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Just a update on Eric

User
Posted 29 May 2014 13:00:34(UTC)
Hi just a wee update on Eric's journey.Has completed his 3rd Chemo but no change so far,consultant can't change dose due to his pther health problems. He is doing well on Chemo no sickness ect just the worst thing that he was worried about his dam hair.Carolann (daughter) has started him on a course of Nioxin and to his deliight it dose what it say's on the tin happy days .Eric wouldn't allow the picc line didn't want the discomfort or the problems that come with this procedure
GP's Nurse can alw

ays manage to get his bloods without any problem.Chemo Nurses will manage his treatment just fine.Eric was thinking the cost invoved with this picc line when there is always another route rather than this one.The only other problem is what Mo calls jelly legs spoke to consultant she said straight away that this is caused by steriods so changed to 1 a day now and the problem has stopped not much else to say he's hanging on in there.
Carol
User
Posted 04 June 2014 19:29:40(UTC)
Hello Allison
Thank you for the reply he is strong and a character.As a family we deal with this with humour love and a little strength.He is still enjoying going for his chemo not the treatment part still in the ward with all the lovely ladies having their chemo no other men think he enjoys the attention.Eric is a wee bit peed off with all the sleeping he is doing sometimes I go up stairs to check if he is ok and I find myself giveing him a wee poke oh dear better refrase that it means a nudge.
Carol
ps hope all is well at your end

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User
Posted 29 May 2014 15:26:54(UTC)
Hi Carol, so pleased to see that Eric is tolerating chemo well so far and that the practice nurse is so much better than the hospital staff at getting blood out of him! Have his taste buds been affected at all?
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard


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User
Posted 04 June 2014 18:36:37(UTC)
Hi Lyn
Have his tastebuds been affected No, but was prepared with your frozen pineapple chunks,between you and Barry him with his lawns and you with pineapple chunks what a pair.
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User
Posted 29 May 2014 14:38:00(UTC)

Hi Carol

Glad Eric is hanging in there and glad any problems to date have been solvable. Neil has had one chemo, worse thing is anticipating all the possible side effects and ,managing the usual consequences of the disease alongside.

Anyway, sending love to you and Eric, hope he is kept as comfortable as possible through all this,

 

Love, Fiona.

 

User
Posted 29 May 2014 15:26:54(UTC)
Hi Carol, so pleased to see that Eric is tolerating chemo well so far and that the practice nurse is so much better than the hospital staff at getting blood out of him! Have his taste buds been affected at all?
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard


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User
Posted 29 May 2014 16:19:33(UTC)
Hi Carol
Glad to see an update from you, good for Eric, he is doing well despite everything - I have a feeling he is a strong character and that can be very helpful when dealing with illness.

Let him know we are wishing him well won't you?

Lots of love
Allison
User
Posted 29 May 2014 22:52:59(UTC)

Hi Carol,

So glad that Eric is tolerating the chemo, thank you for finding the time to update us, when we don't hear anything for a while we all start to worry.

I can understand Eric's concern for his hair, Trevor doesn't have these issues. See avatar. Eldest son James would be devastated he has a huge afro If you would like pics of the afro please feel free to email me. Honestly it is amazing.

Keep strong as only us wives can be.

Thinking of you and Eric

BFN

Julie X

 

NEVER LAUGH AT A LIVE DRAGON
User
Posted 30 May 2014 01:16:08(UTC)
Hi Carol,
Pleased to see that things are going relatively well. Like Eric I was concerned about hair loss but how vain is that and now it's a good excuse to wear the latest in the headwear fashion stakes. I also had the shaky legs syndrome but after a day or so it wore off. Beware of " thinning skin" mine has got very thin and with the slightest knock I either bleed a lot or bruise quite badly.
Keep up the good fight
Barry (alias Barrington )
User
Posted 30 May 2014 01:18:50(UTC)
Apparently you are also having trouble sleeping TG?
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard


User
Posted 30 May 2014 08:50:36(UTC)
Good start Carol, really hope things keep positive for you both.
Xx
User
Posted 30 May 2014 10:02:48(UTC)
Hi Carol,
Excuse this interlude,
Lyn, yep awake late and don't sleep more than a couple of hours at a stretch. Note you have same problem....we will have to get together one night and share our experiences💏. I'm sure Karen and John wouldn't mind👿😡🙀
Normal service now resumed Carol
Life is for living
Barry (alias Barrington )
User
Posted 04 June 2014 18:36:37(UTC)
Hi Lyn
Have his tastebuds been affected No, but was prepared with your frozen pineapple chunks,between you and Barry him with his lawns and you with pineapple chunks what a pair.
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User
Posted 04 June 2014 18:50:53(UTC)
Hi Fiona,
Fingers crossed Niel can sail through his Chemo as Erichas so far just his hair but that has stopped now he's happy vanity he puts it down to the Nioxin treatments that our daughter has recomended. Me I wonder if it is no change so far.
Eric's given Metoclopramide for sickness as standard take 3x day then when required I give Eric this every single day with no breaks GP ok with this so dont know if that is what helps but its not doing any harm.Best Wishes to you and Niel
Carol
User
Posted 04 June 2014 19:29:40(UTC)
Hello Allison
Thank you for the reply he is strong and a character.As a family we deal with this with humour love and a little strength.He is still enjoying going for his chemo not the treatment part still in the ward with all the lovely ladies having their chemo no other men think he enjoys the attention.Eric is a wee bit peed off with all the sleeping he is doing sometimes I go up stairs to check if he is ok and I find myself giveing him a wee poke oh dear better refrase that it means a nudge.
Carol
ps hope all is well at your end

