Hi Steve
I think you have hit "ultra-sensitive psa test anxiety". You are down at such low levels of measurement that something like the time of day that you had the blood sample taken might alter the result. My GP (who I trust) is happy that any result under 0.1 is treated as effectively unmeasurable.
In Wales, the NHS is desparately short of funds, so we only have the less sensitive PSA test. As long as I keep clocking up <0.1, I'm happy and I can reserve my stress levels for other things. All the same, the family can tell when I am in the waiting period between each blood test and the result - that bit of anxiety doesn't go away!
If you want something to stop you worrying about PSA, start supporting Leicester City.... or Lewis Hamilton.... or Andy Murray.
Tony
TURP then LRP in 2009/2010. Lots of leakage but PSA < 0.1 AMS-800 Artificial Sphincter activated 2015. |
User
Hi,
Thanks for your messages.
Starting to feel anxious about the outcome of the Cardiac MRI Scan l'm due to have on Sunday. I suppose I feel worse because I've waited so long for it. If it reveals that I'm suffering further problems with the arteries then I may face the possibility of further treatment not only this year but in future years. If no problems are found, it raises the question of what else could be causing the total lack of energy and severe breathlessness. I've suffered with fatigue during the last two years of HT but never as bad as this.
I haven't slept well the last couple of nights, which doesn't help.
Hopefully, taking part in a planning session with PCUK later today about my role as the photographer for the London to Amsterdam Cycle Ride in a couple of weeks time will take my mind off things.
The trip should be fun providing health issues don't get in the way of me going. Feeling that, somehow, you are helping with the work of the charity really helps raise your spirits.
Must try and sleep now.
Steve
Edited by member 19 May 2016 at 02:32
| Reason: Not specified
User
Hi,
I've just had the best phone call ever!
One of my oncology support nurses has just rung me to say that my oncologist wanted me to know that my Bone Scan & CT Scan came back negative for cancer!!! Instead of going for my July 5th results appointment, I don't need to go until next December!
I'm so relieved, I could cry. I probably will, why not.
Steve
User
Great news Steve. Very pleased for you. You can rest easy now. Waiting for the BREXIT result may be a bit stressful though .
Cheers
Georgina
User
Morning Steve.
Well firstly, real friends look out for each other and even though we are mostly virtual friends on here the main word is "Friend" so I personally would have been disappointed had you not felt the boost we all try to give, especially on a "down" day.
Guilty - Don't you dare. I mean it !
Guilt is reserved for wrongdoing and getting a good result from treatment you have undergone (and that does appear to have worked brilliantly) doesn't come under that heading.
Enjoy the new freedom from treatment. Try not to worry about the cancer coming back because it will put a damper on today's joy.
You (and your family) have worked hard at the treatment side to get where you are now.
I cannot imagine anyone on here, be it a man undergoing his own trials and tribulations with his cancer treatment, or any of us partners, being jealous of your news. Envious - yes. Encouraging - definitely.
Good news from any man on here is like a beacon of hope and is the proverbial light at the end of the tunnel and you have provided the in bucket loads.
Hopefully your fatigue will lessen with time and you can go back to a more normal way of living.
I wish you well my friend, really well so don't let me down!!
************
Edited by member 25 Jun 2016 at 06:27
| Reason: Not specified
We can't control the winds - but we can adjust our sails |
User
Hi,
One month today, my Hormone Treatment will end.
It should have been at the end of June but my GP decided to give me a 12 week implant rather than the 4 week one without telling me.
I was cross when I found out because for months I've struggled to cope with increasing fatigue. Another couple of months before possibly beginning to slowly regain some energy, wasn't something I needed.
I'm counting the days.
Steve
User
Hi,
A very interesting evening at Kings College in London last night.
Kevin Webber (Irun) was giving a talk about how being diagnosed with Cancer has changed his life and how his love of running has helped him cope with an incurable diagnosis.
Highlight of the evening was his experiences of running the World's toughest race, the Marathon Des Sables, across the Sahara Desert.
Kevin has raised a huge amount of money for Prostate Cancer UK and has shown that even with the worst diagnosis, you can still achieve your goals, if you have determination and Kevin certainly has that. An inspiration to us all.
I took photos of the event. If you're interested seeing these, please visit my Facebook page. You can find it by searching for "Nikon Steve"
Have a good weekend everyone.
Steve
Edited by member 23 Oct 2016 at 02:40
| Reason: Not specified
User
Hi,
Two days to go before I take part in the Reading Half Marathon.
Hopefully trying to raise funds for Prostate Cancer UK.
Steve
User
User
Hi,
Thanks for your replies to my messages.
Tony...Having hormone treatment definitely affected my ability to take exercise, especially running. I found it really difficult to cope with the fatigue I was suffering. I'm sure I will find the Reading Half easier to handle than the last time. I was a very active runner at one time but since my cancer diagnosis, my heart attack and ongoing heart problems I have found it so hard to continue exercise like I used to. Good luck in your races, your fitness can only help your treatment.
Barbara...Hormone treatment seems to have worked well for your husband and it would be nice to think that I would be able to enjoy "Hormone Holidays" too, but it took me over a year after stopping HT for the effect of my therapy to wear off. I think that what was disturbing was that my PSA was rising even while under HT. I know it's not the end of the road as far as my treatment goes and I could live as long as your husband but it's more of a feeling that my chance of a cure may have gone forever. I could be on a new journey which may end with my death. I would have liked to have lived to see my grandkids grow up. What's happening now could mean that would never be possible.
Steve
Edited by member 01 Jan 2018 at 06:33
| Reason: Not specified
User
Thank you everyone for your kind messages. They help a lot.
Good Luck to Arthur, Chris and Ian with your upcoming tests and scans.
You are a great group of people.
Steve
User
Hi,
I was going to have my PSA test tomorrow, Thursday (15th) but suddenly remembered it was "The Ides of March".
Anyone who studied Shakespeare at school would know why I would want to avoid that date. So I'm at the hospital now, waiting for my blood test.
Steve
Edited by member 14 Mar 2018 at 15:49
| Reason: Not specified
User
Really sorry to hear that Steve. I know you won’t be happy being back on HT but hopefully it will bring your PSA down quickly.
It’s a major disappointment that RT has failed.
Wishing you all the best, Ian.
Edited by member 20 Mar 2018 at 18:25
| Reason: Not specified
|
User
Steve
Sorry to hear about the rise but at least we are both still here to moan about it. Keep smiling mate.
Thanks Chris
User
Steve,
l’m sorry to see your latest update, I hope and pray that you will receive the treatment you need to get your PSA back under control and the outcome is more positive for you.
Best wishes, Arthur
User
Hi,
Fortunately we're only moving a few miles away into a retirement complex. Not the first place we would have chosen but I feel it will be much better for my wife when I'm no longer here.
Steve
User
Hi,
1.30am: Laying awake. Can't seem to get to sleep, remembering that during this night, five years ago, I suffered a heart attack at 4.30am.
Two weeks earlier, I had finished my radiotherapy treatment and was having a rough time with side effects: rectal bleeding and bowel urgency.
It was really getting me down and I felt quite sorry for myself but little did I know that there was something else that was about to happen that could have taken my life when I least expected it.
It's strange but it made me feel more at ease with my cancer because whatever might happen with that, that will be in the future and I have been given a second chance to enjoy whatever life I have left.
Even though bad things happen, if you manage to get through them, it makes you stronger.
Steve
User
Hi Steve,
just read your latest post and then re-read your profile. Gosh you have been through some very difficult times over the last six years!
What really stood out for me were your comments about the birth of your four Grandsons over that time. What pleasure they must have brought to your lives and what a wonderful Grandad I’m sure you are. You shouldn’t feel guilty for one moment as you are as deserving as anyone for any treatment available that will enable you to keep looking forward and being there for those you love and who love you.
These are very unusual times that we are living in, to say the least, and depression will try to get the better of us, but I’m sure you will find the strength, as you have done before to keep going and looking forward to the time when we can all give big hugs to the ones we treasure.
Sending you and your wife a big hug and best wishes,
Ange
User
Steve you've been through the mill over the years. Whilst its admirable to think of others stop doing the cost of treatment maths. You would have contributed to the NHS funds to help others. Now its your turn to let others help you. Nothing whatsoever to feel guilty about.
Be as well as you can
Ray
User
Hi,
Just noticed that yesterday (the 13th) was the day, six years ago, that I had my very first PSA test.
When the results came back showing my PSA was 48.85, my GP told me that it was "slightly raised".
So began my journey...
Steve
User
Steve
Hope it is a good day for you tomorrow. Take care
Thanks Chris & Dawn
User
Know what you mean. Last year, testosterone virtually zero, so on Testosterone Replacement Therapy, this year, thyroid too low so pills for that and now have to see haematology because my full blood count is too high. Good grief, falling to pieces.
Tony
TURP then LRP in 2009/2010. Lots of leakage but PSA < 0.1 AMS-800 Artificial Sphincter activated 2015. |
User
Steve
As T say PSA is still low, but I know how you feel, any rise gets the brain working overtime. Hope the other bloods are nothing major.
Thanks Chris
User
Wait to see what the GP says.
It is natural to worry, so it is allowed, and you don't need to worry about that reaction!
Best of luck.
Henry
User
Not long now before the end of HT and increased energy as it's effect diminishes.
Have a great day tomorrow - will be watching on TV.
Barry |
User
Hi Steve
I'm very envious also that you're coming off HT. The fatigue really does get to you.
I've just had my 6 th 12 weekly Prostap jab and whilst I'm still running I'm struggling to do much more than a 10k.
I have to say though that after I've run that I do feel recharged so exercise for me seems to help.
I hope everything goes well for you and look forward to you reaching the "cured" camp.
Paul
Ps Hope you enjoyed photographing the London Marathon
User
fingers x steve it all goes to plan
regards
nidge
run long and prosper
'pooh how do you spell love' 'piglet you dont spell love -you just feel it' |
User
Hope all goes well for you
Very Best
Gary
User
Steve
Hope all goes well with the scan.
Thanks Chris
User
Another wait Steve, til 22 nd May, but I hope all goes well for you and they can get to the cause of the heart problems.
Sounds like you are still feeling quite upbeat, good for you!
ATB
Alison
User
Steve
Wow I'm not surprised if yore feeling upbeat.
Heart scans in May hopefully will show all is well and coming off HT in June well don't we all want to be off HT.
All the best
Paul
User
Steve
I think we have both had an "interesting " two years, let's hope the next two years turn out to be good but uneventful. Take care.
Thanks Chris
User
Hi Steve
Maybe 13 is your lucky number. Just think if you hadn't had those tests things might have turned out even worse.
I can understand your feelings though as I always think similar on my "anniversary".
Sending you my best wishes.
User
Good luck for the 22nd Steve. I'll be thinking of you and keeping everything crossed.
I'm not surprised you're exhausted. A combination of HT, anaemia and stress is not a good cocktail.
Best Wishes to you as usual
We can't control the winds - but we can adjust our sails |
User
Hi Steve
Let's hope the next two years will be better, they can't be any worse than the last two. Keep on going, you will do that half marathon yet.
All the best
Paul
User
Steve,
I'm approaching my second anniversary since dx too. But I think my journey has been slightly easier than yours. However you will soon be released from HT whereas I have a further year to go.
Good luck for the 22nd.
John
User
Hi Steve thinking of you on the 22. Jx
User
Two forty five in the morning and you're still up and on the computer!! Hope you got some rest. I do know what it's like to be awake when the rest of the world seems to be able to get its head down. It's a very lonesome feeling.
It also allows the mind to wander, probably down paths you shouldn't be looking at because there are no distractions.
Hope the planning sessions go well. Yes it's something to focus on as well as helping PCUK, but this is for you Steve.
It's what you do, what you are good at. I know you'll give it your very best shot. You'll need to find the strength and energy from somewhere but I'm sure you'll do it.
Go Steve Go !!!!!
We can't control the winds - but we can adjust our sails |
User
hi steve
hope you managed to get back into the land of Nod, the bike ride gives you a good focus at the moment have you posted any pics from the London marathon
regards
nidge
run long and prosper
'pooh how do you spell love' 'piglet you dont spell love -you just feel it' |
User
Hi Steve,
Wishing you all the best for today, hope it goes well
Arthur
User
Hi Steve best wishes for today and I hope all goes well
Regards Chris/Woody
Life seems different upside down, take another viewpoint
User
Steve,
I hope that all goes well for you today
John
User
Hi,
Home now, following the Scan.
