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User
Posted 21 Jul 2017 at 12:27

Hi update,recieved phone call from my nurse yesterday 20th,gleason right 4+3=7,left 4+4=8,dont sound to good, meeting with specialists on tuesday to get all numbers and result of mri,and talk about treatment.

jim

HOWAY THE LADS
User
Posted 21 Jul 2017 at 17:03

Jim, of course you could have hoped for better scores but they're not disastrous, by any means. There will be lots of treatment options, more every year, and you will have lots of years in which you'll be able to use them, if necessary. Get yourself fit, the better to handle the treatment. Get into a positive frame of mind, because that helps, too. Adopt a sensible diet, no excesses or fads, one that will be good for your heart in particular. Then prepare for the long haul on a journey that none of us wanted to take but which is about living life to the full, not worrying about dying.

Good Luck and keep in touch via this forum as you make progress.

AC

User
Posted 21 Jul 2017 at 17:03
Hi Jim

Well that's one more piece of the jigsaw in place. Not the highest score nor the lowest but at least you now know.

If you are able to take someone along on Tuesday it can be helpful and make notes to help you remember what has been said. If I didn't quite understand something then I got them to draw diagrams for me which I kept. Make sure you feel comfortable with your understanding of what you are being told as that helps you to feel that you are still in the driving seat.

I found that the more I knew the more chilled I was about the whole thing.

All the best for Tuesday and let us know how you get on.

Kevan

User
Posted 03 Sep 2017 at 12:29
Despite your other problems you sound as though you're on top of this Jim. Well done to Royal Mail for the support and hope that all goes well with your return to work.

Good to see the PSA results.

Keep on trucking 👍

User
Posted 18 Nov 2017 at 11:10

Hi, phone 111 - you may be going into urinary retention

Howay the lads, indeed :-)

Edited by member 18 Nov 2017 at 11:11  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 15 Dec 2017 at 16:15
A great feeling isn't it ? Glad that you are feeling upbeat after the treatment. Things do take a little while to shake down again so hopefully in a couple of weeks the bowels will have improved.

The tiredness is pretty common but I found that occasionally I would indulge it but mostly I made myself work through it and I found that this helped me a lot.

Spoil yourself now - you deserve it and don't forget to spoil the OH as well.

Have a lovely Christmas.

Kevan

User
Posted 12 Jan 2018 at 13:11
Oh wow. I can understand why you are feeling chuffed - great news.How are you feeling generally now?
User
Posted 12 Jan 2018 at 22:32

Well if you make it up the stairs for the last game of the season, I might have a drink with you in the bar afterwards!

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

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User
Posted 21 Jul 2017 at 17:03

Jim, of course you could have hoped for better scores but they're not disastrous, by any means. There will be lots of treatment options, more every year, and you will have lots of years in which you'll be able to use them, if necessary. Get yourself fit, the better to handle the treatment. Get into a positive frame of mind, because that helps, too. Adopt a sensible diet, no excesses or fads, one that will be good for your heart in particular. Then prepare for the long haul on a journey that none of us wanted to take but which is about living life to the full, not worrying about dying.

Good Luck and keep in touch via this forum as you make progress.

AC

User
Posted 21 Jul 2017 at 17:03
Hi Jim

Well that's one more piece of the jigsaw in place. Not the highest score nor the lowest but at least you now know.

If you are able to take someone along on Tuesday it can be helpful and make notes to help you remember what has been said. If I didn't quite understand something then I got them to draw diagrams for me which I kept. Make sure you feel comfortable with your understanding of what you are being told as that helps you to feel that you are still in the driving seat.

I found that the more I knew the more chilled I was about the whole thing.

All the best for Tuesday and let us know how you get on.

Kevan

User
Posted 03 Sep 2017 at 11:17

Update- been on 6 month decapepyl now for 1 month, flushes over night but thats all,psa down from 31.5 to 9.2.But apparently i need a turp op before rt. in the last week i have been diagnosed with emphysema /copd and border line diabetes.But hey life goes on, and I'm going back to work tomorrow (monday) phased return hgv driver for royal mail, work have been great just do what i want over the next few weeks, so yes feeling good.x

HOWAY THE LADS
User
Posted 03 Sep 2017 at 12:29
Despite your other problems you sound as though you're on top of this Jim. Well done to Royal Mail for the support and hope that all goes well with your return to work.

Good to see the PSA results.

Keep on trucking 👍

User
Posted 18 Nov 2017 at 09:00

Hi everyone, been a while since i was on here, just done 5 days of rt 15 to go, i am on tamsulosin to help with urine flow it works well,but after my 5th rt session my urine flow has changed to basically a line of drips that is late last night and this morning.
gleason 4+4=8
t3b
stage 4
tumor out of prostate but as of now no spread

and it is saturday so who can you phone for advice, or maybe we shouldn't get ill on a weekend

HOWAY THE LADS
User
Posted 18 Nov 2017 at 11:10

Hi, phone 111 - you may be going into urinary retention

Howay the lads, indeed :-)

Edited by member 18 Nov 2017 at 11:11  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 18 Nov 2017 at 15:50

Thanks Lyn,seems to be better this afternoons will speak to radiographers on monday

HOWAY THE LADS
User
Posted 15 Dec 2017 at 15:14

Hi all,Finished the rt last friday,and yes i rang the bell, things are sort of ok, different bowel movements, and when i need to wee i NEED to wee now, but taking it easy as I'm getting tired easily.And I've grown hair on what used to be my bald area,Yes life is ok at the moment and the lovely Jacqui is taking good care of me.

HOWAY THE LADS
User
Posted 15 Dec 2017 at 16:15
A great feeling isn't it ? Glad that you are feeling upbeat after the treatment. Things do take a little while to shake down again so hopefully in a couple of weeks the bowels will have improved.

The tiredness is pretty common but I found that occasionally I would indulge it but mostly I made myself work through it and I found that this helped me a lot.

Spoil yourself now - you deserve it and don't forget to spoil the OH as well.

Have a lovely Christmas.

Kevan

User
Posted 12 Jan 2018 at 11:50

five weeks on from rt and psa score results today are 0.4----------celebration time

HOWAY THE LADS
User
Posted 12 Jan 2018 at 13:11
Oh wow. I can understand why you are feeling chuffed - great news.How are you feeling generally now?
User
Posted 12 Jan 2018 at 19:23

Hi Kevan,
Generally feeling a bit weary and a bit sleepy now and again, just got to get the emphysema sorted then its all systems go, as i need the stamina to get up to the 7th tier at st james' park.
cheers..mate
jim

HOWAY THE LADS
User
Posted 12 Jan 2018 at 19:37
Don't overdo it Jim but I hope you manage to get up there soon. Always good to have a challenge.

All the best

Kevan

User
Posted 12 Jan 2018 at 20:51

They have a lift to 7th level so i go up in lift and out down the stairs,i just consider the stairs a challenge, when i get up the stairs ill know I've cracked it
cheers
jim

HOWAY THE LADS
User
Posted 12 Jan 2018 at 22:32

Well if you make it up the stairs for the last game of the season, I might have a drink with you in the bar afterwards!

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 12 Jan 2018 at 23:28

Ok see you then, so you're a chelsea supporter, same level 7 as me,dont use the lift tho
jim

HOWAY THE LADS
User
Posted 13 Jan 2018 at 01:01

That's a very big assumption :-E 

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

 
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