I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error

Dads small cell cancer

User
Posted 24 July 2014 17:43:13(UTC)

Hi everyone i have not been on here in ages.

Dad was diagnosed in aug 2012 with prostate cancer which was found to be the small cell type.He had chemo and hormone injections and has remained "well" for most of this time.I understand this cancer is rare and aggressive and sadly the other people i followed on here as someonesdaughter" their other halfs lost their battles.Dad has a check up due soon.Just saying HI and wondered if anyone else has this rare cancer and how their symptoms are .

Thanked 1 time
User
Posted 11 March 2017 21:00:19(UTC)

Hi everyone.good news is Dads daffodils have come up around the rugby club and Dad is still here to see them!! He has recently been in good health walking around etc.He and mum celebrated their 51st anniversary.unbelievable that he was given months to live in 2015.I wished I hadn't worried so much when he WS diagnosed in 2012..Yes he has been very I'll several times but he is still here thanks to chemotherapy. I hope his story gives hope to others diagnosed with this rare type.they thought he had the usual type of prostate cancer first for perhaps two yrs before the small cell type.it was mum who spotted the symptoms while battling her own stage 4 cancer. My heart goes out to everyone whose dear Dad's are suffering and I will keep my fingers crossed for you.Thank you Lynn for your continued support.Perhaps the newcomers should start their own threads that way anyone searching for support can gain more advice.love to all Paula xx

Thanked 11 times
User
Posted 25 January 2016 10:33:15(UTC)

Golden sugared almonds are on order and Mum let slip she has contacted the local council and the "friday club" who are men who keep the grounds of the rugby club where my brother and nephew play and dad is part of helping out and taking hundreds of photos for years.Between them they have filled the roundabout opposite the club with daffodil bulbs as a memorial to him.I think it is lovely and he is hoping to see them flower.
All lovely things that are a distraction from all the medical stuff of the last few years.xx

Thanked 3 times
User
Posted 23 August 2017 17:09:45(UTC)

Oh Janet thank you so much for that reply.I have been going over and over in my mind the last two weeks why he won't let us see him.Last time I did I was positive and happy so its not to prevent the sorrow on peoples faces.I understand the diorreah has stopped now he is refusing I Vs or blood tests.
It is so hard when I can't help him at all.I think it is a natural reaction to cook for or assist someone who is struggling so I feel helpless.
The hospice at home can do little to help out so mum is looking at nursing homes to assist with his multiple needs as she can't cope at night with him.
His badly ulcered leaking legs are a little better however he has chest pains now so has 2 hourly pain relief type morphine and a patche on his skin.
We have no idea how his kidneys are doing as he refuses blood tests now.
He has stopped saying he wishes to die as far as I know.
They think he has had shingles due to painful and scaly skin on his head and face.
Do you mind me asking how long your husband was like this Janet? Dads been in for three weeks now.I am so sorry you have been here too it is a very hard place to be I don't know how mum. Copes every day at his bedside.
Thank you all so much I feel less lonely now.xxxx

Thanked 3 times
Show Most Thanked Posts
User
Posted 24 July 2014 20:56:07(UTC)
Hi, just saying hello, but haven't really any up to date help. Hopefully someone will be along to help, but you can always call the Specialist Nurses' helpline on this site. They are very knowledgeable and explain complicated issues in a helpful and supportive way. Take care, Janet
Thanked 1 time
User
Posted 24 July 2014 21:18:34(UTC)
Hi
Welcome back.
I don't think we have any current small cell members posting. Yours is a great example for any future cases as it does tend to be a very aggressive cancer type.

Hope all remains well with dad.

Best wishes
Allison
User
Posted 25 July 2014 13:06:21(UTC)

oops forgot to say im Paula.Yes Dad has (mostly) done very well to get to the 2 yr mark and he and Mum who also has stage 4 cancer have enjoyed plenty of treatment free time.Who knows what is around the corner.but so far so good.Loving the new prostate cancer site and im sure i will find my way around!! love to all on here Paula xx

Thanked 1 time
User
Posted 25 July 2014 14:48:01(UTC)
Paula
welcome back and to the new forum. I remember talking with you when you posted as someone's daughter. Your Dad is doing very well indeed, small cell cancer is always an aggressive form so to respond well to chemo and HT is a major result. 2 Years used to be the average prognosis for a Man with advanced cancer that was not the small cell variety but modern medicine is improving things all the time.
There are new treatments coming along all the time and it sounds as though your Dad's Oncologist is doing a great job so far. I do not know of anyone on this forum who has small cell cancer and I do not remember reading about anyone else other than your Dad, it is a rare form of the disease and I guess that means we all know very litte about it. Trust your medical team they seem to be well on top of it so far.
best wishes
xx
Mo
User
Posted 29 July 2014 16:32:59(UTC)

