , and surely I’ll need some sort of treatment. Scary times .......

User
Posted 20 Mar 2018 at 10:51

Good luck Chris

We can't control the winds - but we can adjust our sails
User
Posted 20 Mar 2018 at 11:01

It’s nigh on impossible to keep positive when this illness continues to dominate and take over in everything we do, but keep strong and I wish you the best of luck on Friday, Chris ...

User
Posted 20 Mar 2018 at 12:34

All the best for Friday Chris.

User
Posted 20 Mar 2018 at 13:08

Thinking of you,stay strong
Debby

User
Posted 20 Mar 2018 at 15:59

Fingers and toes crossed Chris.

Bri

User
Posted 20 Mar 2018 at 17:02
Hope you get some answers friday chris, good luck..

Jo

User
Posted 20 Mar 2018 at 22:26
All the best for Friday Chris - will be thinking of you both.

Annette

User
Posted 21 Mar 2018 at 07:49
Good luck for Friday Chris
Don't deny the diagnosis; try to defy the verdict
User
Posted 21 Mar 2018 at 08:32
Sorry about scores Chris, hope you manage to put stuff to back of your mind

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User
Posted 21 Mar 2018 at 09:40

Chris,

Sending you a big man hug for Friday!

Pablo

User
Posted 21 Mar 2018 at 09:59

Chris

you're both doing well coping with the as yet unknown whereabouts of PCa. Hope this time you can move forward.

Ray

User
Posted 21 Mar 2018 at 17:47

Keeping busy sounds like a plan..,, come on Prof at Southampton ...

Thinking about you

Clare

User
Posted 21 Mar 2018 at 18:33
Wishing you all the best for Friday Chris.

Kevan

User
Posted 21 Mar 2018 at 19:04

'Terrified them' sentence doesn't make any sense - is there a typo?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 22 Mar 2018 at 11:05
CJ

Good luck for tomorrow. Hope you find a suitable treatment.

Thanks Chris

User
Posted 22 Mar 2018 at 13:11

You know me by now Chris. I'm cross-eyed, cross legged, crossed fingers and everything in between.
In fact, you'd better get it right or I'll fall over !!

We can't control the winds - but we can adjust our sails
User
Posted 22 Mar 2018 at 13:14

Page not found lol. I’m on page 13 which seems quite unlucky :-((

User
Posted 22 Mar 2018 at 13:15

Grrrr

 
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