Scan seemed to go Ok but quite hard going.
Made me feel really tired, going to have to have a sleep before giving more info.
Steve
User
Steve
Look forward to hearing good news from you.
Thanks Chris
User
I hope the results don't take too long Steve
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
|
User
Steve
Not the best news, but as you say you are still alive. Still being here always gives a hope of improvement. Enjoy the Amsterdam trip and don't do anything silly.
Take care.
Chris and Dawn
User
hi steve
not the best of news, but you are still going to Amsterdam, stay off the wacky bakkie
regards
nidge
run long and prosper
'pooh how do you spell love' 'piglet you dont spell love -you just feel it' |
User
Steve,
After all you've been through you still have the green light for your Amsterdam trip. Shame about the other news though but as you say you're still with us.
John
User
Sorry it wasn't better news Steve but forewarned is forearmed.
It presumably explains your constant tiredness?
Enjoy that Amsterdam trip
We can't control the winds - but we can adjust our sails |
User
Sorry the news was not the best.
Enjoy your trip to Amsterdam.
KRO...
User
I guess at least you know where you are now and can plan accordingly. Hope you really enjoy your trip.
Best wishes
Rosy
User
Steve,
The word 'envious' comes to my mind, I'm really pleased for you that you've had your last jab. Hopefully the side effects from the last 2 years will wear off for you soonest.
John
User
Good news for you Steve.
Now it's just finding patience!!
We can't control the winds - but we can adjust our sails |
User
That's good Steve, I had my last HT injection last November and am feeling stronger and more alert than when I was having the injections. Hoping for the same for you asap.
Arthur
User
Oh dear - how much has it risen by? Hopefully, it is simply that the GP who gave the wrong dose also injected it incorrectly or the practice has been storing it badly
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
|
User
Disappointing is not a good enough word but I can't think of a better one at the moment. Hang on in there.
Thinking of you
Rosy
User
Sorry to hear this Steve
Keep your chin up mate
Si
Don't deny the diagnosis; try to defy the verdict |
User
Hi Steve
What is the rise? Glad you are having the scans, it will give the oncologist the information needed to make the right decisions.
Sorry to hear this news Steve, maybe it's lucky you had the twelve week injection of HT after all.
Take care
Allison xx
User
Steve,
Sorry to hear your PSA is up, hopefully the scans are just a precaution.
All the best,
Arthur
User
Steve,
Sorry to hear your news but wish you all the best for the scans.
John
User
Hi Steve,
Sorry to hear this latest news... good luck with the scans
KRO...
User
Hi Steve
Every time you are up, it seems there's a sledgehammer to knock you down again. Hope the scans results go OK and the PSA rise was due to the injection.
Paul
Stay Calm And Carry On. |
User
Originally Posted by: Online Community MemberHi,
To be honest, I haven't thought too much about it until now becauseI've beenso busy over the last few days with the work I've been doing for PCUK, photographing the London to Amsterdam Cycle Ride. It was a great event, so many heroes taking part to raise money to help us all in our fight against PCa. I was so pleased they asked me to take on this role, I finally got chance to see the city I've wanted to visit for ages. I justhope they like the stuff I shot.
Well, I'll try and post my results tomorrow evening.
Steve
[/quote
Just a thought Steve - is it possible that your PSA has gone up because of being busy with the cycle ride?
Arthur
Edited by member 08 Jun 2016 at 10:26
| Reason: Not specified
User
Steve,
Thanks for posting your results. Hopefully it is just a blip but I can understand your concerns. I'm 17 months past RT now and my levels have remained at 0.2 for the last two tests. I'm dreading my next Onco visit next month. I sincerely wish you well.
John
User
Check out Ray's profile to remind and reassure yourself how the PSA can vary when you still have a prostate, of which healthy cells can repair over time.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
|
User
Steve
Not the news you wanted and having a slowly rising PSA myself I know how you must feel. Try to stay positive, not that I always do.
Take care.
Thanks Chris
User
Try to keep upbeat mate....some sound advice from Lynn..
Bri
User
not a high number Steve it may still level off so all is not lost mate fingers crossed Andy
User
hope it is good news next week for you Steve wishing you all the best Andy
Edited by member 09 Jun 2016 at 21:35
| Reason: Not specified
User
Steve,
I too was dx'd 2 years ago this week. Good luck for the bone scan, at least you know what to expect. I recall having that scan too.
John
User
Hi Steve
You must feel like your whole life has been on 'hold' for 2 years.
I think we all probably have had that feeling, scared to plan anything, dreading blood tests, worrying and wondering what will happen next.
I hope that the scans will show that there is nothing to worry about, it is good news that you are getting these scans, so either way, action can be taken ( or not as the case may be). Another difficult wait though, both for them and the results.
My OH is due the full set of tests again in October and the test times seem to come around so fast.
Is there any support in the area, people you can chat to face to face?
Of course you always have us lot!
Alison
User
Hi Steve
Don't worry , my psa goes up and down but has remained under 0.1 over the last 15 months. I don't worry too much about increases in the 0.0x range but then I'm an engineer.
Sounds like your photography sessions are great, they must give you great pleasure and motivation. Concentrate on the plusses Steve.
I'm thinking of you
Paul
User
Hello Steve,
Have just started to pick up posts having been away again camping.
Sorry that you appear to have stepped back in time.
No point in saying "Don't worry" because you will eh ! Natural after all.
Next Tuesday will seem like a very long time to wait. I really really really hope that the scan can show reasons for the rise. Thinking of you as usual.
Best Wishes
Sandra
We can't control the winds - but we can adjust our sails |
User
Hi Steve,
Keep your chin up , not easy I know we are going tomorrow for our results. Life is sometimes very hard but stay positive.
BFN
Julie X
NEVER LAUGH AT A LIVE DRAGON |
User
Hi Steve, sorry that you are in a worrying spot again. Try and stay positive. Waiting for results is very stressful and time moves so slowly when waiting. Cheers Georgina
User
Hi Chris,
Good Luck for Monday. I wish my results were due next week.
I had my CT Scan this morning, now comes the wait to see what they find. Hopefully, nothing.
Have a good weekend.
Steve
User
Terrific news Steve
Well done,
Arthur
User
Well, they'll be happy tears won't they.
Good for you Steve.
Hope everything else in your life is looking up too !!
Big Big sigh of relief.
We can't control the winds - but we can adjust our sails |
User
Lovely news Steve
I hope you can chillax a little now !! Remember the ticker !!
Very best wishes
Chris
User
Brilliant news! Cry lots of happy tears!!!
User
Fantastic news Steve!
Keep Right On!
KRO
User
Very pleased to hear this good news!
User
Steve.
******* well done mate, really pleased for you. You certainly deserve some good news.
Thanks Chris
User
Great news Steve you must feel a great weight has been lifted from your shoulders, will raise a glass of wine for you tonight .Andy
Edited by member 22 Jun 2016 at 20:59
| Reason: Not specified
User
That's fantastic !! It's great to hear such positive news 👍🏼
Viv
The only time you should look back is to see how far you have come
|
User
So good to read fantastic news Steve
Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019 |
User
Fabulous news,Steve, I think I will cry for you as well.
The more good news the better on here, it gives us all hope and our spirits a lift up.
Cheers Chris/Woody
Life seems different upside down, take another viewpoint
User
Steve,
Absolutely fantastic news. Really pleased for you.
John
User
Fandabidosie ,
BFN
Julie X
NEVER LAUGH AT A LIVE DRAGON |
User
Steve
That's fantastic news Steve , it's great to hear good news.
All the best for forever
Paul
User
Fabulous news Steve, what a massive relief.
I have been off line for a while as we are moving house but been thinking about you!
Alison
User
That's really good news. New day, new Steve!
User
Wonderful news Steve you have been through a lot to get to this point, but you did it, I'm so pleased for you.
Roy
User
Hi,
Thank you, everyone, for your kind messages.
I'm so pleased to reach the remission stage of my treatment after all the events of the last two years but feel guilty for celebrating this when I think of those who are not so lucky on this site. I'm just so relieved that, after being told two weeks ago, that my radiotherapy may have failed, to have reached this point.
I realise that, given my original diagnosis, my oncologist has warned me that my cancer may well return in the future but for now, I appear to be clear.
I still feel really tired, weak and totally lacking in energy but hopefully that will improve in the coming months, once my hormone treatment finishes. I do have an appointment with an haematologist in a couple of weeks, that may provide some answers, as some of my blood figures are not as they should be.
I will continue to do voluntary work (using my photography skills) with PCUK and Macmillan Cancer Care as it's the only way I can usefully contribute towards the work of these charities, because I'm pretty useless at anything else.
Thank you, for being really good friends, not only to me, but many others on this site.
Steve
User
Steve,
I am not in your position yet but am really happy for you that you have reached the stage where you have have had good news. So enjoy it and don't feel guilty at all. After all it's what having gone through the treatment is all about. Aiming to give you the chance of survival and for the moment you've achieved that and long may that continue.
We all like good news and you've provided that for us. But you have given us some scares too !
Best wishes,
John
User
hi steve
good to read about your news about blooming time good things started happening for you long may it continue
regards
nidge
run long and prosper
'pooh how do you spell love' 'piglet you dont spell love -you just feel it' |
User
Steve,
it's great to hear some good news.
And it's fantastic that it has happened to you.
Well deserved!
Kick back and enjoy the good times :)
All the best
KEvin
User
Hi Steve
I am so pleased to hear of your really good news
see you in the flyer in Dec
Barry
User
I'll bet you are Steve and this heat isn't helping either is it.
Still, it's done now and he must have had a good reason (at least I hope he did rather than pick up the first implant that came to hand!!)
You'll get there. It has to end some time.
Best Wishes
Sandra
********
We can't control the winds - but we can adjust our sails |
User
It'll take many months to feel normal again Steve, but it will be worth it.
Lots of love
Devonmaid
User
Hi,
Found out some wonderful news this afternoon.
We found out we're due to be grandparents again!
A total surprise but delighted. A brother/sister for Alex, our first.
Steve
User
Way to go ,
Steve this is as good as it gets my friend , do a few hooplas and a couple of loop the loops . Mind the heart though.
BFN
Julie X
NEVER LAUGH AT A LIVE DRAGON |
User
Congratulations to you all
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
|
User
Whoop!
Congratulations Steve!
Don't you love unexpected surprises like that?
That put a bounce in your step I bet.
Best wishes to all
Kevin
User
What lovely news. Something good to look forward to!
User
Hello Steve,
congratulations on the good news! New grandchild means more work, so take it easy my friend.
Frank.
User
Lovely news for you Steve, you are going to be a busy man, not least with the camera.
Hope that things are steadily improving for you and that you are feeling a little stronger.
One day at a time my friend.
Alison x
User
Hi Steve
Brilliant news. Many congratulations!
Paul
Stay Calm And Carry On. |
User
I've got my fingers and toes crossed Steve. Good luck.
Paul
User
Everything crossed for you including my eyes as usual!!
*********
We can't control the winds - but we can adjust our sails |
User
Steve
Congratulations on the news and hope the PSA stays where it should be.
Thanks Chris
User
User
Steve
Great news about grand child.
Good luck with the PSA...
KRO...
User
Hi Steve lovely news about your grandchild something good to focus on. Hope all goes well with psa. Jayne
User
Hmmmmm. Can understand your concern since it's risen every time. Easily said but try not to worry too much.
*****
We can't control the winds - but we can adjust our sails |
User
Hope somebody can help you Steve. it must be very worrying for you.
****
We can't control the winds - but we can adjust our sails |
User
Hi Steve,
Hoping and praying for a positive answer for you.
Best wishes,
Arthur
User
The rise to 0.07 is still lower than it was in May 2015 and you were on HT then. It may just be your healthy prostate cells recovering - you still have a prostate so you are not really expected to go down to undetectable and then stay there. Look at Ray's profile for reassurance. My guess is that the onco will be more interested in seeing what happens once the HT is out of your system - if it rises rapidly or goes above 2, then there may be some cancer cells left that are too small to see on the scans. Even if that was the case, you know from others here that oncos have very different views about where the threshold is for re-starting HT on a longer-term basis - some say 5, some say 10 and some wait until it gets to 20.
Even if that is what happens to you in the future, this opportunity from September onwards to get your body clear of the chemicals makes sense.
Edited by member 19 Aug 2016 at 17:40
| Reason: Not specified
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
|
User
Steve.
Your onco is on the ball requesting scans. Most likely PSA too low to show, if there is anything to show, or scan needs a more thorough investigation.