Thanks ladies yes i hope Dad gives others hope that are diagnosed with this rare form.Sadly the other peoples Dads and husbands didnt respond so well to treatment.He and Mum who was diagnosed with stage 4 cancer (rare type) in 2007 !! are selling prostate cancer keyrings and spreading the word.Treatment has come on leaps and bounds and we are very lucky to have them both here,Paula :)

Thanked 1 time
User
Posted 16 August 2014 18:04:03(UTC)

its back !! Dad had his scan results and he has a shadow on his bladder to be biopsid.Also the cancer in his lymph node is back.In a way it is no surprise and his consultant pointed out how well he had done so far but poor dad looked stunned.

Treatment maybe radiotherapy or perhaps more chemo.Mum gets her cancer check in oct. Paula

User
Posted 17 August 2014 13:56:33(UTC)
Oh no. Paula
Blasted small cell is so insidious. Poor dad and poor you.

What does the oncologist recommend as the nest step?

Lots of love
Allison
Thanked 1 time
User
Posted 18 August 2014 16:46:48(UTC)

Hi Alison Ct scan tue to see if it is a new cancer of the bladder..it has gone through the bladder wall,or if it is indeed the small cell.Then biopsy then either radiotherapy,,more chemo or tablets.Poor Dad is a strong man but im sure this has been a huge blow.He was on a clear out of his things today.I will post when we know more but his story is still hope for others diagnosed with mixed small cell as he has had 2 yrs from diagnosis,best wishes Paula xx

User
Posted 05 November 2014 13:24:53(UTC)

Update:well Dad had his biopsy and they were hopeful the new tumour in his bladder wasnt cancerous.He developed an infection and felt quite unwell.Yesterday was results day and his small cell cancer is back.
They are getting him straight back on chemo but a stronger one than last time.
The chemo made him so ill with an infection last time he had to be hospitalised for a week so they reduced the dose.
I ..we only hope he can tolerate it and he knows he can refuse treatment at anytime.8 weeks has passed so i hope they really are on the case,love to all Paula xx

User
Posted 05 November 2014 13:40:28(UTC)

Paula, I am so sorry to read your news - news that you must have been dreading. Hopefully dad will ride the chemo better this time round and the cancer will be knocked back again.

I will be thinking of you all x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard


User
Posted 05 November 2014 16:11:13(UTC)

Thank you Lyn im just a bit concerned he is that bit older and diabetic now but hey he is quite a determined man and at least this time Mum is "well" so he can concentrate on himself xx I am still not sure about the new site ha ha :)

User
Posted 22 November 2014 19:20:43(UTC)

update...Dad kept on at the hospital until they made an appointment to see him.they told him he will get the same chemo as last time 2 weeks before xmas.That will be 17 weeks since we learned it was back in his lynph nodes and the shadow on his bladder was found.Mum was understandably concerned and he had had painkillers to be able to sleep at night.He had an infection from the biopsy.

User
Posted 22 November 2014 20:32:29(UTC)
Hi Paula
Not sure how I missed this but I'm so sorry to hear that dad has been unwell again. I'll be thinking of you during the next few months while your lovely, strong dad endures more chemo. He's a true hero.

Love Allison xxx
User
Posted 23 November 2014 09:17:24(UTC)

Thank you Allison,i havent kept up with people on here as im not used to the new site! Plus i work lots of hrs now my husband has had a heart attack! i hope things are ok with your husband.
My Dad is a strong decent man.They have fostered many kids and worked hard too.I hope he can tolerate the chemo and we will all be there for him and Mum xx Paula

User
Posted 23 November 2014 22:44:58(UTC)
Heck Paula
That's a lot going on in your life, I hope you husband is fully recovered and you are enjoying work.

This site is a bit more tricky than the old but it does work when you get used to it. We are ok, off to Onco to schedule chemo in a week's time, but feel ok about it.

Hugs
Allison xx
User
Posted 24 November 2014 01:30:48(UTC)

Hi Paula, sorry to hear about your husband! Your mum & dad sound such special people, I really hope the chemo goes well for you all xxx

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard


User
Posted 26 November 2014 20:35:05(UTC)

Thank you Allison and Lynn my husband has a refferal for a colonoscopy as he has had alot of rectal bleeding we are hoping it is something exacerbated by all his blood thinners.I couldnt cope with 3 of my loved ones with cancer! I will update on Dads progress as i have never heard of anyone getting to 2 yrs before it returned (the small cell type) love to all on this site paula xx

User
Posted 28 November 2014 22:36:15(UTC)

I have just had my 2 years all clear ( less than 0.01 ) on my PSA since my RP. Just had 6 days of rectal bleeding and am  on a 2 week referral for now for a colonoscopy at the hospital. Hopefully its just polyps. Did a bit of reading online and apparently several studies exist that say prostate cancer patients are at risk of colon problems and should have regular screening via colonoscopy. In USA they do it every three years. Here in the UK we don't, apart from men over 60 who are screened for bowel cancer.

