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Differeing views from different oncologists re best treatment - bewildered an frustrated

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User
Posted 26 Apr 2017 at 00:04
Hi all

OH has was due his 6th and final docetaxal infusion this Thursday. He Went for his usual pre meet with the oncologist today to find yet another oncologist looking after him now (this will. D the 3rd in 5 months). This new one has said that she doesn't think the docetaxal is doing OH any good as his bone mets are too small and the chemo has nothing to attack. The first dr who put him on the treatment was very clear that recent trials had proven that early chemo in cases such as Graham's had shown to be beneficial; now Both of these drs would have been looking at the same bone scans and the same size mets so it can only be a diierence of opinion can't it? Very frustrating and disheartening as he had gone through five sessions putting up with feeling rubbish, some side effects and two weeks in hospital all to be told it was a waste of time. In fact the oncologist today sId it was just poisoning his body for minimum if any effect.

Has anyone else experienced this? This has made me very uneasy Graham Iis G10 with bone mets. The cancer is of the aggressive type. He says he feels like he is being experimented on depending upon the different views of who ever he happens s to see.

User
Posted 26 Apr 2017 at 00:13

Really sorry to hear this, Mountain stream and all I can say is thank God this new onco came in at session 6 not session 2 ... she sounds a bit out of date to me as all the research is indicating that chemo helps the HT to be more effective for longer afterwards. We have a member on here who has been offered early chemo even though he doesn't have any bone mets so I really don't thing OH has wasted his time.

On the other hand, I think lots of men are experimented on in one way or another - everything they learn is going to improve outcomes for other men 3 or 5 or 10 years down the line.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 28 Apr 2017 at 09:54
Quote:

Quote:
she doesn't think the docetaxal is doing OH any good as his bone mets are too small and the chemo has nothing to attack

This really does not make sense. Either there are mets or there aren't. If there are, the chemo will attack them - and the smaller the mets, the more effective the chemo will be.

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User
Posted 26 Apr 2017 at 00:13

Really sorry to hear this, Mountain stream and all I can say is thank God this new onco came in at session 6 not session 2 ... she sounds a bit out of date to me as all the research is indicating that chemo helps the HT to be more effective for longer afterwards. We have a member on here who has been offered early chemo even though he doesn't have any bone mets so I really don't thing OH has wasted his time.

On the other hand, I think lots of men are experimented on in one way or another - everything they learn is going to improve outcomes for other men 3 or 5 or 10 years down the line.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 28 Apr 2017 at 09:54
Quote:

Quote:
she doesn't think the docetaxal is doing OH any good as his bone mets are too small and the chemo has nothing to attack

This really does not make sense. Either there are mets or there aren't. If there are, the chemo will attack them - and the smaller the mets, the more effective the chemo will be.

User
Posted 29 Apr 2017 at 23:59
Thanks everyone. We have an appointment in May and I hope to meet with the oncologist. It seems such a bizarre and somewhat cruel thing to say to someone who has gone through chemo that I am wondering if ther may have been a communication misunderstanding between the dr and OH: I. Am thinking she may have stopped the last chemo because OH's leg had swollen, we had a phone call from the local hospital from the lymphedemic specialist nurse she said Graham had been referred by the oncologist. So maybe she wanted to find out what was going on And graham hadn't understood anyway he has seen the nurse now and been told he has lymphedema. A scan is being organised to try to find out the cause. I have posted elsewhere for advice on what to expect from this condition.

We are worried that the cancer has spread to the lymph glands now.

 
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