Hi Kevin,
In our case, raised creatinine was associated with partner's kidney function being impaired due to the disease, so it is closely monitored. The medics dont seem worried even when it is particularly high as long as Neil is peeing ok ! It may be totally different for you, as we say on the forum, every man's illness is different but worth asking your medical team about if you are concerned. It is something I used to panic about in Neil's case but now I dont ! Regards,
Fiona.