Good luck and my fingers crossed for you its just one of those blip periods I've had
Ray
Edited by member 19 Aug 2016 at 17:46
| Reason: Not specified
User
Well done Steve
A milestone indeed. Enjoy that beer or two !
Best Wishes
Sandra
*******
We can't control the winds - but we can adjust our sails |
User
That must be such a good feeling,
Enjoy your night tonight Steve I think you more than deserve a pint or two after all you have been through 🍻🍻🍻
Viv
Edited by member 24 Aug 2016 at 18:44
| Reason: Not specified
The only time you should look back is to see how far you have come
|
User
Enjoy your pint
I'll raise a glass for you tonight Steve
Cheers!
🍺🍺
Arthur
Edited by member 25 Aug 2016 at 07:30
| Reason: Not specified
User
Steve
Good to reach a goal, it has been an eventful couple of years, lets hope the next couple are less eventful.
Thanks Chris
User
You've been through so much Steve. I'm sure the future will be brighter and more relaxed. All the best
User
Enjoy your pint Steve. Nice evening for it.
Kevin
User
Well done Steve...
A pint or two well deserved!
KRO...
User
Hi Steve at last you have reached your target date. I really hope you had a great evening and had a pint or two with no hangover today 😊
User
Hi Steve, really glad you have had a good week - it really is about time 😊. Lovely news about your daughter. Have a good weekend. Jayne x
User
Phew ! Glad that worry is over now anyway.
Well done to your daughter. It isn't easy for our children to have to cope with studying at the same time as putting up with the rubbish bits of our lives
*****
We can't control the winds - but we can adjust our sails |
User
Hello Steve,
congratulations to your daughter's GCSE results - fabulous! Also well done on completing your current treatment.
Frank.
User
Hi Steve,
From NHS England Site:
"You have the legal right to ask to see a particular doctor or nurse at the GP practice. For more information, see: Can I choose to see a male or female GP?"
KRO...
User
Hi Steve
I was off HT one day short of a year. In that time my testosterone only got back to 7.2 I only had a big increase in testosterone in the last month
Must admit I did feel much better and the hot flushes went quite quickly
Si
Don't deny the diagnosis; try to defy the verdict |
User
Hi Steve,
I was on HT for almost 3 years. in January my oncologist told me to stop having the injections, next one was due in February. By my next appointment in May I was feeling that I had more energy but still had the odd hot flush, but my testosterone was still low. We went on holiday in June and did a lot of walking, considering my wife uses a wheelchair I felt quite strong by then. When I went to my next appointment in August my testosterone was normal. My only problem now is the lack of motivation to go for walks etc. My wife says I need to buy a dog!!
Arthur
User
Hi,
Si, thanks for your reply, I hope everything is going well for you with the break from HT. It's too early to expect any change for myself but am looking forward to it when It does come. Hoping to come up to Newark sometime soon, I've been away too long.
Arthur, pleased to hear you are enjoying some improvement after finishing HT. Hopefully, we'll have chance to have a chat at the Flyer if you can make it.
Steve
User
Hi Sandra,
Unfortunately I had to get home even though it would have nice to stay somewhere.
It was really nice to see PCUK staff members I've got to know and others who are fundraising or have Prostate Cancer.
A very pleasant evening.
Steve
User
Saw the FB photos Steve thank you for that , Kev ( I run ) is such an inspiration those of us on this forum know that he has his down times but what a guy and so glad that you were able to be there to witness and photograph the event.
Shame you couldn't stay the night but at least you were able to capture the moment in pictures.
BFN
Julie X
NEVER LAUGH AT A LIVE DRAGON |
User
Hi Steve,
Just because your PSA has been rising it doesn't necessarily mean it will continue to rise now you've stopped the HT, but I can understand your concern. It's always a nervous time but hopefully any fears you have will be unwarranted. My last HT injection was November 2015 and I've had 4 monthly appointments with the oncologist this year, my next appointment is also on 1st December so all being well we can compare notes at the "Flyer" on the 7th?
All the best,
Arthur
Edited by member 25 Oct 2016 at 15:24
| Reason: Not specified
User
Hi,
A bit of a milestone yesterday. It marked one year since I last spent time in hospital because of my heart problems. In the previous 12 months, I had been admitted five times into the Cardiac Care Unit so to go a whole year without further admissions makes me feel really good.
Just hope my cancer treatment (radiotherapy) has worked. Now I've ended hormone treatment, I may find out in the coming months, hopefully I might know more when I see the oncologist next month.
Have a good weekend everyone.
Steve
User
Steve
Not going to tempt fate, so well done and see you soon.
Thanks Chris
User
That's great news Steve, here's hoping for more to come.
Arthur
User
Hopefully, one year will turn into two and then three and then ten!
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
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User
Keep on rocking Steve. Good luck
Paul
User
Good luck Steve, - my, doesn't time fly! Keep rolling with those punches!
flexi
User
Hope all going well Steve.
Keep Right On...
KRO...
User
Hope all well with you Steve.
We can't control the winds - but we can adjust our sails |
User
Hi,
Unfortunately, the new avatar doesn't reflect how I feel.
Steve
User
Hello Steve,
I pray that you are feeling better. Good luck with your next appointment.
Frank.
User
Hello Steve.
Sorry to see the latest news.
Hope you had a restful (hospital - restful - oxymoron!) night and that the medical staff are looking after you well.
Hope you feel better soon.
Best Wishes
Sandra
We can't control the winds - but we can adjust our sails |
User
Sorry to hear this Steve.
Get well soon mate.
KRO...
User
Best wishes for a speedy recovery Steve
Arthur
User
Sorry to hear this - hope all is sorted out soon
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
|
User
Best wishs Steve,
Thinking of you, know what its like to have ticker probs
User
Hope you feel better soon
Very Best
Gary
User
Hi Arthur,
Yes, I'm home now.
I've just spent half an hour writing a long post and then lost it off the screen when I tried to post it. Really frustrating.
I will post later this evening but feel a bit tired just now.
Thanks for your message.
Steve
User
User
Hi Steve
I'm glad everything went well with the cardio and have my fingers and toes crossed for your next onco appointment.
All the very best
Paul
User
Steve
Everything crossed for your blood test.
Thanks Chris
User
Hi Steve,
sorry to hear of your recent issues.
Regarding your PSA, as you may remember I too came off HT at the same time as you and see my Onco in December.
I managed to sweet talk the surgery and had a PSA test last month which shows both PSA and Testosterone still on the floor.
I would guess yours will probably be the same as the HT takes some time to flush from the system.
Keep well matey,
Kevin
User
Steve - hope all is well with your PSA test - Walter
User
Glad that you and the doc are happy Steve. Always a worry.
Working 18 hour days is a bit of a mixed blessing eh. Money for Christmas but too tired to enjoy it?
We can't control the winds - but we can adjust our sails |
User
Steve
Glad the doctor happy for the time being and hoping they bring the PSA under control.
Walter
User
Sounds good to me Steve. Now you have a good run before your next test.
I hope you will continue to feel better without the HT, let me know when you are jogging/running again. Good luck mate
Paul
Edited by member 10 Dec 2016 at 09:17
| Reason: Not specified
User
Hi,
Looking forward to taking part in a bucket collection for Macmillan Cancer Care tomorrow at our local Argos store. Only problem is that I have to work too so I will be calling back at different times of the day.
It's happening nationwide so if you visit an Argos store tomorrow, please donate a bit of cash. Every little helps. Thanks.
Have a good weekend.
Steve
User
Hard luck!
Rest, and cancel some of those things.
User
Wishing you well Steve.
Arthur
User
Steve
Hope it is nothing serious, take it easy.
Thanks Chris
User
Trying to fit it all in Steve, it was bound to take it's toll. Hope you feel better soon
We can't control the winds - but we can adjust our sails |
User
Hope it is sorted quickly Steve
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
|
User
User
Hi,
Wow. A very special day today (Wednesday).
At lunchtime my eldest daughter gave birth to her second child, our third grandchild (all boys, we're halfway to a six-a-side football team !).
We feel so proud to be grandparents again and so excited about going to see them both in hospital tomorrow afternoon. A wonderful reason to visit the hospital rather than my experience last week.
Steve
User
Congratulations, granddad!
Walter
User
Good for you!
Pleased to read!
Bravo!!
As we the Spanish would say, ¡enhorabuena!
User
Congratulations Steve and Mrs Steve. Some good news at last
Enjoy your hospital visit this time!!
We can't control the winds - but we can adjust our sails |
User
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
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User
Hi Steve,
Good news, you deserve a break.
:)
Dave
User
User
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
|
User
Steve
Good luck with the run. Any links to a sponsorship site ?
Thanks Chris
User
Good luck Steve. Don't forget to listen to your body.
Arthur
User
Well proud of you giving this a go Steve. Take it easy and good luck
User
Brilliant Steve keep going and good luck.
BFN
Julie X
NEVER LAUGH AT A LIVE DRAGON |
User
Hi Steve,
I've seen the results- on the Reading half marathon website - you did it - well done!
Hope your post race recovery goes well
All the best
Arthur
Edited by member 19 Mar 2017 at 22:20
| Reason: Not specified
User
I was so pleased to see you did it Steve, just getting to the starting line took some guts.
I hope you raised the money you hoped to raise.
We can't control the winds - but we can adjust our sails |
User
Fantastic achievement Steve - very well done. The blisters will fade but not the buzz.
User
User
Well done Steve...
Hope all going well with you.
KRO...
User
Fantastic news Steve.
BFN
Julie X
NEVER LAUGH AT A LIVE DRAGON |
User
Hi Steve,
as always I'm late. Well done on completing the marathon - I could never do that!
Never mind on your time, that shows that you didn't over-work your heart. Great news on completing your treadmill test, the other day. I'm afraid I didn't complete mine last year. So I will be reviewed in a couple years time.
Frank.
User
Hi,
Today (Tuesday) I had my 6 month review with my oncologist. She was satisfied with my progress as my PSA had only risen to 0.356 from 0.136, when I last saw her in December. The disappointing news was that she thought the effects of my Hormone Treatment (stopped last August) may last for anything up to another 18 months, as a recent testosterone test showed my levels were only 0.3, when the normal range is anything between 7 and 31.
The side effects of the HT are still very much still with me and I'm sure it's the reason why I lack the motivation to do things sometimes. Having said that, I would still recommend RT and HT as a treatment option as some seem to have much greater problems following surgery.
At least I'm still here and have a lot to be grateful for.
Steve
Edited by member 14 Jun 2017 at 02:14
| Reason: Not specified
User
As you say Steve, you're still here.
Long may it continue (with improvement of course!)
We can't control the winds - but we can adjust our sails |
User
Hi,
I have not posted for a while but wanted to update my situation.
I had my latest PSA results this week and was a little shocked by the increase in the figures.
I usually have the test done every three months and have found that the figure has risen in every test since my low point of 0.027 in December 2015. It has been a gradual rise, with the figure reaching 0.356 in June this year. With this test, I expected the figure to be around 0.5 but was shocked to learn that the figure has gone up to 0.910 this time. At that rate of rise, the figure could be close to 1.50 by the time I see my oncologist in December. She did say in June that she would consider restarting hormone treatment if the figure went over 2.10 as it probably meant that the curative treatment may have failed if that happened.
I feel as if, all of a sudden, I might soon be facing the prospect of the cancer being incurable. I feel very uncertain about my future survival, in much the same way as I did when I was first diagnosed just over three years old.
Steve
Edited by member 08 Sep 2017 at 15:09
| Reason: Not specified
User
Hi Steve,
Sorry to hear your PSA readings have risen, hopefully your Oncologist will have something to be able to reverse this.
Best wishes as always,
Arthur
User
As someone once said to me, "There's probably light at the end of the tunnel, but with my luck, it would probably be an oncoming train!"
User
Hi Steve, Sorry your readings are rising like this. Are you now going to arrange seeing your oncologist or a specialist nurse before December?
As Arthur has said I am sure the oncologists will have a treatment plan in mind. Hopefully whatever they decide to do will knock your PSA back into submission. On another note thank you for your reply to the message I sent you a few weeks ago. It was very much appreciated and helpful. I did reply but was told your private message inbox was full!
All best wishes, Ian.
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User
Just catching up with posts now I'm home Steve and again, I'm sorry to read your news.
Could you perhaps speak to your consultant's secretary and ask for at least a telephone consultation to put your mind at rest?
