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Urethroplasty

User
Posted 09 Sep 2016 at 12:37
Thought I'd post about my urethroplasty I've just had, diagnosed 7 years ago with PCA and lived with a stricture ever since, always put off about having the op because quite frankly it scared the s%#t out of me, anyway it had got to the point where it was causing me real problems self dilating that I had to get it sorted, I had been suffering with kidney ache for a few years and it was only when the nurse recently said that I was putting loads of pressure on my kidneys because I couldn't empty my bladder properly that was the probable cause, my consultant also said I should think about surgery while I was young and fit enough because the longer I leave it the healing could be more complicated, that made up my mind and I duly went under the knife 6 weeks ago.

The surgery went to plan thankfully and I was allowed home the following day,a large scar from my testicles to my anus made for an uncomfortable few weeks, my stricture was below my sphincter muscle so nothing as complicated as having it done in your penis, the tissue from inside my mouth was used to replace my damaged urethra and this was the worse part of the operation, the pain at times was unbearable, sleepless nights does not help you repair, specialist nurse told me to get to my doctors for some extra pain relief, this came in the form of liquid morphine and within 2 days I was starting to feel better, after 12 days I could eat on both sides and also brush my teeth, this was by far the worse part of the operation and the urethroplasty seemed secondary. To stretch your mouth after your op is also a very important thing to do and I've been doing the exercises given me about 20 times a day.

Back to the hospital after 3 weeks to have the catheter out only to be told the operation had not sealed itself properly, I was devastated to be told the catheter had to stay in for another 3 weeks, spoke to the nurse the next day and she informed me that it's more common to go the 6 weeks than 3 weeks for catheter removal, why they didn't tell me this in the first place is beyond me!!

Back to the hospital after 6 weeks and the catheter is taken out, brilliant, what a feeling, peeing like an elephant, even if I'm not hung like one, kidneys don't ache either!!

Should I of had this done 7 years ago, definitely, am I pleased I had this done, most definitely, it is not as scarey as you think it's going to be.

The first 2 weeks are bloody hard but longterm it was the right decision.

Please understand this is my op, others will be totally different and may have pitfalls I didn't have, I felt the need to write this on here as there's so little about this procedure, thanks for reading!!

User
Posted 09 Sep 2016 at 12:37
Thought I'd post about my urethroplasty I've just had, diagnosed 7 years ago with PCA and lived with a stricture ever since, always put off about having the op because quite frankly it scared the s%#t out of me, anyway it had got to the point where it was causing me real problems self dilating that I had to get it sorted, I had been suffering with kidney ache for a few years and it was only when the nurse recently said that I was putting loads of pressure on my kidneys because I couldn't empty my bladder properly that was the probable cause, my consultant also said I should think about surgery while I was young and fit enough because the longer I leave it the healing could be more complicated, that made up my mind and I duly went under the knife 6 weeks ago.

The surgery went to plan thankfully and I was allowed home the following day,a large scar from my testicles to my anus made for an uncomfortable few weeks, my stricture was below my sphincter muscle so nothing as complicated as having it done in your penis, the tissue from inside my mouth was used to replace my damaged urethra and this was the worse part of the operation, the pain at times was unbearable, sleepless nights does not help you repair, specialist nurse told me to get to my doctors for some extra pain relief, this came in the form of liquid morphine and within 2 days I was starting to feel better, after 12 days I could eat on both sides and also brush my teeth, this was by far the worse part of the operation and the urethroplasty seemed secondary. To stretch your mouth after your op is also a very important thing to do and I've been doing the exercises given me about 20 times a day.

Back to the hospital after 3 weeks to have the catheter out only to be told the operation had not sealed itself properly, I was devastated to be told the catheter had to stay in for another 3 weeks, spoke to the nurse the next day and she informed me that it's more common to go the 6 weeks than 3 weeks for catheter removal, why they didn't tell me this in the first place is beyond me!!

Back to the hospital after 6 weeks and the catheter is taken out, brilliant, what a feeling, peeing like an elephant, even if I'm not hung like one, kidneys don't ache either!!

Should I of had this done 7 years ago, definitely, am I pleased I had this done, most definitely, it is not as scarey as you think it's going to be.

The first 2 weeks are bloody hard but longterm it was the right decision.

Please understand this is my op, others will be totally different and may have pitfalls I didn't have, I felt the need to write this on here as there's so little about this procedure, thanks for reading!!