Thanked 2 times
User
Posted 04 June 2014 19:41:43(UTC)

Hello Carol,

Really loved your last post, this is the first time that I have smiled in days so thank you. Your way of coping sounds very similar to ours.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 04 June 2014 19:48:57(UTC)
Hi Julie
thank you for the reply I remember us discussing our OH think Trevor was kojack hope I got that one right.
Carolann(daughter) said im getting a bit special lately and said it wont be long before she locks me in a cupboard if I get any worse I blame it on looking after my Mum every day now she is special wee sole trying hard not to let them put her in a home as long as I can look after her in her own place.
Hope you both are in a good place at this moment in time
Carol
User
Posted 04 June 2014 19:57:32(UTC)
Julie our posts must have crossed there probably because I am so slow was going to blame the keyboard on my phone but I think I have used that one before. I agree with you on the humour part its the best thing Eric wouldn't have us any other way its hard work making a Glaswegin laugh we have a strange sence of humour.
Carol
User
Posted 04 June 2014 20:42:29(UTC)
Julie forgot to add we also use that word wee poke for other things to.When I was in Whitney for a wedding I asked my nephews if they get the pokie man here got some strange looks it means in English icecream man I think you ask for an icecream cone we ask for a pokie hat no wonder they want us out of the UK I want to stay.
Carol
ps now you know why you know why I sound so uneducated Hey Ho
User
Posted 06 July 2014 13:08:39(UTC)
Just a wee update on Eric's journey thats #5 chemo completed as I had posted on another thread he did not see onco on Thursday so she was unaware of his infection breathing and he has been taking his. heart spray as he knew he would not be having chemo all he wanted was to reach the halfway mark naughty man.
Having scans before next round thats just the norm his.xrays showed more spread on other sides yet psa still dropping will no more after scans .Eric dosen't worry about waiting for results he said it wont change his dx .He still has no side affects from Chemo except his hair was falling out but that has stopped now he puts it down to the Nioxin treatments that our daughter recomended it is also recomened in the Beatson Hospital.Men and vanity.
Carol
User
Posted 12 July 2014 14:03:20(UTC)
Phew what a mixed couple of days its been.Eric not been so good wont see GP hospice or hospital, just said I'm not that bad .
He feels my help is more needed at my Mums house and she should be the priority now.
For people that read my posts I look after my Mum(82) at her home 3 to 4 times a day she has arthritis and what we call a wee bit special at times.I always phone her before I go to her house she told me not to walk over on Thursday as all the girls from work had come to see her(she dosen't have any visitors).The girls were from the program loose woman that she watches every day but thinks they are there to see her Blees Her.
On Friday I had to give her the bad news that her younger sister had lost her fight with lung cancer yet another person who did not know until dx only 2months ago.
This morning it seems to have set her back a bit asking if I spoke to her Dad to tell him about his daughter.Funeral will be on Friday and Eric said he will make sure he is.well enough to drive her that day and help with her mobility issues what a man .just trying to imagine Eric.trying to help Mum and me helping Eric.Hey Ho just another day in the Hunter household,can I go back to work its much easier.
Thank you for.reading this I feel better now that I have just put how I was feeling thats what I like about this forum just say how you feel as we.all have some off days
Carol
User
Posted 12 July 2014 19:39:12(UTC)

Hi Carol,

What a difficult time you are going through what with Eric's health and the family bereavement. You are in my thoughts, some days you wonder how much harder it can get !

 

Love, Fiona.

User
Posted 12 July 2014 20:26:55(UTC)

Hi Carol,

My goodness what a time you are having at the moment, life can certainly test us at times. I hope you can persuade Eric to go and get help if he needs it although I can understand why he is holding back.

I will be thinking of you all on Fri, I am glad you feel better for posting.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 12 July 2014 20:50:21(UTC)
Hi Carol, you also have to look after yourself. Have you considered looking at getting some support for your mum from the local authority or at the very least a carers assessment for yourself

Bri
User
Posted 12 July 2014 21:58:55(UTC)
Hello Fiona Julie,
Thank you both for the replys we all have days that you feel what next no doubt something else will happen but hey thats life.Well fingers crossed that was my last call round to mums given her meds got her washed and nightie on.she seems ok within herself.Erc not so good took his temparature as he was soaking with sweat but freezing his temp is really low still wont let me call anyone I always respect his wishes you know how stuborn our OH are when they get to this stage in dx anyway I am sure he will be ok hes a strong one.
Julie hadn't forgotten about the wee bizzem word had to think how I could explain it but I call Carolann that sometimes so its not bad my Grandad never swore so rather than say you wee bu***r would call you a wee bizzem. Yes to the Billy Connley did use the phrase.

