We saw the Urologist about the bone scan etc at the end of November. He was very negative about the spread to the bones, said only 1 in 100 cases did this, said there were lots of treatments to go through but needed to start on HT immediately, to be honest much of it was a blur after he said it had spread to the shoulder. He may have said he was turning it over to the Oncologist, I really don't recall. We got the appointment letter in December and turned up to see her only to find out the appointment was for January, I had just looked at the day not the month or year! When we finally saw her she was much more positive and went into more detail, showing us the scan etc. and explaining that he was already on the best treatment possible, but she would like to try chemo. As it happened he only had one treatment of chemo as other things complicated it too much. At the moment things are going well and the HT is working well.
If you do go on to chemo I would just say it is very important that he takes his temperature regularly, so when they talk about temperature take notice.
I found the Oncologist and their nurses really helpful, much more so than the Urologist, I got the feeling he was a bit out of his depth once it had spread out of the Prostate.
May be an idea to keep a diary of all your appointments, it is amazing how quickly things get forgotten, I have found the last 8 months an almost total blur!
I cope by just taking each day/week as it comes, I try not to look too far ahead.
Edited by member 30 Jun 2018 at 23:01
| Reason: spelling mistake