User
Posted 03 Oct 2020 at 00:10

Hi I thought I'll give you an update to my urethroplasty surgery. So I went in to hospital 3 weeks post operative to undergo a urethrogram/fluroscopy they inserted dye in to my urethra via another catheter to the additional one I had after surgery they inflated a balloon and took some pictures via x-ray to see whether the graft had healed. This process took 15 min maximum and the catheters for imaging was removed. The process was slightly uneasy and caused some discomfort with little pain.The graft had shown good signs of recovery and I was told that I would be leaving without my catheters today. What a relief that was. So first the nurse took out my urethral catheter and put a stopper on the suprapubic catheter. I was given a cup and jug of water to drink until I felt I could pass urine. Twenty minutes later I went to the toilet to pass urine and wow what a relief that felt I was peeing like a horse. Within another twenty minutes I went for a pee another 2 times. Then my suprapubic catether was also removed i had a scan of the bladder and I was free to go home. Here I am now laying in bed without having to attach night bags to my catheters. 

I feel abit sore in my penis and tummy wall is in slight discomfort due to how long I had it in place. I have a dressing over my suprapubic hole and been advised not to wet it for a week to avoid any infections. 

I have been to the toilet many times since my catheters were removed and feel great no pain. The first time I passed urine in hospital was abit uneasy and there was some blood in the urine and been fine since. 

Abit of info on the healing process of the urethroplasty. My surgical wounds have healed from my testical to my anus and also my inner cheek where the graft was taken from has healed brilliantly. You cant even tell if any skin was taken from my inner cheek. All the stitches from my inner cheek to my surgical wound were all dissolvable. 

The advice from my perspective being a patient of urethrotomy and urethroplasty. They both very uneasy routes but I rather have had gone for a urethroplasty in the first place. I would highly recommend urethroplasty to all the sufferers of stricture disease. 

 

User
Posted 25 Sep 2020 at 13:42

Hi I have undergone a urethroplasty with buccal mucosa graft in September 2020 I am still recovering with a urethral catheter and also a suprapubic catheter in place. 

I wanted to post online for those scared to undergo urethroplasty. I was keen on finding information before I went for surgery but unfortunately I was unable to do. 

I have suffered for stricture for some 4/5 years in 2018 I went for an urethrotomy surgery but 7 months later I had a complete blockage of my urethra with this stricture again. I went to accident and emergency at my local hospital and got a suprapubic catheter in place 02/20. 

Back to urethroplasty surgery, it was a 4-6 hour surgery my surgeon cut my testical sack to near enuff my anus n used 12cm of skin from inside my right cheek. The surgery went as planned and was successful. My catheter removal date is 02/10/20 although I wouldn't mind it being in place for longer for a better success at healing my urethra. I would like to happily say that I still get an erection with my catheter still in place.

The pain Is not as bad as what you expect it to be. I was able to have a cup of coffee after my surgery and few hours later had 2leg peice chiken and chips with mint sauce. I was given an oral suspension morphine for my pain relief for only a day and then after was given paracetamol and dihydrocodeine and also some mouth was bottles to gargle. I was discharged the second day due to the ongoing crisis of coronavirus. My drain was removed the following morning with ease.

I was able to get up and walk about and I am mobile since. I wouldn't say its very painful but there is slight pain and I would say alot of discomfort with surgery scar healing and mouth healing. I was able to shower 3 days later and change into my clothes without help.

I will keep you updated once my catheters have come out and what is the outcome.

I would highly recommend urethroplasty for those suffering to pass urine. Weak urine flow. Straining to pass urine. Cannot empty full bladder. Blood in urine. Burning sensation. Incompetence not able to pass urine at all. Urethrotomy is a waste of time as the success is 50/50 and the pain is similar to urethroplasty with the only extra being skin missing from the inner cheek.  

Hope this gives hope to all those suffering with urinary problems.

 

User
Posted 09 Sep 2016 at 16:32
Hi Chris, no I didn't suffer with incontinence after the operation, then or now, my PSA is still under 0.5 over 7 years on, it is also a contributing factor that's in the back of my mind should RT is needed in the future.
User
Posted 09 Sep 2016 at 21:50
Steve

That PSA is reassuring,hopefully I will follow in you footsteps.

Thanks Chris

User
Posted 16 Sep 2016 at 19:29
Interesting post Steve as I was told this op may be the answer to my stricture but I have put it off and continue to self dilate. One of the down sides was that I was told it would be a two step process but you seem to have had it all done in one go....perhaps the location of my stricture makes it more difficult perhaps?