Carol
User
Posted 12 July 2014 22:33:57(UTC)
Hi Bri
I thought someone would ask that question thats a long story try to make it brief this is just the norm for me now.I did get her carers in 3 times a day for personal care making sure she was washed and dressed meds given and personal night care but I still had to go round to visit her it didn't workout on both sides so its back on me she wo.t let them in the house now.I promised mum I wouldnt let anyone put her in a home so a promise is a promise and no I am not an only child there is five of us but they dont speak to her anylonger thats family for you.
Feel I have aged 10years since giving up work I have help from our daughter when she has a day off work so Im not alone.
Thank you for the concern I am turning into a right little winger
Carol
User
Posted 13 July 2014 07:30:32(UTC)

You are not a whinger wee wifie. ~You appear to be an angel in disguise ! 

Far from it. I've been in a mildly similar situation where you try to juggle family life and caring for somebody else but that was without my man's cancer popping into the equation.
If you feel you are whinging, and feel it helps then - whinge away on here.
We are all listening and feeling for you.
Just a few minutes a day for yourself can help. It doesn't have to be much. Just a quiet place to empty your mind or listen to a bit of music.
Otherwise you'll be like an elastic band and just snap.
Take care. You are doing a grand job.
Sandra

We can't control the winds - but we can adjust our sails
User
Posted 13 July 2014 07:54:41(UTC)
Haha....thanks for clarifying that Sandra. I was trying to work out if Carol was saying she had become a Tory ( right winger) or joined a football team as a right winger.

Carol
As Sandra says you are not a whinger. Sometimes just writing down how things are can be very therapeutic. So sorry to hear of the difficulties with carers and family. But make sure you do think of yourself now and again

Bri
User
Posted 13 July 2014 09:28:01(UTC)
Good morning Bri good job Sandra can spell if Julie read that she would think it was one of my Scottish words.
Carol
User
Posted 13 July 2014 09:31:32(UTC)
Posting on here will be a great psychological help to you. You need all the help you can get so keep whinging away!!
Stay Calm And Carry On.
User
Posted 13 July 2014 10:01:28(UTC)
Hi Carol what a tough time you are having... it must be a huge strain on you. Yoou most definitely are not a whinger and letting go on here often helps trust me!

I know you say Eric is tough one and stubborn but please get him to see a dr if his temperature is low or high and he is sweating profusely. I do not want to be a worry wort or to scare you unnecessarily but this can be an early sign of a bigger problem. You should have been given a special chemo log book in that there are a set of conditions to look out for graded green, amber and red. It should also give you a number to call if you are worried and want to discuss it.

I would not forgive myself if i diid not say this to you, if Eric has weakness in his legs or any back pain alongside the sweating then please make that call better to be reassured ...or of course you could tell me to bizzem off and stop fretting!!
Xxx
Mo
User
Posted 13 July 2014 11:28:08(UTC)
Thank you Mo I always take your advice and please never hold back on anything as when I joined this forum Mick and Eric had much the same journey you helped with Eric starting Chemo .We have the book that is why I take his temp he was in the red colum its not the first time he has been there last time called the helpline on record booklet was told to call 999 he wouldn't allow me he was fine the next day.Eric does have spinal mets and I remember your warning of. spinal compression (is that what you were warning me about) Eric's attitude is that he is dying getting what treatment is avaliable at this stage.(hope I havenot offended anyone with Erics hey ho feelings but that has always been his nature)
Mo thankyou again how are you?
User
Posted 13 July 2014 14:19:32(UTC)
Dear Carol,

What a remarkable woman you are! To be going through all this and still keeping your sense of humour..you really ARE an angel in disguise.

My wife and I fully understand the mountain you have to climb daily. We know the feeling, So much care to give and so little time for yourself.


By the way, I did leave a message in your inbox here a few weeks ago. If you find it, can you let me know?


Warmest wishes,


George and Lynn
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User
Posted 13 July 2014 15:52:54(UTC)
Carol
Yes it is SCC i am. alluding to unfortunately the profuse sweating happened to mick a couplle of times before both of his SCCs. I know Eric is taking things as he does but early treatment can be the difference. Regrettablhy although it is talked about all the time it is rarely spotted even by so called specialists. It usually takes a lot to convince a GP or a and e junior doctor that they could be dealing with this.
If Eric feels ok and has no other symptoms it may bbe just HT or something. I hope so as there is little you can do if he wont get it checked out.

I am doing ok thanks pottering along all quiet afte Karen and Marks wedding last week.
Best wishes
Xx
Mo
User
Posted 18 July 2014 10:16:00(UTC)

Hi Carol,

Thinking of you and Eric. X

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
 
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