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Posted 16 November 2016 22:07:53(UTC)
It's sometime since I've posted. I have been reading updates regularly. David has completed his RT, & HD Brachythearpy. We have spent the summer gardening, coming to terms with our life changing experiences and we are hopefully beginning to make some sense of it all.
We are both feeling less ' punchdrunk'we went away for a wonderful holiday, this also contributed to feeling ' normal' again, what ever that is.
David is getting stronger & fitter, although he still gets days of feeling tired. He has had an ongoing pain in his lower back and haunches, he's seen our GP and the radiologist consultant ..... none seem to have any suggestions :-( we just hope it's not the dreaded PCa. His bladder is a lot better, and he feels his flow has improved.

It really resonated with us talking about the anticipatory grieving process...lets be honest, we think and wonder about the future.... and what ever it holds. David will always be G9 and he's planning on living a long time yet..... we have soooo much to do. We hope he will....

We have had some conflicting advice from the consultants a) the onco, b) radiologist .... onco wants him to have a scan in January the radiologist is saying 6 monthly PSA tests .... any advice would be welcome. Not having too many cancer appointments has been good, but we are aware of the G9 needs constant monitoring.

On the ED front he tried with the pump and hated it, tried the viagra and it was ok.... but left him with a feeling of being light headed and hungover ....he's keen to keep going and said he had a few sexual feelings again which delighted him. The pump gave him days of discomfort... he felt awful.

It is now over a year since his diagnosis, a journey of tears, laughter fear and now we hope to move in to calmer waters, where we can emotionally heal, find space to plan and think.

To any newbies starting on their journey, talk to each other, be patient with each other... and value times of laughter.... use this site and value the advice here, it has been invaluable to us.
Thanks again
Leila x
Thanked 2 times
User
Posted 02 January 2018 15:47:50(UTC)
Just had David’s PSA it’s still <0.1 and he has one more injection to go, to complete the treatment. He’s happy, we are happy and now planning some holidays. Looking at health insurance and thinking warm sunny places.
A Happy
New Year, and my thanks for the information, sharing of support and experience it has carried me over the bumps on more than a few occasions.
Thanked 3 times
User
Posted 16 November 2016 22:07:53(UTC)
It's sometime since I've posted. I have been reading updates regularly. David has completed his RT, & HD Brachythearpy. We have spent the summer gardening, coming to terms with our life changing experiences and we are hopefully beginning to make some sense of it all.
We are both feeling less ' punchdrunk'we went away for a wonderful holiday, this also contributed to feeling ' normal' again, what ever that is.
David is getting stronger & fitter, although he still gets days of feeling tired. He has had an ongoing pain in his lower back and haunches, he's seen our GP and the radiologist consultant ..... none seem to have any suggestions :-( we just hope it's not the dreaded PCa. His bladder is a lot better, and he feels his flow has improved.

It really resonated with us talking about the anticipatory grieving process...lets be honest, we think and wonder about the future.... and what ever it holds. David will always be G9 and he's planning on living a long time yet..... we have soooo much to do. We hope he will....

We have had some conflicting advice from the consultants a) the onco, b) radiologist .... onco wants him to have a scan in January the radiologist is saying 6 monthly PSA tests .... any advice would be welcome. Not having too many cancer appointments has been good, but we are aware of the G9 needs constant monitoring.

On the ED front he tried with the pump and hated it, tried the viagra and it was ok.... but left him with a feeling of being light headed and hungover ....he's keen to keep going and said he had a few sexual feelings again which delighted him. The pump gave him days of discomfort... he felt awful.

It is now over a year since his diagnosis, a journey of tears, laughter fear and now we hope to move in to calmer waters, where we can emotionally heal, find space to plan and think.

To any newbies starting on their journey, talk to each other, be patient with each other... and value times of laughter.... use this site and value the advice here, it has been invaluable to us.
Thanks again
Leila x
Thanked 2 times
User
Posted 17 November 2016 00:30:43(UTC)

Hi Leila,

Re : '...He has had an ongoing pain in his lower back and haunches...'.

After I had brachytherapy the first few months were just fine, then I developed a slight pain in the nether regions, noticeable when I sat down on a hard chair.  I was also getting slight fevers, it felt like I was going down with a cold.  I mentioned this to my consultant and he immediately prescribed a course of antibiotics to clear up an infection in the radiated prostate.  He didn't need any blood or urine tests to confirm his diagnosis, it seemed like he was half expecting it as a regular side effect of brachytherapy.

On the Viagra front, I find that if you save a few up, and then take them on consecutive days, the effect gets stronger each day.

:)

Dave

Thanked 1 time
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User
Posted 17 November 2016 00:30:43(UTC)

Hi Leila,

Re : '...He has had an ongoing pain in his lower back and haunches...'.

After I had brachytherapy the first few months were just fine, then I developed a slight pain in the nether regions, noticeable when I sat down on a hard chair.  I was also getting slight fevers, it felt like I was going down with a cold.  I mentioned this to my consultant and he immediately prescribed a course of antibiotics to clear up an infection in the radiated prostate.  He didn't need any blood or urine tests to confirm his diagnosis, it seemed like he was half expecting it as a regular side effect of brachytherapy.

