I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error

Simon Story Chapter 2

User
Posted 26 August 2017 10:52:19(UTC)

Hope the rest of the treatment goes well and that you have a good debate with Jamie before final decisions. You say no HT but then say Abbi, isn't that a form of HT. would they switch you to enzalutimide, working well for me? Await with interest your next steps! Good luck as always

Thanked 1 time
User
Posted 28 August 2017 20:09:27(UTC)
So you knowI have I been holding back from posting ( I have been trying to research a plan ) and the fact is I have come up with diddly squat and , didly squat being an old army saying means if you have no idea what to do next then go back to plan A.
Plan A being obviously steak and Fosters it's served you well in the past and it's tried and tested 😉

Si my lovely friend you are the plan , you are the controller of your destiny and a true SuperMan . ❤️

BFN
Julie X
NEVER LAUGH AT A LIVE DRAGON
Thanked 1 time
User
Posted 23 September 2017 08:49:49(UTC)

Thought i would update after my Cabazataxel journey, was hoping to stop all treatment till after Christmas but results do not look that good.

Cycle 1 & 2 PSA rise, cycle 3 & 4 PSA drop and cycle 5 & 6 PSA rise.

My last cycle was on Monday so this coming Monday i will have another PSA test and then decisions need to be made, this must be the first time that i do not have a clear plan in my head.

I met with Jamie after cycle 5 and he was hoping the PSA rise was just a blip, so decisions decisions, after nearly 5 years of sharing my body with Mr Cancer and managing over 2 years of no treatment at all, I will meet Jamie again in a couple of weeks to discuss, he is going to wait to listen to my take on it as he said i have had the most unorthodox approach to treatment of any patient he has had, but some how it has worked for me.

Si xx 

Don't deny the diagnosis; try to defy the verdict
User
Posted 23 September 2017 09:45:26(UTC)

So not sure what you might do next. Sounds as if you need something? Abby again, enzalutimide or..____be interested to hear what is resolved with J. How are you feeling? And what are the scans like? They will be as important as the PSA.

My turn next week, feeling good on the enzo

Thanked 1 time
User
Posted 24 September 2017 15:34:50(UTC)
Hi Si,
Is going back on Abbi an option ?
Trevor has tolerated it really well and it's been over 2 years now .
I am sure that by the time you see Jamie one of you will have a plan.
Always thinking of you.
BFN
Julie X
NEVER LAUGH AT A LIVE DRAGON
Thanked 1 time
User
Posted 24 September 2017 15:42:03(UTC)

Good luck Si with whichever path you choose to take

We can't control the winds - but we can adjust our sails
Thanked 1 time
User
Posted 24 September 2017 19:24:32(UTC)

Si
Sounds a bit tipsy turfy.
I'm still on the enzo after 3 years and it's still working for me.
I don't know if it's an option for you but it's certainly better for me than the abbi.
I hope it all doesn't spoil your Christmas with the children.
All the best
Paul

Thanked 1 time
User
Posted 24 September 2017 21:24:04(UTC)
Si

I don't understand all these different medications, but I am sure you and Jamie know what you are doing. Take care of yourself and your family.

Thanks Chris
Thanked 1 time
User
Posted 24 September 2017 21:34:14(UTC)

I'm pretty confident when you and Jamie get your heads together you will come up with something be it orthodox or unorthodox

How do you feel in yourself Si

Bri

Thanked 1 time
 
©2017 Prostate Cancer UK