We can't control the winds - but we can adjust our sails |
User
We can't control the winds - but we can adjust our sails |
User
Hi Steve,
Sorry to hear your news - its an anxious time. Keep posting your up-dates - I feel sure everyone is thinking of you and supporting you in this. Take care
User
Hi Steve
Sorry to hear of the PSA rise. If the rise is as you expect in December I would suggest asking for a PET/CT Scan or similar to pinpoint the area of concern, but let hope it is a blip.
All the best
Roy
User
Hi Steve
don't start panicking yet, Tony was diagnosed gleason 9 T3B spread to seminals in 2006. he had ht and rt. he has been on and off ht ever since, he is still here with no side effects apart from hot flushes. whenever he has had to go back on ht his psa has gone down almost straight away to almost undetectable.
regards Barbara.
User
Steve
Disappointing to hear about the rise but as others have said there will be options. Take care of yourself and stay positive.
Thanks Chris
User
Steve
Thinking of you in these worrying times.
Ulsterman
User
Hi Steve,
I would start asking for monthly PSA tests, not sure of your Gleason score your Onco will advise you when / if you should look at going back on HT,
I was on 2/3 monthly tests and my PSA was going up to 1.70 when it suddenly went down to 1.40 , they then said we will put you on four monthly tests as your PSA has gone down, I did think then that is the F@@@@@G kiss of death and I was right four months later PSA 3.02 and had a scan spread to bones , be careful
Barry
PS I am now lining up early Chemo six sessions {based on Stampede results} and back on HT but it was hard work getting Onco to look at this treatment path.
User
Hi Steve
Sorry about your latest results but hopefully nothing to worry about.
It might be advisable to talk to your onco or nurses before your appointment though.
Paul
User
Hopefully it will be ok Steve. I’m in the same boat —- a blood test for everything on the 5th and Onco 8th. My psa is expected to have doubled to around 15 :-(.
I’m just dreading the words scans , Chemo and Abi. Best wishes
User
Steve
Being nervous is better than worrying, hope all goes well.
Thanks Chris
User
Hi Steve
Always a bit of trepidation but try not to worry as all you will achieve is to waste time that could be spent enjoying yourself. You will deal with the results when you get them the same as you have dealt with everything else that has been thrown at you.
All the best to you.
Kevan
User
Hi Steve, It's always the same waiting for test results with a bit of dread at the back of your mind. Hopefully you can find things to occupy your mind to reduce the nervousness. Wishing you all the best, Ian.
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User
Hi Steve, just catching up with site news - don't come on here very often lately. Will keep everything crossed for you (as I do for my o/h (whose PSA has also risen) and all the other guys out there) its a sensitive time of year for a lot of people so as I said, will be thinking about you and wishing you well. Take care now.
User
Hi,
Thank you for your nice comments.
My apprehension over my PSA test have been overshadowed by recent events.
For those who don't get to see my facebook page, you wouldn't know that in the early hours of Saturday morning, my Mum passed away. Fortunately I was with her when it happened, so she didn't die alone. She had lived a long life but it still seems she was taken too soon.
She was the best Mum anyone could have. I was very lucky.
Rightly or wrongly, I never told her about my cancer or my heart attack. I didn't want her final years to be spent worrying about my health, which she would have done. It wouldn't have been fair on her. I hope if she knows now, looking down on me, she would forgive me for that.
Live will never be quite the same again.
Steve
User
Hello Steve
I am so sorry to hear about your Mum but am glad you where with her at the end.
My thoughts are with you at this sad time.
regards
Barbara
User
Steve
So sorry to hear about your mum, please accept our sincere condolences. Mums are so special,I still miss mine and shed a tear many years after her passing. I took some comfort that I was with my mum at the end and I hope it gave her some too.
Take care of yourself, thinking of you.
Love Chris and Dawn
User
Hi Steve,
Sorry to hear about the loss of your mum. My mum died about the same time but a few years back and it’s hard. I hope you are able to deal with all that’s required easily.
Hope your oncology appointment on the 19th goes well and you get some positive news.
Best wishes,
Arthur
User
Very sorry to hear the news about your mum Steve. Always very sad losing someone.
Will be thinking about you and the rest of the famliy.
Take care, Ian.
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User
Hi Steve
Very sorry to hear the news about your Mum as no time ever seems to be the right time regardless of age or state of health.
You evidently thought the world of her and to have dealt with your own health problems in the way that you have without adding to her worries is testament to the type of guy you are.
All the very best with the test result on the 19th. Let us know how you get on.
Kind regards
Kevan
User
Sorry to read about your mum Steve, my sincere condolences, Kev
Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019 |
User
.
Morning Steve, so very sorry to hear that news. What a comfort to you and I hope to your Mother that you were together right to the end. I am sure everyone is being supportive to you at this sad time. I lost my own mother this time of year - so do understand how you are feeling. As I said to her the night before she passed away, I have the best mother in the world - very wisely she said to me 'we all think that' and I guess she was right but it hurts. You take care now and I know you will be supported both with your family, wider circle of friends and this community.
User
Hi Steve
A bit late reading about your mum. So sad to read that and yes like many mothers she will understand your reasons. Hope the result is a good one.
Ray.
User
Well, I'll keep my fingers, toes and eyes crossed for you too Steve, and good luck with the half marathon.
You can do it !!
We can't control the winds - but we can adjust our sails |
User
Steve
Good luck for the race.
Sorry to read of your concerns about possibly of needing more hormone therapy. Fingers crossed you won't need it.
I've avoided Reading since surgery but looks likely I'll be going there again for radiotherapy soon as my PSA has now shown two sustainable rises. I see the oncologist on Wednesday. I'm going to ask for Bracknell - the cancer centre there is apparently very good.
Ulsterman
User
Another runner! I’m also a runner. Ran 2 marathons a week apart at the start of April as training runs for an ultra. Managed around 3.50 on both. Then my “groin strain” was diagnosed as adavance stage PCa widespread through the bones and the pain was caused by stress fractures of the pelvic bone caused by running on cancer weakened bones. Started HT straight away and so far it’s kept the PSA at none registerable levels (although blood tests next week may say otherwise). Took me 2-3 months to get back to running and it’s been so tough without testosterone. I’ve gone from just behind my clubs fast runners to just ahead of the slow ones! Confidence was badly affected and the stress of diagnosis and treatment didn’t help. I ran Manchester Half in October to raise money for Christies and was expecting to come in around 2.15 (1.39 the previous year) but somehow managed 1.56 and was elated. I’ve always loved my running but now I quite often find it soul destroying but I do know that I have to stick at as the exercise helps with the fatigue. How has the PCa impacted on your running?
User
Good luck for the race Steve. I hope you can avoid going back on HT, keeping everything crossed for you. Ian.
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User
Hi Steve
if you do have to go back on hormones don't' think that it will be necessarily for life, my husband has been on and off them for years one time it was only 6 months, as soon as his psa has gone back to almost zero he has been taken off them. He went back on them at the beginning of this year and was told he would be on them for good but this is 11 and half years from when he was diagnosed. his only other treatment was RT.
regards Barbara
User
Hello Steve,
I'm sorry to hear you're feeling down.Is your PSA currently 2? Why do you believe that you may die? Excuse my naiivity.
Which health condition gives you more worry? For myself, I worry about my heart disease.
With all your problems, I admire your determination to even enter a running race! I can't run 10 yards! The only exercise I can take, is to go out walking, or use my exercise bike.
Keep pestering your oncologist and health professionals. If they give you hormone therapy once more, wouldn't that be a good thing; besides the side effects of course. And don't think that you may not be cured - have you actually been told that?
Frank.
User
Steve - I got a dog to take out on long walks. Not the same as your runs, but it does get me out of the house. On another note, I'm taking a bit of a career break, so if you'd ever want to meet up for lunch or a dog walk, we're not that far away from each other. PM me if you fancy it.
Ulsterman
User
Best wishes for Tuesday ,
Debby
User
Steve
Hope all goes well with your appointment.
Thanks Chris
User
I'm currently on holiday Steve and won't always be able to log on so I'll wish you good luck now in readiness for Tuesday.
We can't control the winds - but we can adjust our sails |
User
Good luck for next week Steve xx
User
Hope all goes well for your test Steve. Try to stay positive.
I think I seem to follow you - I’ve got my PSA Test next week followed by appointment with oncologist on 22nd
All the best,
Arthur
Edited by member 13 Mar 2018 at 22:37
| Reason: Not specified
User
Me too Steve. Psa and CT Friday. Full bone scan next Monday then results Fri 23rd. Good luck to us both. My psa expected to be around 24 :-//
It’s the scans I’m worried about as I feel FINE !!!
User
I will be thinking about you Steve, hope it’s better news than you expect. I had a full body bone scan Monday 26/2/18 and have a pelvis MRI next Monday to check things are ok.
Nervous about that too.
Ian
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User
User
Wishing you all the best, Steve, take care, Janet
User
The waiting for results is awful, I sympathise.
Ian
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User
Steve,
Don’t beat yourself up, you’ve made a wise decision, there’s always another day.
Arthur
User
Hi Steve
I think you are just being sensible. You know how you feel and it would be a bit daft to put yourself at risk and potentially undo all the good work that you and the medics have done for you.
I appreciate that you feel disappointed but maybe you can still encourage others by going along and giving them a cheer or getting some photos that others will appreciate.
Don't be so hard on yourself as there is no need.
There is snow in the wind here and it is a pretty strong, cold wind (by southern standards) as well and I am about 40 miles from you so I think you are a wise man.
Take care.
Kevan
User
Thinking of you today Steve and hoping the results are what you want
Fingers crossed !!
We can't control the winds - but we can adjust our sails |
User
Hi Steve
Hope today goes well for you so will be thinking of you.
Kevan
User
Don't deny the diagnosis; try to defy the verdict |
User
Hi Steve, I will be thinking of you today.
Ian
|
User
Best wishes for today Steve
Arthur
User
Best wishes for today
Debby
User
Hope the results were ok Steve
Bri
User
Hi Steve
Sorry to hear that you didn't get the news you wanted but at least you know now and can crack on with the HT. It's probably no consolation to you but after RALP and SRT didn't get me down to undetectable my first PSA following HT got the result and it's still there at the moment.
All the best
Kevan
User
Sorry to hear that news Steve. Another step change I guess. It’s all steps and new norms isn’t it ! The worrying just never ends. Keep strong
User
Hi Steve,
Sorry to hear that news ,
Has your Onco set out a treatment path
Barry
User
Hi Steve, so sorry to read that. Hope the medics can come up with something to make the HT tolerable.
Are you getting a cardiac check done?
Best wishes, Ian.
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User
I am sorry to learn your news too Steve. Does you oncologist liaise with the consultant involved with your cardiac condition?
Barry |
User
Thinking of you as usual Steve.
We can't control the winds - but we can adjust our sails |
User
Steve
sorry to read you're having troubled times yet again. Fingers crossed they get the treatment for you sorted.
Ray
User
Hi Steve, have you had any of the newer PSMA scans to try and localise the recurrence?? If it's in a node that can still be irradiated this could help??
User
Sorry to hear about the poor result Steve. Hope you get back out running soon, good weather on its way.
User
Hi,
Bone Scan done. Hopefully, may get the results by the end of next week. I feel ok.
I face a really busy weekend and week ahead. It will be tiring but then my wife and I are off for a short break in Amsterdam to see the tulips. Looking forward to that, it's been a tough month, in many ways.
Steve
User
Steve, so sorry that your have been going through all this. I understand how you feel: tired, sad, but after having fought life so hard, please, keep on going. This is not the end of the way.
It seems your PC is still there, but even so, come on. Try to find some relief to your dolency and live
You know better than me that even with that f***** disease men can survive.
Big hug!
Lola
User
Hi Steve, it’s a difficult road we are travelling, I hope you can get to a point where you feel better than you do right now.
Last time you posted you had a bone scan. How were the results?
Have you had any other scans?
best wishes, Ian
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User
Hi Steve,
So sorry the RT failed to do the job and for all your cardiac problems. Hope HT works well long term and anything else that needs to be added or changed in due course. Do let us know how it goes.
Barry |
User
Hi Steve,
Sorry to read your update - what treatment are you having now?
Keep strong.
Best wishes,
Arthur
User
Steve
All sounds pretty good in your new life.
I understand totally what new life means and like you have to adapt to the new level
I'm so glad you are still doing the photography to keep you active.
Great numbers on the scorecard.
Keep on trucking
All the best
Paul
User
Results sound positive Steve. Your attitude sounds pretty upbeat also which as we know is half the battle
Happy anniversary it was our 30th on the 18th also
Bri
User
Just caught up with your post Steve.