Andrew

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User
Posted 09 Sep 2016 at 16:16

Steve

Thank you for posting your story, having suffered and still suffering with a stricture and clip migration, urethroplasty is a possible solution to my own problem.  You paint a very graphic picture that is slightly off putting but then your comment " I should of had it done 7 years ago" is very positive.

Did you suffer any incontinence after the original op and are you doing anything about the slow PSA rise?

 

Thanks Chris 

User
Posted 09 Sep 2016 at 16:32
Hi Chris, no I didn't suffer with incontinence after the operation, then or now, my PSA is still under 0.5 over 7 years on, it is also a contributing factor that's in the back of my mind should RT is needed in the future.
User
Posted 09 Sep 2016 at 21:50
Steve

That PSA is reassuring,hopefully I will follow in you footsteps.

Thanks Chris

User
Posted 14 Sep 2016 at 18:40

Steve,

 

Thanks for posting this as I find myself in a similar situation. I'm meeting my urologist in a couple of weeks to decide whether to go ahead or not, so very timely!

 

Flexi

User
Posted 15 Sep 2016 at 21:17
Hi Flexi

Good luck with your urologist, as I said the worst part is the graph taken from the inside of your mouth, get some morphine as soon as you can, makes a huge difference to how you'll feel and be prepared for the catheter to be in for 6 weeks, if your lucky and it's 3 weeks only your on a bonus.

All the best

Steve

User
Posted 16 Sep 2016 at 19:29
Interesting post Steve as I was told this op may be the answer to my stricture but I have put it off and continue to self dilate. One of the down sides was that I was told it would be a two step process but you seem to have had it all done in one go....perhaps the location of my stricture makes it more difficult perhaps?

Andrew

User
Posted 25 Sep 2020 at 13:42

Hi I have undergone a urethroplasty with buccal mucosa graft in September 2020 I am still recovering with a urethral catheter and also a suprapubic catheter in place. 

I wanted to post online for those scared to undergo urethroplasty. I was keen on finding information before I went for surgery but unfortunately I was unable to do. 

I have suffered for stricture for some 4/5 years in 2018 I went for an urethrotomy surgery but 7 months later I had a complete blockage of my urethra with this stricture again. I went to accident and emergency at my local hospital and got a suprapubic catheter in place 02/20. 

Back to urethroplasty surgery, it was a 4-6 hour surgery my surgeon cut my testical sack to near enuff my anus n used 12cm of skin from inside my right cheek. The surgery went as planned and was successful. My catheter removal date is 02/10/20 although I wouldn't mind it being in place for longer for a better success at healing my urethra. I would like to happily say that I still get an erection with my catheter still in place.

The pain Is not as bad as what you expect it to be. I was able to have a cup of coffee after my surgery and few hours later had 2leg peice chiken and chips with mint sauce. I was given an oral suspension morphine for my pain relief for only a day and then after was given paracetamol and dihydrocodeine and also some mouth was bottles to gargle. I was discharged the second day due to the ongoing crisis of coronavirus. My drain was removed the following morning with ease.

I was able to get up and walk about and I am mobile since. I wouldn't say its very painful but there is slight pain and I would say alot of discomfort with surgery scar healing and mouth healing. I was able to shower 3 days later and change into my clothes without help.

I will keep you updated once my catheters have come out and what is the outcome.

I would highly recommend urethroplasty for those suffering to pass urine. Weak urine flow. Straining to pass urine. Cannot empty full bladder. Blood in urine. Burning sensation. Incompetence not able to pass urine at all. Urethrotomy is a waste of time as the success is 50/50 and the pain is similar to urethroplasty with the only extra being skin missing from the inner cheek.  

Hope this gives hope to all those suffering with urinary problems.

 

User
Posted 25 Sep 2020 at 14:12

Jay

A very comprehensive account of the procedure, very useful for anyone in a similar situation. I was heading for the same op but other issues prevented it happening. Hope the recovery goes well.

Thanks Chris

 

User
Posted 25 Sep 2020 at 14:47

Thanks Jay - that's really helpful. It was something I was offered but I make do with self-catheterising. I may just look at it again. Keep us posted and I hope the recovery continues to go well.

