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Don't know where I am

Posted 16 November 2017 15:15:53(UTC)

Six weeks ago I was healthy.

Then following a blood test at the GPs on a totally unrelated issue found a PSA 6.4.

Referral to hospital, MRI and biopsy diagnosed prostate cancer (T3 Gleason 4:3)

Meeting with consultant recommended robotic surgery planned for the 13th December. Arranged for bone scan but wasn't expecting to find anything.

Bone Scan last Wednesday. 

Telephone call on Tuesday this week there are shadows on my ribs and more test are needed.

Before Tuesday I thought I had a grip on things and now I don't know where I am.


Posted 16 November 2017 16:24:51(UTC)

Alan, you are still the same man but you have a chronic condition which can be treated in a variety of ways to give you a long and satisfying life. Men on here with far worse numbers than you have survived more than ten years. With new treatments almost every year coming on stream, you should live out your normal life span. No point in me saying don't worry, because I know you will. That's normal, but this phase will pass and you will see the light at the end of the tunnel. Focus on the positive and build your determination to master this thing - don't let it rule your life.


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Posted 16 November 2017 16:26:03(UTC)

Hello Alan and welcome to the site that nobody really wants to be a member of!

That first diagnosis is always a shock and takes a bit of getting used to.

I can't offer advice as your situation is different from ours but I am sure somebody will be along to give you encouragement.

Best Wishes


We can't control the winds - but we can adjust our sails
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Posted 30 November 2017 16:25:02(UTC)

Still don't know where I am. PET scan for tomorrow has been cancelled.

Posted 09 December 2017 07:45:46(UTC)

Had the PET Scan yesterday. Every thing happened on time and in an efficient manner. Results should be with the consultant Monday.

Posted 09 December 2017 08:16:06(UTC)
Hi Alan
Glad that the scan went OK and that it was on time as well.
That's one more step into the future which is how this PCa thing works. You'll get the results which adds to your knowledge, you have a think about it and a chat with your team and them move forwards again.
Let us know how you get on.

Kind regards

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Posted 09 December 2017 09:38:57(UTC)

Good luck for Monday Alan.

We can't control the winds - but we can adjust our sails
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Posted 12 December 2017 10:34:47(UTC)

Spoken to the Consultant, who is baffled by the signs on my lower posterior ribs. Says it is very rare for prostate cancer to have spread to the ribs and my PSA should be over 20, mine is at 7.

Going ahead with the robotic-assisted laparoscopic prostatectomy surgery tomorrow.

We'll see where we are after that.

Posted 12 December 2017 10:49:01(UTC)

I am surprised at your doctor's comments - spread to ribs is quite common as you will see by looking at some of the other member profiles on here. And PSA can't be relied upon to indicate how advanced a prostate cancer is; Si_Ness had a PSA of around 3 but bone mets all over his body. Was he actually the consultant or a junior doctor?

Good luck tomorrow.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

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Posted 12 December 2017 12:06:07(UTC)
Hello Alan,
I had similar experience with shadows on my thigh, I had a PET scan and multiply other scans on my left thigh , nothing came of it, still went ahead with Robotic surgery & if you read my profile you will see my experience with PCa, in the meantime best of luck.
Kind Regards
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