Belated Wedding Anniversary wishes to you both.
Excellent news on the PSA front, long may it continue
We can't control the winds - but we can adjust our sails |
User
Hi Steve,
Sorry to hear of this rise in PSA, hopefully it will stabilise or plateau out.
What’s your oncologist’s view on this?
Keep strong my friend.
Arthur
User
Sorry to hear about the PSA rise Steve ,
But there is loads in the box yet
keep on top of your Onco
I know that you have been through the mill
Barry
User
Sorry to read ths Steve. Keep fighting my friend. There are more treatments in the tool box.
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User
Sorry to hear your news Steve keep going
User
I’m so sorry to hear your bad news, Steve. I’m on the (hopefully) “curative RT” path myself (started HT on 17th Aug, RT due to start next Feb). It’s a salutary reminder that it doesn’t always work. I wish you the very best of luck on your future journey.
(Keen photographer myself, using Olympus OM-D E-M1 Mark II)
Chris
User
Sorry to read your news Steve. As Barry says loads in the box yet.
Keep strong
Ray
User
Ah Steve, just seen your update. What a b****r for you. You have definitely been through such a lot
Thinking of you and your family my friend. Don't give up yet !!
We can't control the winds - but we can adjust our sails |
User
Hi Steve ,
I know we are all different But have a look at my PSA results and treatment from
15th Nov 2015 0.6,
15th Dec 2015 1.14,
15th Jan 2016 1.2 slowed at last.
22nd Feb 2016 0.9 going down testro 16.04
Appointment at the RM back on six monthly
5th May 2016 PSA 1.11 Testro 16.6
Update on the UCLH ,in London my efforts on getting an AUS fitted takes another step this Friday 22nd May 2016
I go in for another stretch as it is closing up again
27th May 016
Had a stretch at the UCLH , when I came home I went straight into retention cathetering a couple/three times a day
10th August 2016 PSA 1.15 up .04
Oct 2016 1.73 Psa up .6
Nov 2016 1.52 Psa down .21
Jan 2017 1.40 Psa down .12
June 2017 3.2 Psa doubled and a bit
Scan results tomorrow
Had PET/CT Scan results on the 27th July
Opps not so good three hot spots
neck
shoulder
groin
Back on Hormones Prostap
User
Steve
None of us like to see a PSA increase, no matter how small.
Ulsterman
User
Hi Steve,
Sorry to hear your PSA has risen again, try to keep positive.
Best wishes
Arthur
User
Sorry to hear this Steve. Is it worth contacting your specialist nurse or the oncologist‘s secretary to see what their thoughts are?
Ian
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User
Sorry this has happened Steve.
Thinking of you all
We can't control the winds - but we can adjust our sails |
User
Time for a psma scan, to see what's been missed and if it's locally treatable.
User
Agree a PSMA scan might be helpful. You could check whether you could have this on the NHS.Certain hospitals have already indicated they wish to do this and I am not sure whether lack of implementation is due to any one or more of three considerations, namely NICE approval for NHS, lack of funds, the need to have nearby source of generating the ligand. Unfortunately, the cost of the scan privately is of the order of £2500 depending where you go which unless things have changed recently means in the London area for UK.
If only a very few hotspots are found it may be possible to treat these and slow the progression of cancer, either as stand alone or with systemic treatment.
In view of your other medical condition it would be best to establish whether the foregoing would be helpful.
Barry |
User
Sorry to read your latest result. Worth asking for an earlier than planned onco meet?
Ray
User
The oncologist at the Royal Marsden Hospital told me they have a PSMA scanner there but it’s only available for patients within their catchment area. I think it would cost me more than £2600 to move from Coventry to Sutton in Surrey to be included in that group, should I ever need such a scan!
I think there is also one at UCLH, and at the Mount Vernon Hospital: https://www.stricklandscanner.org.uk/
There does seem to be a dearth of these sophisticated scanning facilities in Britain and the Birmingham Prostate Centre say they have had to send over 30 patients to Germany for such scans in the past. So much for the miracle of the NHS (although it has been miraculous for me recently).
A recent post here noted that a new Thorium isotope is showing good promise as an even better PET tracer than Gallium 68, the gold standard up till now. This nuclear medicine is advancing rapidly, almost daily, so we all might be completely cured one day soon! 😉
Cheers, John.
Edited by member 02 Nov 2018 at 08:30
| Reason: Not specified
User
There are lots of cases out there who really seem benefit from further salvage radiation if there are only a couple of hot spots to deal with.
I think it would be worth asking about.
User
Steve
Sorry to see this. It's all very unsettling.
I'm wondering if we are with the same oncologist.
Ulsterman
User
That sounds really disappointing Steve. So your first HT hasn’t lasted a year then ? Hope the next one does a lot better for you
User
Sorry to here this Steve. I hope your oncologist will send you for scans soon rather than wait and then plan any additional treatment based on the scan results.
My wife and I have renamed my oncologist Dr. WTF because of the number of appointments where he has taken a completely different tack from the expected one. Usually a more pessimimistic one too.
Is it worth contacting specialist nurses and getting a second opinion?
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User
Yes, If I were you I would request a second opinion on the NHS with an eminent oncologist of your choosing.
Best of luck.
Cheers, John.
User
What was your testosterone reading? If you are above castrate level then the HT isn't working - possibilities include the wrong dose being given, too long a gap between injections, it being injected in the wrong site or stored incorrectly. If you are below castrate level then yes, you are becoming hormone independent but it is sensible to delay adding another hormone like bicalutimide at the moment because it has a limited life span in terms of effectiveness. The only possible alternative I could see right now is chemo but a) there is no evidence of mets outside the prostate bed (so could be a sledgehammer / nut scenario) and b) your heart problems may rule it out anyway.
So waiting until the PSA is a bit higher and then having a body scan seems very wise.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
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User
Hi Steve
I don't know if early Chemo would work for you , I have had eighteen months since chemo plus HT , they may give you early chemo plus Abbi tabs ,I am now 70 , psa 0.04 and feeling ok
Barry
User
That's one possibility - or maybe to have the 3 monthly dose every two months; there are a couple of men on here that have needed to do that. Adding bicalutimide is another possibility, or trying Stilboestrol (oestrogen) instead of ADT.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
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Hope you get a way forward soon Steve. Your GP sounds fantastic.
That level of support is very reassuring.
Ian
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User
Good luck moving forward Steve, been following your fight for a while, inspired me mate.
Best wishes
Chris.
User
Great to hear you have such a supportive GP Steve. Try and take heart in the fact that there is still much in the armoury
Bri
User
Seems a bit of an oversight by your onco that they haven't checked your totesterone as a matter of course??
Definitely get that question answered
User
Steve
Instead of the usual good luck messages, I saw this quote and thought of you straight away.
Life is like a camera..
Focus on whats important..
Capture the good times...
Develop from the negatives..
If things dont work out,
Take another shot !!
Im getting soppy in my old age, gotta be the ht ?
Take care mate
Chris.
User
Morning Steve,
sorry to hear that the numbers are on the way up.
Perhaps the Zolodex will need more time to get a hold second time round?
It must be very worrying for you.
Thinking of you,
Kevin
User
Steve
Sorry to read of the continuing increase. Hopefully they wiĺl soon add something to reverse the trend.
Keep fighting
Ray
User
Hello Steve,
I'm so sorry to hear about your rising PSA levels.
I was taking Prostap injections, until July of last year. I'm also still experiencing side effects.
Is there a particular reason, why your PSA levels continues to rise? Your oncologist doesn't sound very friendly, I must say.
You remain in my prayers, dear friend.
Frank.
User
Any chance of early chemo or ABI??
User
Sorry to read this Steve. It's a fear many of us have that some cells are not hormone sensitive. I hope when the oncologist adds Abi, enzo or chemo you get a good response.
Thinking of you.
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Steve
It's been a long slog so far and you have got past many hurdles along the way, keep going mate.
Thanks Chris and Dawn.
User
Hi,
Had a phone call from a doctor this afternoon which really shook my confidence in my GP surgery.
He phoned me up to express concern that the results from recent blood tests showed that my testosterone level was only 0.4, the normal range being 7 to 31.
Shocking news..... to someone not on hormone treatment, but when I told him I was on Zoladex for my cancer treatment, he apologised saying that he'd not noticed I had incurable prostate cancer.
I'm really going to make sure that any appointment I have there in the future , is not with him!
Steve
Edited by member 28 May 2019 at 21:11
| Reason: Not specified
User
Very concerning Steve. It worries me that doctors are under so much pressure they don’t really know their patients.
When my PSA jumped from undetectable to 0.3 the GP who looked at my result ticked it as being in the normal range despite my prostatectomy.
I was furious that they didn’t read or know my background.
Hope you are dong ok back on the HT bus.
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User
Steve, it was great to meet you on Friday. This forum feels like a giant second family, but still nothing beats meeting up face to face those whose contributions you follow.
Can I remind you about the info on the walk you were going to email me?
Obviously, this should have been a PM, but your inbox is full.
Cheers, Andrew
User
I cannot believe a slow release which is supposed to last 84 days would suddenly stop working on the 85th or 86th day. However, I have searched for such data in the past as I was curious how long you had to wait after the last injection before no more goserelin was being released, and no such data seems to be available - all testing seems to stop on the 84th day. The nurse doing mine said they are not permitted to administer even 1 day early, but to aim for a 5 day period from the 84th day, although I've not found any scientific evidence or manufacturer data to back that up. There is a graph of the release rates of the 4 week and 12 week doses on page 10 of this document: https://www.accessdata.fda.gov/drugsatfda_docs/label/2013/020578s034,020578s035lbl.pdf, but again not showing what happens on the days after 84th
It is interesting to note that the release profiles of the 4-week and 12-week Zoladex are completely different, with the 4 week peaking in the middle of the period, and the 12-week peaking (much higher) for the first 4 days. For administration to females, the 4-week seems to be required, but for males, there seems to be no preference between the 4-week or the 12-week.
User
Happy anniversary!! Keep up the the good fight!!
User
My husband had to wait an extra three days for his injection due to the nurse being called away on the day his was due. It was fine and they said up to five days was ok.
User
I hope you’re still here for a long time Steve.
Great post.
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Steve
Well done for 5 years. I'm jogging along right behind you.
It's amazing as you say how the treatment seems to wear you down more than the illness.
But you must keep on trucking, you're photography must help you keep active.
Best of luck for the next 5 years
Paul
User
5 years so far Steve and many more to come I am sure.
For what it’s worth I have had my zoladex late by up to a week due to me being away and I can’t believe that a few days will mean the cancer suddenly takes off so don’t worry about a couple of days.
take care
Kev
Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019 |
User
Steve.
I am just over five years since surgery, although we went down different routes we have both had "interesting" journeys. Here's to the next five years. Still here and still moaning.
Thanks Chris And Dawn.
User
Keep reaching those milestones. It's been a tough time for you but use that experience to be even stronger in the years ahead.
Good luck
Ray
User
Well done! Here’s to another 5 and another 5 and another 5 etc!
x
User
Well done Steve. It will be 7 years for me in November since I was diagnosed
Bri
User
Moving home after so many years can be traumatic especially if you move far away leaving behind friends and neighbours and various things you were involved in. My wife and I wanted to downside anyway but we moved from surrey to Devon to support our younger daughter and her children. One of the downsides has been having to travel to Greater London for hospital appointments, whereas I was only a few miles from the Sutton Marsden previously. It would have been a lot easier for us if circumstances had allowed us to stay within the district we knew so well. I think that unless you move within a district you know well it's better to do so before you get so old as it can be difficult to build new friendships when you move much further away and are elderly.
Anyway, wish you well in your new home and of course with your medical problems.
Barry |
User
Sometimes that change can bring plenty of excitement and lots of little jobs and projects to keep your mind occupied. But I’d hate to move as we have made our house our forever home. But El will probably have to move on when I do. :-((
Good luck Steve
User
Just make sure it's not one of those places that locks you in!
Also it's not wise to try and predict the future to much none of us knows what is going to happen. I certainly did not see my 34 year old marriage ending the way it did. Or meeting someone new who suits me so much better.
So while I understand you have done the maths and worked out the odds don't assume that path is written.
User
Steve
Hope all goes well with the move.
Thanks Chris And Dawn
User
Good luck with the move Steve. Hope the sale goes through without too much hassle.
We've moved 7 times (excluding rental) and debating whether to move again ( I'm the more keen one by far) and if so where and what to.