Flexi

User
Posted 03 Oct 2020 at 00:10

Hi I thought I'll give you an update to my urethroplasty surgery. So I went in to hospital 3 weeks post operative to undergo a urethrogram/fluroscopy they inserted dye in to my urethra via another catheter to the additional one I had after surgery they inflated a balloon and took some pictures via x-ray to see whether the graft had healed. This process took 15 min maximum and the catheters for imaging was removed. The process was slightly uneasy and caused some discomfort with little pain.The graft had shown good signs of recovery and I was told that I would be leaving without my catheters today. What a relief that was. So first the nurse took out my urethral catheter and put a stopper on the suprapubic catheter. I was given a cup and jug of water to drink until I felt I could pass urine. Twenty minutes later I went to the toilet to pass urine and wow what a relief that felt I was peeing like a horse. Within another twenty minutes I went for a pee another 2 times. Then my suprapubic catether was also removed i had a scan of the bladder and I was free to go home. Here I am now laying in bed without having to attach night bags to my catheters. 

I feel abit sore in my penis and tummy wall is in slight discomfort due to how long I had it in place. I have a dressing over my suprapubic hole and been advised not to wet it for a week to avoid any infections. 

I have been to the toilet many times since my catheters were removed and feel great no pain. The first time I passed urine in hospital was abit uneasy and there was some blood in the urine and been fine since. 

Abit of info on the healing process of the urethroplasty. My surgical wounds have healed from my testical to my anus and also my inner cheek where the graft was taken from has healed brilliantly. You cant even tell if any skin was taken from my inner cheek. All the stitches from my inner cheek to my surgical wound were all dissolvable. 

The advice from my perspective being a patient of urethrotomy and urethroplasty. They both very uneasy routes but I rather have had gone for a urethroplasty in the first place. I would highly recommend urethroplasty to all the sufferers of stricture disease. 

 

User
Posted 03 Oct 2020 at 10:16

Not the first time a penis has been in a mouth, but I’ve never heard of a mouth being in a penis. Sorry for my puerile sense of humour, I am 64 going on 14.

Hope your repairs are a success.

Best of luck.

Cheers, John.

Edited by member 03 Oct 2020 at 10:18  | Reason: Not specified

User
Posted 03 Oct 2020 at 10:41

Did you try that one with your sister or your mum? 

 

Sorry for my puerile sense of humour.

 

Try with your dad next bollinge John.

 

Thanks good look.. 

 

 

User
Posted 03 Oct 2020 at 10:49

Jayy

Sounds like you are well on the way back to some sort of normality.

Thanks Chris

 

User
Posted 03 Oct 2020 at 11:06
You learn something new every day:

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5717976/

Cheers, John.

User
Posted 05 Oct 2020 at 08:58
Jayy pleased to hear it's going well for you.

I think it's worth mentioning for those having stricture issues that urethroplasty is not always the only option.

I developed a stricture about a year post RARP and it got steadily worse for over two years, eventually getting to the stage that my flow was less than 3ml/second and I was taking up to 10 minutes to pee.

I was offered a rigid cystoscopy and dilation or urethrotomy under general anaesthetic after about a year. I turned it down due to fear of spoiling my contenance. After just over two years I had to give in and had the op. I asked the Surgeon to avoid cutting if at all possible and just do the dilation. He checked it out with a rigid cystoscopy and did a progressive dilation with no cutting. I had a catheter in for five days and once removed I couldn't believe my flow rate. If I let my bladder get well full I could pee just under 30ml/second. Five months on and only a very slight reduction. About a week after catheter removal I was taught Clean Intermittent Self Catheterisation to keep the stricture open which I find difficult but persevere with. I have no regrets about having it done and wish I had done so sooner. With urge and frequency issues a flow of <3ml/sec is difficult to manage, having to suddenly find somewhere discreet to pee when there is no toilet nearby. Now at least I can get it done very quickly. With that and less time spent peeing at night it really has been a life changer for me.

Cheers

Bill

User
Posted 16 Oct 2020 at 00:31

Imita hard to find a current discussion on urethroplasty! So I wanted to ask. If any of you had any symptoms like mine. I’m from the USA and have been dealing with a Stricture  for over 15 years. 

I had surgery last Friday with a BMG graft urethroplasty.  Everything went well my mouth is healing. The bruising and swelling are going down. 

My odd thing is it feels like a tender lump between my testes and under the penis shaft. I’m honestly not sure what it is even.

 

Any help would be appreciated 

User
Posted 25 Aug 2022 at 11:47
thanks for all the stories..

I am at a point where after prostatectomy I have has two bladder neck incisions and each time the neck has closed up after catheter removal.. so I am being considered for urethroplasty. I am not sure if i am a candidate at this stage. the bladder neck incisions just dont seem to work for me..

Dave

 
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