On the Viagra front, I find that if you save a few up, and then take them on consecutive days, the effect gets stronger each day.

:)

Dave

Thanked 1 time
User
Posted 17 November 2016 09:44:55(UTC)

Try levitra or Cialis instead of Viagra perhaps?

I can't imagine how a pump can cause discomfort - wrong technique maybe.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard


User
Posted 16 February 2017 17:40:32(UTC)

Hi

I had my brachytherapy on the 29th of April 2013, I had 57 seeds implanted and had a gleason score of 6. My tumor was the size of a malteser, about 10mm in diameter.

Prior to my operation I had problems with my libido and it was found that my testosterone was very low, Serum testosterone 7.1 I think my tumor was absorbing what my body was making, I had a PSA of 8.4. 

After my operation I asked my doctor if I could go on a Testosterone supplement (testogel) as this could help my libido. My own Doctor said I could under supervision. Now I go yearly to see a consultant, after I started the daily treatment at the Heath Hospital Cardiff, to monitor the testosterone.I currently have a normal level of testosterone in my body.

I have been using Testogel  since September 2013, today I was at my local hospital Velindre in Cardiff and my PSA was 0.1 so luckily it has not affected my cancer cells as some might think it would.

I now wake with an erection most days, as I did some many years previous, I still need some help maintaining this and Cialis is the real helper in keeping it going.

The side effects of low dose brachytherapy for me now; are dry ejaculations, loose stools and a need to go very soon after eating, sometimes followed by trapped wind. These symptoms are mostly normal according to my nurse practitioner, who sees many prostate patients.

I can recommend those that need it to use Cialis, I am not sure if you can get the testosterone treatment that I am on?

2ddesign 

User
Posted 02 January 2018 15:47:50(UTC)
Just had David’s PSA it’s still <0.1 and he has one more injection to go, to complete the treatment. He’s happy, we are happy and now planning some holidays. Looking at health insurance and thinking warm sunny places.
A Happy
New Year, and my thanks for the information, sharing of support and experience it has carried me over the bumps on more than a few occasions.
Thanked 3 times
User
Posted 02 January 2018 21:26:51(UTC)

Totally gunning for you. Get travelling , have some fun ,,and enjoy every single day. Good luck x




If life gives you lemons , then make lemonade
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User
Posted 02 January 2018 21:40:51(UTC)

I'm so glad for you, getting such good news at the start of a new year.

Enjoy yourselves, make the most of every minute

We can't control the winds - but we can adjust our sails
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User
Posted 02 January 2018 22:21:06(UTC)
Hi leila great news for you both what a good start to the new year, reading your news also filled me with a bit of positivity as my OH has very similar dx to yours, hes just had HD brachy 29th december then onto 5 weeks external beam radiotherapy starts 15th jan, hes also to remain on zoladex for 2years, its good to be able to see that this awful journey does have some good outcomes..good luck sending love and long may it continue..jo.xx
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User
Posted 03 January 2018 15:57:04(UTC)

Thanks, for the lovely responses. j.t. It is hard dealing with this horrible disease. It has taken us a long to settle,down grappling with the enormity of the situation. Having said that, we also get times of fun, joy and lots of laughter. David found the HD Brachy quite easy going, but found the EBRT hard going, his sleep patterns were poor, and he felt extremely fatigued, though he did make himself walk an hour every day. He had to stay away from home to have the treatment as we live very rurally, he found this hard going as he’s a real home bird. It has taken him a while to regain his strength. He still gets days of fatigue, but they are less. The Prostrap has caused fatigue and all the other expected symptoms. Having said all that we have painted the outside of our house, grown all our own veg, and managed to do some changes to our garden. We are up beat most of the time,some days it’s hard to be positive. David is 67, fairly fit and keen to squeeze every bit of life he can. We are both anxious about how he will be when the Prostrap finishes, we hope his PSA stays low, and we can get on with the stuff of life. In the meantime back to exploring holiday options.

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User
Posted 08 January 2018 13:45:58(UTC)

Any advice in travel insurance please, we a planning a trip to europe. Just to recap David is G9 T3b he's on hormone treantent until March 2018, he has hypertension and also takes tamsulosin. He currently feeling well and his PSA is <0.1 

I have asked this before, but things change so Im just checking for advice. We have the EHIC.

 

Thanks Leila. 

User
Posted 08 January 2018 14:40:44(UTC)

Hi Leila

i used insurancewith last year for holidays in Europe found them really good, i am terminal and i think for myself and the rest of the family with everything covered was £140

i have just had a promo code sent through from them for 20% off it is "sun20"

Hope that helps

Si

PS just noticed on the email

* Please note, our online prices automatically include a 15% discount. The 'SUN20' code gives you an additional 5% off, making a total saving of 20% against our call centre prices

But every little helps

Don't deny the diagnosis; try to defy the verdict
 
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