Ray
User
I am eyeing up those retirement complexes Steve but they are very expensive round here. Good idea to do it now as there is no way John could move now. Good luck and enjoy the change
love Devonmaid cxx
User
Good decision, Steve, but I understand your regrets. Once moved I hope it takes a lot of stress away, and remember nothing can take away memories of your long time home and life there.
I hope the positives make it all worthwhile.
Take care, Janet
User
All the best with the move Steve.
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Watch out for hidden charges Steve.
Barry
User
I hope you will be happy in your new home. Make sure you keep up with hobbies etc and keep getting out and about. I hope there will be lots of new opportunities for you. All the best.
Edited by member 24 Jun 2019 at 08:44
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Steve
Our daughter bought her first house earlier this year, what a nightmare. Hope you get another buyer quickly, will the delay affect the property you are moving to ?
Take care, thanks Chris.
User
Steve ,Sorry to hear the news ,
But keep at it you are doing the right thing , I DS about four years ago into a small 2 bed Bungalow In preparation for my departure , still here and Everything is sorted new fences ,new bathroom , new kitchen , complete Re/dec ,rewire , Paved rear garden and Astro turf and pebbles to all the beds , and vinyl click flooring inside throughout .
Good luck
Barry
User
Oh Steve
That’s a real pain in the neck, I’m so sorry, what a stressful process it all is. Hope you get another buyer quickly.
lots of love
Devonmaid xxx
User
Hi,
In the midst of depressive and stressful times, wonderful things can sometimes happen. We have just become grandparents again!
A beautiful baby boy arrived to my son and his wife yesterday. We now have four grandchildren, all boys!
Can't wait to see him later today.
This is what really matters in life, family.
I have come to terms with my cancer and what the future holds for me but the sadness I feel sometimes is the realisation that at some point, I will have to leave them.
Steve
Edited by member 20 Sep 2019 at 04:20
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User
Congratulations Steve on the new edition to your family
We can't control the winds - but we can adjust our sails |
User
User
User
Congratulations to you and the family Steve.
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User
Good luck for today Steve
Barry
User
Good luck Steve - hope it comes back favourable!
Flexi
User
User
Super news on the new grandson - congratulations to you all. On the PSA front, I worry that you are not proactive enough - did you ask for a testosterone test to see whether the HT is working correctly? Have you checked that the nurse is definitely giving you the 3 month dose rather than the 1 month dose (call me a cynic but as you well know, it has happened on here in the past) and is storing it correctly and injecting it into the correct place?
What is the onco's plan?
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
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User
Steve
Sorry to hear about the rise. Great news about the grand child.
Thanks Chris
User
Got to keep plugging away!
User
Good post Steve. Helps put things into some sort of perspective.
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Good positive thinking Steve, well done. My own analogy is that I'm like an old car, while they keep patching me up, there is hope and I'm not beyond repair and being carted off to the scrap yard !!
I've had a good 12 months of nothing but ht to keep things stable, now I'm bagged up waiting for a turp op in a few weeks. Not pleasant but if it improves quality of life, no contest mate.
Chris
User
Good to hear your positivity Steve, stay strong
Arthur
User
Hi Steve, did you manage to move? My wife wants us to downsize to a bungalow next Spring. My family are saying don't do it, you've enough stress in your life without a house move.
As far as I'm concerned if she wants to move I'm happy to go along with it, only going to be a short term move for me based on my prognosis.
User
Steve
Just coming up to six years since my DX , you were probably like me "that was not in the plan" . I remember reading your very entertaining daily reports on RT treatment. Keep going mate that's all we can do.
Thanks Chris and Dawn
User
Steve,
We moved from Surrey to a bungalow in North Devon for family reasons some 9 years ago. We miss friends and neighbours in Surrey who we rarely see now due to distance. We miss the local facilities and ease of getting to London for other things including nearness to major hospitals. We had some 45 years at our previous house on which I had done a lot of work, particularly in the early years when we struggled financially. We had our 2 daughters there and a lot memories. So I remember what a very stressful time it was leaving it all behind. I recall you are not moving so far away, so hopefully you will not be so severely affected. and will settle in well.
Wish you and yours a Happy Christmas and indeed all those on the forum.
Barry |
User
Have a good Christmas Steve. I hope the move isn’t too stressful when it comes.
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User
Best wishes for the move Steve. A not dissimilar one to ours in that we now have a 2 bedroomed bungalow. I had to move a lot with my job so we never really got attached, if that's the right word, to any one particular house but I can see it might be difficult to leave a much loved family home that you've been in for many years.
See it as a new and different stage in your life. Best wishes for Christmas and New Year.
User
Steve
Have a great Christmas and hope all goes well with the move.
Love Chris and Dawn
User
Happy 65th birthday Steve and many more to come.
I hope the move goes well and you settle quickly into your new home
Merry Christmas and a Happy New Year
Arthur
User
I wish you every happiness in your new home and many years to enjoy it. Happy Birthday too. It is a milestone day for us too - nine years ago exactly we were told my oh had pc. He is still ok even though he is currently on chemo. We have done many enjoyable things in those years and are thankful to all the doctors and nurses and wish them a good Christmas too.
User
Steve, really feeling for you. Hoping to see you on Thursday.
User
Steve
Sorry to hear this. Keep fighting. There are still a few more tools in the box.
P
User
Steve,
Sorry to hear your latest result, has the oncologist advised any further treatment?
Best wishes, Arthur
User
Hi Steve, sorry to read this. As Arthur has asked what has the oncologist suggested next?
Keep fighting.
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User
Sorry to see this. Onco said in September that they would introduce bicalutimide if it continued to rise - has that happened now or do they want to wait a bit longer?
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
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User
Steve
Sorry to hear that. Keep going mate.I was to taking to someone this week, his friend had lived for 26 years post DX and it wasn't pc that got him in the end.
Love Chris and Dawn.
User
Sorry to hear about this Steve as a fellow "PSA rising after treatment" member. As others have said, still other tools in the box. Keep us updated.
User
Keep the faith Steve— us ‘older’ forum members are moving forward together, so we will stick together yeh !
User
Hi,
Thanks everyone, for your kind replies and support.
During my Onco appointment we did discuss what treatment could now follow. I asked about Bicalutamide that had been suggested at previous meetings. My Onco said it was a possibility but also wanted to talk about maybe starting me on Enzalutamide or Abiraterone at some point if my PSA continued to rise.
She said she was willing to add Bicalutamide to the Zoladex I'm on, immediately, but then decided to wait and see what my situation was like at the next appointment.
I found the mention of Enzalutamide and Abiraterone a bit depressing as I don't like to think of myself needing that level of treatment, in the not too distant future.
Having just moved house to a bungalow in the last couple of weeks, we've been enjoying creating a new "home". I'm sad to think that, for me, the time I have to spend there with my wife may not be as long as I'd once hoped for.
Steve
Edited by member 30 Jan 2020 at 02:12
| Reason: Not specified
User
Hi Steve, sorry it’s not the best news but you know all the stuff I have done and am still doing so it’s not all bad.
Always here if you want a chat.
Kev
Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019 |
User
My oh had arberatitone for nearly two years and had very few side affects so it is not too daunting ans many people were on it for longer with good results.
Try not to focus just on your psa number. They seem to like to see that you are well in yourself before deciding which way to go next.
Good luck
User
Steve,
I'm not an authority on most if the treatments mate but the abi was brilliant for me for 16 months until a setback meant I couldn't use it any more . That reason is explained in other posts. I know you've had other issues but for me I carried on working full time with minor side effects like flushes which the other half thought was a hilarious party piece of clothing on, off, on , wet flannels etc. Tiredness, you manage your time effectively as I am sure you do now. The weight gain is inevitable, 34 to a 36 pants for me with a stone collected around that area. I know it's another tick off the treatment list but as I have preached before, you keep taking your car for repairs, it's a pain but it's still repairable, it's when they suggest the scrap heap you should worry , you've got loads of m.o.t 's left in you Steve.
Regards
Chris.
User
Steve,
I don't know if the steroids have anything to do with your psa score. What I will say though is even after my recent change in treatment due to the PC spreading. I am still on steroids, even though I have stopped Abiraterone and gone onto chemo. I must ask my onco why he has continued even though the abi has failed. The benefits in the past have outwayed the side effects for me anyway so maybe they would in your case ?
Chris.
User
Steve,
Steroids do seem to have a positive effect in keeping PCa at bay...........
Steroids can be used to try to shrink the tumour and stop it growing. The most effective steroid treatment is dexamethasone (https://www.nhs.uk/conditions/prostate-cancer/treatment/)
So certainly worth raising it with your consultant.
Best
Flexi
User
Had 2 new velux fitted on Friday, I was convinced they wouldn't show up but they did. Bigger issue - they didn't bring enough slates, but my wondert neighbour sorted me some out and all was well!
User
Steve,
Tell be about it! Trying to be reassuring I'm finding is in itself can be pretty draining too. It's important to look after your own mental health. For me its pottering in the garden and listening to repeats of Gardener's Question Time! (and not thinking that we're supposed to be moving house in two weeks!).
Flexi
User
All ok this in but being tech I’m kinda used to a computer screen. It’s like an extended lock down since surgery as I went offline 10 days before surgery. Then took it easy post RRAP albeit it a weekly social and daily walks. Now messing about with tech/tv plus a bit of Pilates and some afternoon sun in the garden. After this 12 weeks will have done about 6 months in semi lockdown. I’m ready for MarsOne 🤖🤪🤓
User
Steve, I do feel for you, living with someone who finds it difficult to find positives in every day living can be hard, especially at times like this. Moving house can be stressful, and doing house alterations hard going. Whilst David was having his treatments I was project managing our house extension, with a builder who turned out to be rather useless and quite dim.🤓we lived in brick dust and chaos for nearly a year. I was cutting veg one lunch time and the said builder’s boys had gone home as he’d not paid them.... I had paid him thou! I chased after him with large kitchen knife in hand, forgetting to put it down, he was horrified, scared and somewhat more compliant after. Though still a cr*p builder. 😊
Thankfully like you I’m quite positive, and hopefully resilient emotionally and physically. David can get a bit on the doom and gloom side, but he manages this with my help, and sometimes he’s right to be fed up.
I hope you manage to get the kitchen and bathroom completed, but not having it done might prevent you both from being exposed to this virus.
I do also feel for your wife, I’m sure she feels vulnerable, this might add to her glass half empty feeling. Remind her when the work is being done, cutting veggies and getting frustrated with your worker can have results, but to
put the knife down first. This is not a post about PCa, but I hope it gives you a smile.🗡🗡Leila
scare the living daylights out of them.
Edited by member 23 Mar 2020 at 17:20
| Reason: Not specified
User
I am a bit skeptical that different labs will be wildly different.
Your big leap before was likely due to having taken a short dose of steroids, if I recall, which probably suppressed that 2.50 reading from what it should have been.
I don't think you should hold back on the celebration Steve...
User
Thanks.
I had a couple of cans of lager anyway.
I'll have a couple more this evening if I can get away with it.
Steve
User
Hi,
A "21st." is usually a day of great celebration. It used to be a birthday that marked the day when we officially became an adult, with our whole lives ahead of us. But today, for me, my 21st. means something very different.
Later this morning, I will lay back and receive my 21st. Zoladex implant into my stomach. Never really painful, sometimes a little uncomfortable, it will be given to try and slow the growth of a cancer that for me, will end my life.
So it will not be a time of dreams and excitement for the life that is to come, just another £235 cost to the hard pressed NHS, £4935 in total so far, for a treatment that is now failing.
It's hard not to feel guilty, when you consider there are others far more deserving.
Steve
Edited by member 28 Apr 2020 at 08:52
| Reason: Not specified
User
HI Steve,
What a journey.
When my PSA came back as 57, my GP immediately said,
"You've got prostate cancer".
He was right of course, but I hadn't even been referred yet. Now that I know him much better (and he has been fantastic throughout), I know his father had prostate cancer, as did the GP heading the practice, so he will have known much more about it than most GPs.
I must ask him what his threshold level is for telling someone on the spot they have prostate cancer.
User
What a journey Steve, glad you’re still here.
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User
Hi Steve,
It’s been a bumpy road you’ve travelled on but we’re pleased you’re still with us
Arthur
User
Keep on keeping on!!!!!!!!
User
Hi,
Even though I feel life has sometimes got it in for me at times, when a really nice day comes along, where everything has gone just right, it really does raise your spirits.
