Not feeling so good at the moment.
Hubby diagnosed in June. PSA originally 205 but went up higher after another PSA test. Bone scan positive for mets and biopsy - gleason 9. CT scan still awaiting results but onco thinks nothing into the soft tissue as far as he can tell except maybe lymph nodes.
First onco appt 12th aug and he prescribed bicalutamide on top of the prostap injection. Also starts first course of chemo 8th sept. Onco was frank to say the least and I came away feeling as devastated as when he was first diagnosed.
Today we received the letter the onco had sent to the gp practice. I don't know why I feel so bad because we already know he has advanced pc, but this completely floored me all over again. It said 'He has aggressive prostate cancer which he is aware will progress faster than other cancers with or without treatment' - the letter went on to describe current meds and planned chemo.
Yes, I am aware hubby has advanced pc and that it's incurable, but at this moment in time he is still physically so strong and well. He is 59 and has not ever had any major health problems and has always been very strong and capable. The prostap and bicalutamide are making him tired and hot at times but that is bearable and to be expected. I am dreading the start of chemo next week but we are arming ourselves with as much knowledge as possible. What is making me feel so bad right now is this letter. So many people on this site have had psa as high and even higher and with advanced pc and are still here after many years. If these internet sites weren't available we would probably be planning his funeral by now and getting everything in order thinking time was short.
I am sorry to be so negative but he is currently busy doing jobs around the house and looks more or less normal. Hard to believe he is ill at all. I am not in denial. I know he is incurable, but seeing everything written down has shaken me to the core