Dear A & J,
That's the best, most cheering post I've seen from you in such a long time.
It uplifts us all, and I couldn't be happier for you both.
I hope you have a wonderful holiday together and come back refreshed and ready for anything!
Your words about hospice involvement are so important to everyone too.
My local hospice does outpatient appointments and about four years ago I decided to ask for a referral.
My thinking was, at the 7yr stage, and things were getting a bit dodgy, I'd better get my name on their books while I felt OK rather than having to try for it further along the line.
It was a really good move, The benefits of a monthly 20 min appointment were excellent.
The consultant there was the most helpful guy I've met. He could get me results such as MRI within a few days, rather than have me waiting and worrying, and he even diagnosed a serious condition on my very first visit. He had notice me limping badly, and immediately went for a stethoscope. He found I probably had femoral artery blockage and referred me immediately to a vascular consultant.
Incidentally, just the day before, after months of visits to the GP, that GP had referred me for physio.
Thank God my hospice consultant was so good at his job. Femoral artery and Ileac disease were confirmed by the vascular surgeon, and I was put on corrective meds immediately.
So, I do hope that anyone here reading your note about the hospice nurse will re-think the hospice option. It's never too early to have a referral, and it could save your life, as well as making you feel more confident about the days ahead when (or if) more care is needed.
Incidentally I don't go monthly now, as I'm stable again, but at least I know I have my name on their patient list and can get any advice I need by phone.
Wishing you the holiday of a lifetime, you both deserve it!