Tuesday was one such day. I took my wife for a drive in the beautiful Berkshire countryside, her first trip out in 10 weeks (she's having to shield) and stopped to do some pictures when we found an incredible field of poppies. She loved it and the fresh air did her a power of good.
When we arrived home, I had a phone call from my surgery, giving me the results from a Diabetes test I had last week. I've been classed as Pre-diabetic for several years and in view of my love of chocolate and all things sweet, especially when I feeling miserable and I'm in a "what the hell, I going to die from my cancer anyway" mood, I was convinced they would tell me I was now Diabetic. To my surprise, they told me that my figures had come down almost to the point where I was no longer classed as being pre-diabetic anymore. Wow such a relief.
Then, half an hour later, I had my Oncology consultation (via telephone) where she told me that my recent PSA test came back as 3.40, a fall from my last test where it was 4.30! I was so pleased that I celebrated with a can (or two) of lager in the evening.
A perfect day!
Steve
User
Great Post Steve,
My other half has also spent a lot of time indoors lately and it is nice when we get out. I even enjoyed the rain today, the weather has been beautiful for so long, but a downpour was a surprisingly pleasant change. It's important to enjoy the small victories.
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User
Steve
Great news on both scores, and great for you both to be getting out.
Thanks Chris and Dawn
User
Brilliant news Steve, after some of what you've been through.
User
Great news all round - and a deservedly celebration!
Flexi
User
Great news Steve, good reason to celebrate!
Arthur
User
Brilliant Steve. Great results.
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User
Fabulous news Steve - so pleased for you.
User
Great news Steve.
Always good have improving results especially after a lovely day out.
Stay safe
Paul
User
So pleased for you Steve, it’s great to hear you sound so upbeat x
User
Hi,
Thank you everyone, for your kind remarks.
It's been making me wonder why, in the space of only 36 days, my PSA would fall from 4.30 to 3.40, just at a time when I was feeling low and just needed something to make me feel happy again.
I couldn't think of anything I've done differently to cause this to happen. Then, late last night, a thought occurred to me. The PSA test I had last week, was done on May 27th, the anniversary of the day my Dad tragically died from a heart attack when I was 18 years old. Then I suddenly realised, that was 47 years ago. A shiver when down my spine. A few days before he died, he had just celebrated his 47th birthday!
I always remember, in the years following his death, I would occasionally have a dream where I would meet him and let him know how things were going and what I'd been doing. It was always a great comfort to me.
I wonder now whether this recent result was my Dad's way of helping me when I needed it most.
Steve
User
Hi Steve
sorry to hear the news about your PSA , hopefuly it is just a blip, will keep my fingers crossed for you.
regards Barbara x
User
Sorry to see this Steve. What a disappointment after your last reading.
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User
Sorry to hear this Steve, try to stay positive
Arthur
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Steve
Sorry to see this, have you been offered any scans to see where the cancer is ? I was reading a post elsewhere and the guy had already undergone RP and RT a few years ago. He then had some scans and was having some suspect lymph nodes removed. His urologist did describe it as unusual.
Take care.
Thanks Chris and Dawn
User
Wishing you well, Steve
ulsterman
User
Hi Steve, if you discount the last PSA test, a rise from 4.3 to 5.5 is more or less exactly in line with your previous rises and should be no surprise. If anything, it seems more likely that the last test was some kind of quirk or error - you did say at the time thst the drop was unexpected.
You could ask the onco or specialist nurse why they are not taking more interest in your case - they don't seem to have even checked out whether the HT isn't working properly or you are now castrate resistant.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
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Sorry about the PSA rise again Steve, hopefully the scan will not show anything and it will be a case of them trying to get the PSA down again. Take care mate.
Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019 |
User
All the best for your scan next week Steve. Will be thinking of you.
Angex
User
Hi Steve,
All the very best, I have followed your posts for many years.
Be very kind to yourself, you more than deserve it. As Lyn alludes to.
Maybe time to request a 'review' Stoic comes to mind..
Are you still having to work as well ?
Best wishes Gordon
User
Maybe nag them for a PSMA scan instead of a Bone scan?
User
Best of luck for next week.
Paul
User
Steve,
Have you considered sounding out one of the private clinics in London, perhaps just only for an initial consultation? Might be helpful / worth the expense?
Flexi
User
Have you thought of nature photography as an alternative?
User
Cuddly animals look cute, but they don't have much money. Weddings are good for money but they aren't happening.
You might be able to ask a squirrel if he'll share his nuts with you. In exchange for a family portrait. Lol
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Hi Steve , hoping the best for you. Sorry about work. I’ve been relatively “ lucky “ as an infant school caretaker , but with a quarter of the kids came ten times the work with all the Covid changes.
I guess now you are resigned to systemic treatment for however long , they won’t do a PET scan for the reasons you say. What would they do with the results. ??
Just had scans last Monday bone and CT and psa over 500 now. Bloods ok. They won’t give me a PET as they know I’m against systemic treatment for the sake of it. I only have 4 mets but they abjectly refuse to try targeted RT and just want to castrate me instead. So we are at loggerheads. My normal 4 hour bone scan lasted 6 hours with all the extra pictures they needed. I nearly puked when I clearly saw the two bright hot spots on my spine. They took extra of my ribs also. So looks like the s**t has hit the fan. Take care
User
Not quite what I had in mind :)
I meant for magazines and websites.
User
Hi Steve,
Thanks for update, and keep enjoying the photography, mines just a hobby, circa 55 years. Also back then a Cambridge Utd supporter, so saw County and not Forest. In fact I don't remember ever watching Forest.
Hopefully more business for you soon.
Best wishes Gordon
User
Best of luck with the scan Steve. I guess results will be a week or two after the scan though.
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I feel nervous for you too Steve. Good luck for your bone scan tomorrow, hope and pray it comes back clear.
Ange x
User
Steve
Hope the scan goes okay.
Thanks Chris and Dawn
User
Hi Steve,
I had similar situation with flow, it was painful at times with very little urine coming out and it took a while as well.
I spoke a nurse when I had my 3 monthly injection and it turned out that as I had had diarrhea I was dehydrated, once I ‘topped up’ with water it was ok.
I spoke to my oncologist about it and she reassured me that as I was having Decapeptyl injections my prostate wasn’t enlarging and stopping the flow.
I’m not saying it’s the same for you but it might be something worth considering.
Best wishes,
Arthur
User
Originally Posted by: Online Community MemberAfterwards, I drank loads of fluids, as instructed to do to clear the radioactive tracer out my system, but found it very difficult to pee for the rest of the day.
In recent weeks, my flow hasn't been brilliant but was surprised about how restricted it was yesterday. I just wondered where nearly 4 litres of water went!
Has anyone else had problems like this?
I can't speak to your particular situation as I've not had a bone scan, but a couple of urinary tips might be of use.
I've always found stress to be related to urination. For example I used to find it very difficult to pee in a crowded, noisy nightclub where the urinals are close together. "Performance anxiety". Also after an argument or stressful situation it was hard to start urination. I wonder if the stress of your scan has messed with your system a bit?
After my biopsy, when my prostate seemed to swell and block my flow quite badly (I went a full night with a full bladder and unable to pee - that was not fun) I discovered that sitting down, leaning forward and slowly exhaling a deep breath was helpful in being able to urinate . Whistling or singing is also good. I think the diaphragm moving downwards exerts a little extra pressure which can be just enough to get you started and keep it going.
_____ Two cannibals named Ectomy and Prost, all alone on a Desert island. Prost was the strongest, so Prost ate Ectomy. |
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Steve
Easy to say harder to do , stay positive.
Thanks Chris & Dawn
User
I hope you get results soon Steve. Waiting on results is very difficult.
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Hi Steve, hope you’re feeling less anxious today. I think night time is always worse as not many distractions, especially when you’re in pain and it’s so hot. Fingers crossed you will receive your results soon and be able to move forward.
Angex
User
Hi ,as you can see by the time of my posting I’m a night house walker ( not worker !!) great news .
It’s a horrible feeling being anxious as most men will know on here just before any results .im currently worrying about Gary and my dad who has throat cancer .
Best of luck for you next set of results .
Debby
User
Steve
Great news, now relax.
Thanks Chris & Dawn
User
Relax and have a great weekend now Steve
Bri
User
That’s fantastic news Steve. You will be so relieved.
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That is great news Steve. Hope you can relax for a while now and enjoy your weekend.
Ange
User
Great news!
Will it be champagne or whisky?
User
Excellent! You must be so relieved. 😃
_____ Two cannibals named Ectomy and Prost, all alone on a Desert island. Prost was the strongest, so Prost ate Ectomy. |
User
User
Super news Steve, really chuffed for you.
How are things in the new home?
User
Good news. As they say worrying changes nothing. Just got my appt today and it’s 2 week’s away. I’m simply not worrying. All worried out lol. But keen to hear what treatment is on the cards or needed or whether it’s worth it
User
Good result Seve, now let's hope the shoulder problem is minor and can be easily resolved.
Barry |
User
Great news Steve. Hopefully the shoulder issue is nowt to fret about.
Take care and enjoy your days.
How goes the photography?
Paul
User
Hi Steve,
sorry to hear your PSA has gon up again and hope the bicalutamide works for you and with very few side effects.
regards Barbara x
User
Originally Posted by: Online Community MemberThank you everyone for your messages and your good wishes.
It was a huge relief to have the good news about my bone scan. I was growing more anxious by the day while I was waiting. It did take some phone calls, to the right people, to finally find out the results. Apparently, they knew the results earlier but they had to wait to see my oncologist before they could ring me, in spite of the clear scan. Thank goodness she wasn't on holiday.
The reality is now that the shoulder pain is still as bad as it was and I can't restart any treatment for it until the x-ray results come through!
Steve
I was told by the Nurses right after my bone scan, that all was fine - but I expect they have their protocol, AKA Bull**** 😄
User
Hi Steve so sorry to hear about your psa result. Stay safe and positive..
Carl.
User
Time to nag for scan to see what is going on?
User
So sorry to read this Steve. How have you been coping on the Zoladex?
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Steve
Sorry to see another rise, hope the extra treatment does not cause a problem.
Thanks Chris and Dawn
User
Burger.
Sorry to hear that, mate. Keep fighting. We are all in your corner.
User
Sorry to hear about the rise Steve but it sounds like they have a plan to deal with it
Try and stay positive mate
Bri
User
Sorry to read this Steve, hope the extra meds do their stuff for you
Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019 |
User
Sorry to hear your latest update Steve, I hope the next course of treatment will be effective.
It’s interesting how oncologists work differently, once my PSA reached 2 she arranged for an MRI, CT scan and a bone scan. It may have been the rate of rising but to me it didn’t seem like that.
Best wishes,
Arthur
User
User
User
Hi Steve,
Good luck for tomorrow. I hope you receive a low PSA result 🤞
Ange x
User
Fingers crossed for you Steve
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
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User
User
Good luck Steve. Best wishes,
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Fingers crossed Steve. Plenty of weapons in the armoury yet
Bri
User
Thinking of you for tomorrow Steve, hope you get a good result.
Arthur
User
It's great to read of your relief. All the best, Peter
User
Steve
Great news.
Thanks Chris & Dawn
User
Good news Steve,👍
Steve
Edited by member 16 Feb 2021 at 21:30
| Reason: Not specified
Good luck to everyone coping with the insidious big C |
User
Great news and long may your response continue Steve.
Barry |
User
User
Great news , so good to hear a good news story.
Best wishes
Debby
User
It’s great to hear your good news Steve, so pleased for you.
Angex
User
Fab result Steve, let’s hope the trajectory stays the same way.
Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019 |
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Delighted for you Steve, tremendous result.
User
That’s brilliant news Steve.
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Fantastic news Steve. What a way to start the year. All the best to you.
Paul
User
Read your first post and was expecting not to read good news on your latest results, but Wow that's great news.
Keep fighting on
Ray
User
User
Great result Steve.
Arthur
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Great news Steve and long may it continue.
User
👍 pleased for you Steve
Cheers
Bill
Edited by member 18 Feb 2021 at 19:24
| Reason: Not specified
User
Fantastic news, so pleased for you.
Roy
User
Very pleased to hear this news , Steve.
User
User
Hi Steve
Great to hear from you. Pleased you are in good spirits and living life.
all the best
Roy
User
Same Steve but 6 yrs since surgery on the 15th. Each day is tough but yet again you get a new perspective and learn to make the most. Bitter sweet but better than nothing. Keep well friend
User
That's great to read. All the best, Peter
User
A small miracle in some ways - whatever you are doing, it seems to be working! Stay well Steve.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
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A small miracle in some ways - whatever you are doing, it seems to be working! Stay well Steve.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
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Glad to see you’re feeling upbeat Steve after your earlier struggles.
