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Nagging leg pain

User
Posted 20 December 2017 16:06:51(UTC)
Hi all , just wanted to pass this by you !
For months now I have had awful sharp pains in my left knee , almost leading to private surgery. The x-ray showed mild Osteo-arthritis and a torn cartilage. I cancelled the surgery as simply hydrating myself daily ( something I’d forgotten to do ) and taking glucosamine and chondroitin and Turmeric seemed to fix it. By the way , I am using the new oral turmeric spray as every time I’ve tried the tablets I turn into a diorrhea factory with nausea and cramps ! It really really works. If I stop it the pain returns in a week.
My problem is that BOTH my legs ache from hip to toe all the time , especially when I rest at the end of the day. I mean really really ache like toothache and it’s st the stage where I can’t sleep or it wakes me etc. Pretty much equal down both legs. I explained this 10 days ago to my Onco but he doesn’t feel it is Mets despite my post-op psa having risen to 12 now. It’s quite a new thing and simply awful. Does anyone else have this ? IAre bone Mets like this ? Are they sharp or aching. Naturally in my position I am panicking , but assured it’s ok. I am only 50 but have had a very manual career and at present am a care assistant which is very manual work with 7 mikes per 6 hour shift minimum. I also walk our dogs 45 mins per day.
I am literally hobbling and in agony every day at 50. Makes me sad when I see people out running my age. I can’t run at all ever which is sad with a 7 yr old boy :-((
Any thoughts thanks
Chris J



If life gives you lemons , then make lemonade
User
Posted 20 December 2017 17:54:30(UTC)

Sounds like the pain John had when on Cialis - are you still taking it?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard


User
Posted 20 December 2017 18:01:03(UTC)

Yes Lyn
Been on low dose for 18 months I suppose but this level of pain is very new. Cumulative effects do you think ?




If life gives you lemons , then make lemonade
User
Posted 20 December 2017 18:20:25(UTC)

I take it you haven't hurt your back, or strained it.

Could be referred pain if you have

We can't control the winds - but we can adjust our sails
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User
Posted 20 December 2017 19:57:30(UTC)

Chris

Spinal fusion L4/5 (1974 ish) was told not surgically successful but pretty good to me from what it was. So back but mainly legs pain has been ongoing. Heavy work legs pain is short lived as in a few days. Sustained medium heavy work causes the longest lasting legs pain. When I get to the limping stage I've learned to stop/slow down otherwise it's not going to improve. So something non PCa related is spine around the L4 area sadly not helped by your work?

Ray

User
Posted 20 December 2017 20:59:51(UTC)

Hi Chris,

One thing that we all learn about PCa treatment is that not everyone responds the same way to every treatment. Makes it all so confusing and frustrating.

Maybe, you are reacting to the cumulative effects of 18 months of Cialis? Maybe not?

I've been on it for 4 years and 6 months, nearly 5, no side effects, apart from the first few weeks. And then the usual, warned of, leg aches, head aches etc. FOR ME it was worth working through.

Keep all your options open mate. Ask about every possibility.

Above all, enjoy Christmas.

x

Be content with your choice of treatment at the time you make it. Then make the best of every minute, every hour, every day.
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