All the best,
Arthur
User
What ever you are doing keep doing it Steve.
Leila
User
Great update Steve. Lovely to hear from you.
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Steve
Keep going mate, I used to love reading your diary of RT treatment.
Take care Chris and Dawn
User
Keep up the good work Steve x
barbara
User
Glad life is still here and good for you Steve, hope our paths cross again soon
Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019 |
User
Hi Steve
It's great to hear how well you are doing.
I'm sure we will still be enjoying life for years yet.
Paul
User
Hi Steve
It's great to hear how well you are doing.
I'm sure we will still be enjoying life for years yet.
Paul
User
Hi Steve,
Good to hear from you. Enjoy the moment .
Best wishes Gordon
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Hi Steve
I think you have hit "ultra-sensitive psa test anxiety". You are down at such low levels of measurement that something like the time of day that you had the blood sample taken might alter the result. My GP (who I trust) is happy that any result under 0.1 is treated as effectively unmeasurable.
In Wales, the NHS is desparately short of funds, so we only have the less sensitive PSA test. As long as I keep clocking up <0.1, I'm happy and I can reserve my stress levels for other things. All the same, the family can tell when I am in the waiting period between each blood test and the result - that bit of anxiety doesn't go away!
If you want something to stop you worrying about PSA, start supporting Leicester City.... or Lewis Hamilton.... or Andy Murray.
Tony
TURP then LRP in 2009/2010. Lots of leakage but PSA < 0.1 AMS-800 Artificial Sphincter activated 2015. |
User
Hi Tony,
You're right of course. I think my main concern is about the other blood test results as my general health and fitness have got worse over the last two months. I can't even run much more than twenty yards without being totally exhausted.
I've edited my post to put my last line next to my previous sentence instead of starting a new paragraph. It seems to make more sense that way.
Don't worry, I'm more stressed by the fate of Leicester City, as Bill Shankley once said talking about football "It's not about about Life and Death, it's more important than that!
Steve
Edited by member 18 Apr 2016 at 16:58
| Reason: Not specified
User
Know what you mean. Last year, testosterone virtually zero, so on Testosterone Replacement Therapy, this year, thyroid too low so pills for that and now have to see haematology because my full blood count is too high. Good grief, falling to pieces.
Tony
TURP then LRP in 2009/2010. Lots of leakage but PSA < 0.1 AMS-800 Artificial Sphincter activated 2015. |
User
Steve
As T say PSA is still low, but I know how you feel, any rise gets the brain working overtime. Hope the other bloods are nothing major.
Thanks Chris
User
Wait to see what the GP says.
It is natural to worry, so it is allowed, and you don't need to worry about that reaction!
Best of luck.
Henry
User
Hi,
Saw a GP today and he said that my blood test results showed that I was anaemic. He's sending me to have more blood tests at the hospital to try and find out why this is happening. So hopefully, it will be sorted soon.
Facing a really interesting weekend as I'm working as a photographer for Prostate Cancer UK at the London Marathon. I'm really looking forward to it.
Last Sunday I covered the Brighton Marathon for them, which they seemed pleased with, so hopefully, I can do the same for them this week.
Have a good weekend.
Steve
User
Steve
Have a great time at the marathon and remember not to join in with the running.
Thanks Chris
User
Glad you are feeling more able to do stuff again Steve. Those light sunny mornings help me loads. Boosts me completely.
Chris
User
Thanks,
Chris, I don't think I will joining in as I'm finding it difficult to run at the moment. My energy levels are really low. I'm being checked out by the hospital but really need to have the Cardiac MRI scan.
Chris J, feeling good about being able to do some of my work for PCUK, they've just asked me to be their photographer for the London to Amsterdam Cycle Ride in June, so that should be interesting.
It feels good to feel that I might be doing something worthwhile.
Thanks guys.
Steve
User
Great news Steve, and lovely to see you posting again in such a positive frame.
I hope that they can sort out the anaemia issue, as this will be sure to be making you feel tired out and with all this work coming up you will need some extra energy!
ATB
Alison
User
Thanks Alison,
I feel very much as if I need a new set of Duracell batteries for my body. Looking forward to ending my hormone treatment in June to see if that gives me an energy boost. Hope so.
Hope everything is ok with you.
Steve
User
Steve,
I'm really envious of you stopping HT in June. I've been given a further year now and am due to finish in August 17 ( 36 months ). Being on HT is really draining so I hope that you gain the extra energy coming off this summer. Fingers crossed for you. I could with some of that energy right now !
John
User
Hi Steve
We are okay at the moment thanks, breathing a sigh of relief after the blood in urine incident on Easter Sunday.
My OH finished the HT about 6 months ago and starting to feel a little more energized, I know it takes time, I hope you will feel the same.
keep in touch
Alison
User
Not long now before the end of HT and increased energy as it's effect diminishes.
Have a great day tomorrow - will be watching on TV.
Barry |
User
Hi Steve
I'm very envious also that you're coming off HT. The fatigue really does get to you.
I've just had my 6 th 12 weekly Prostap jab and whilst I'm still running I'm struggling to do much more than a 10k.
I have to say though that after I've run that I do feel recharged so exercise for me seems to help.
I hope everything goes well for you and look forward to you reaching the "cured" camp.
Paul
Ps Hope you enjoyed photographing the London Marathon
User
Hi,
Good News.
I've finally received the date for my Cardiac MRI Scan (after a three month wait). It's booked for the 22nd. May at 9am. I was surprised to see that it was a Sunday but when I received the written details this morning, I found out that it's going to be done at a private hospital. Probably my regular hospital is trying to catch up with the backlog of appointment requests.
I hope this scan helps to find out if my heart is performing ok and the arteries are not blocking up again. If everything is ok then it will be a big relief and give me confidence that I'm not going to suffer a heart attack again if I push myself too hard.
I suppose if the heart was blocking again it would be a reason why I've been feeling breathless and so lacking in energy in recent months. I feel so exhausted most of the time, far more than I've ever done before.
I know finishing HT in June will help with the fatigue and if I get the all clear for my heart in the next month, it will help me to feel as I used to before these medical issues started (if that's possible for any of us here).
Steve
Edited by member 29 Apr 2016 at 00:40
| Reason: Not specified
User
fingers x steve it all goes to plan
regards
nidge
run long and prosper
'pooh how do you spell love' 'piglet you dont spell love -you just feel it' |
User
Hope all goes well for you
Very Best
Gary
User
Steve
Hope all goes well with the scan.
Thanks Chris
User
Another wait Steve, til 22 nd May, but I hope all goes well for you and they can get to the cause of the heart problems.
Sounds like you are still feeling quite upbeat, good for you!
ATB
Alison
User
Steve
Wow I'm not surprised if yore feeling upbeat.
Heart scans in May hopefully will show all is well and coming off HT in June well don't we all want to be off HT.
All the best
Paul
User
Hi,
I just realised that it's two years ago today that I was sent to hospital for blood tests which resulted in me finding out that my PSA was 48.85.
I didn't even know what PSA was and didn't realise that I was beginning a journey that was going to change my life forever.
Perhaps 13 was an unlucky number for me.
Steve
User
Steve
I think we have both had an "interesting " two years, let's hope the next two years turn out to be good but uneventful. Take care.
Thanks Chris
User
Hi Steve
Maybe 13 is your lucky number. Just think if you hadn't had those tests things might have turned out even worse.
I can understand your feelings though as I always think similar on my "anniversary".
Sending you my best wishes.
User
Good luck for the 22nd Steve. I'll be thinking of you and keeping everything crossed.
I'm not surprised you're exhausted. A combination of HT, anaemia and stress is not a good cocktail.
Best Wishes to you as usual
We can't control the winds - but we can adjust our sails |
User
Hi Steve
Let's hope the next two years will be better, they can't be any worse than the last two. Keep on going, you will do that half marathon yet.
All the best
Paul
User
Steve,
I'm approaching my second anniversary since dx too. But I think my journey has been slightly easier than yours. However you will soon be released from HT whereas I have a further year to go.
Good luck for the 22nd.
John
User
Hi Steve thinking of you on the 22. Jx
User
Hi,
Thanks for your messages.
Starting to feel anxious about the outcome of the Cardiac MRI Scan l'm due to have on Sunday. I suppose I feel worse because I've waited so long for it. If it reveals that I'm suffering further problems with the arteries then I may face the possibility of further treatment not only this year but in future years. If no problems are found, it raises the question of what else could be causing the total lack of energy and severe breathlessness. I've suffered with fatigue during the last two years of HT but never as bad as this.
I haven't slept well the last couple of nights, which doesn't help.
Hopefully, taking part in a planning session with PCUK later today about my role as the photographer for the London to Amsterdam Cycle Ride in a couple of weeks time will take my mind off things.
The trip should be fun providing health issues don't get in the way of me going. Feeling that, somehow, you are helping with the work of the charity really helps raise your spirits.
Must try and sleep now.
Steve
Edited by member 19 May 2016 at 02:32
| Reason: Not specified
User
Two forty five in the morning and you're still up and on the computer!! Hope you got some rest. I do know what it's like to be awake when the rest of the world seems to be able to get its head down. It's a very lonesome feeling.
It also allows the mind to wander, probably down paths you shouldn't be looking at because there are no distractions.
Hope the planning sessions go well. Yes it's something to focus on as well as helping PCUK, but this is for you Steve.
It's what you do, what you are good at. I know you'll give it your very best shot. You'll need to find the strength and energy from somewhere but I'm sure you'll do it.
Go Steve Go !!!!!
We can't control the winds - but we can adjust our sails |
User
hi steve
hope you managed to get back into the land of Nod, the bike ride gives you a good focus at the moment have you posted any pics from the London marathon
regards
nidge
run long and prosper
'pooh how do you spell love' 'piglet you dont spell love -you just feel it' |
User
Hi Steve,
Wishing you all the best for today, hope it goes well
Arthur
User
Hi Steve best wishes for today and I hope all goes well
Regards Chris/Woody
Life seems different upside down, take another viewpoint
User
Steve,
I hope that all goes well for you today
John
User
Hi,
Thanks.
Just arrived at the hospital, about to go in.
Funny, I'm sitting in my car next to the flat I lived in for five years before the building was bought by the hospital for use as offices. So many happy memories of that time.
Have to go.
Steve.
User
Hi,
Home now, following the Scan.
Scan seemed to go Ok but quite hard going.
Made me feel really tired, going to have to have a sleep before giving more info.
Steve
User
User
Steve
Look forward to hearing good news from you.
Thanks Chris
User
I hope the results don't take too long Steve
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
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Hi,
I managed to speak very briefly to the cardiologist who wanted me to have my Cardiac MRI.
The good news was that I do not need any further treatment just at the moment and she ok'd the Amsterdam trip.
Not so good was that she said the MRI showed my heart has been damaged as a result of the heart attack and other operations I've had and unfortunately it can't be repaired. So it looks like things may not improve. I'll have to live with it.
Edited by member 25 May 2016 at 10:30
| Reason: Not specified
User
Steve
Not the best news, but as you say you are still alive. Still being here always gives a hope of improvement. Enjoy the Amsterdam trip and don't do anything silly.
Take care.
Chris and Dawn
User
hi steve
not the best of news, but you are still going to Amsterdam, stay off the wacky bakkie
regards
nidge
run long and prosper
'pooh how do you spell love' 'piglet you dont spell love -you just feel it' |
User
Steve,
After all you've been through you still have the green light for your Amsterdam trip. Shame about the other news though but as you say you're still with us.
John
User
Sorry it wasn't better news Steve but forewarned is forearmed.
It presumably explains your constant tiredness?
Enjoy that Amsterdam trip
We can't control the winds - but we can adjust our sails |
User
Sorry the news was not the best.
Enjoy your trip to Amsterdam.
KRO...
User
I guess at least you know where you are now and can plan accordingly. Hope you really enjoy your trip.
Best wishes
Rosy
User
Hi,
Just had my last (hopefully) Zoladex hormone implant at 5.40pm today (Wednesday). I really look forward to feeling a little better over the next few months.
Steve
User
Steve,
The word 'envious' comes to my mind, I'm really pleased for you that you've had your last jab. Hopefully the side effects from the last 2 years will wear off for you soonest.
John
User
Good news for you Steve.
Now it's just finding patience!!
We can't control the winds - but we can adjust our sails |