Living life to the full, there is always someone worse of than yourself. Smile and get on with it.
User
Posted 11 December 2014 21:42:47(UTC)

18 weeks on and still no chemo!! first they thought Dad had had it,Mum got upset and the saw the consultant.weds was chemo day.Dad had the pre meds and anti sickness then they queried the chemo dose.The main guy is abroad so Dad drove back home really fed up.
Mum went with him to see the onco nurse today where a letter was put together of complaint.Dad usually is quiet laid back so its upsetting to hear him upset.H also couldnt have it as its a 3 day thing so has to start before weds latest.
On the plus side the husbands colonoscopy was clear with biopsies taken.

User
Posted 24 December 2014 14:07:25(UTC)

Merry christmas to you all,Dads not been too well with pain from biospy site keeping him up at night.Chemo on 7th jan,22 weeks since his cancer came back.I hope 2015 goes easy on all of you and your loved ones,Paula xxx

User
Posted 24 December 2014 16:56:39(UTC)

Hi Paul'a hope your dad gets some pain free nights good luck with chemo in January . Andy

User
Posted 29 December 2014 02:46:34(UTC)

Paula, just to say I am thinking of you and your dad as we see the New Year rolling towards us x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard


User
Posted 01 January 2015 17:38:34(UTC)

aww thank you both.Dad has been quite ill with a flu bug and hardly eaten all christmas.He has chemo on 7th jan in theory but he did say he may not go ahead with anymore treatment.To be honest i dont blame him.He has done remarkably well with this small cell type and enjoyed his 2 yrs since he was first diagnosed but all the mess ups this time are taking their toll.He is such a strong man,never one to make a fuss but i think he has lost his energy to fight on.I will respect him whatever he decides obviously x Paula..Happy new year to all on Prostate cancer uk x

User
Posted 01 January 2015 22:46:32(UTC)

Yes, my father-in-law made a decision to stop eating and pretty much controlled his own end. Hard for us but I have nothing but love and respect for a man who maintained his dignity right to the last.

Don't forget to take good care of yourself while you are being strong for everyone else x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard


Thanked 2 times
User
Posted 01 January 2015 22:55:16(UTC)

Paula

These are the most difficult times. As we look forward to our later years, we all hope for the best quality of life, but do not want to be a burden for our offspring. Respect your father's wishes, and give him all the love and support you can.

Thinking of you through what will be a rough period, but also remember all the good times you shared. Look after yourself and the rest of your family. I hope they will also look after you.

Paul

Stay Calm And Carry On.
Thanked 1 time
User
Posted 11 January 2015 16:41:52(UTC)

Dad had chemo 3 days this week,cisplatin and etopitode.He had a reduced dose as his kidneys are not working so well.Mum saw her onco all good back in 4 months.No side effects for Dad yet except tiredness which is good as the pain was losing him sleep now he just drops off.Next chemo on 28th jan but he sees consultant this week.xx

User
Posted 19 January 2015 14:29:24(UTC)
Hi Paula,
We wrote to each other back in 2012/13 until my father lost his battle with small cell prostate cancer. I decided to stop by on this forum and hoped to find all was well with your parents. I'm pleased to read your Mum is doing so well, but sad to hear of your Dads recurrence :( How is he doing? How are you doing? If there is anything you need from me or if you have any questions please do not hesitate to ask xxxxxx
User
Posted 28 January 2015 20:35:56(UTC)

Oh wow..i was only thinking how I could contact you since the site changed! s35.Dad has had 3 chemos which made him wiped out.This weeks 3 have been cancelled due to low white blood cells although he looks great :). sadly Dad had to wait 25 weeks for chemo to start.The cancer has come back in lymph node and spread to his bladder.This is causing constant peeing and some pain.He has mentioned stopping treatment and he has had 30months since diagnosis.Amazing really.Your father was the only person I found online who got as far as he did.Dad gets scanned in feb to decide if chemo is worthwhile.
I hope you and your family are well and coming to terms with things without your Dad,(I absolutely dread that bit obviously) xxxx

User
Posted 05 February 2015 07:40:20(UTC)

Dads getting 3 more chemos this week then he gets scanned.Hopefully he doesnt suffer too much this time.The dose is reduced due to kidneys not functioning to well.Love to all on this site.

User
Posted 05 February 2015 08:08:22(UTC)

Phi Paula, your dad has done so well, I hope his story gives hope to others diagnosed with small cell. Fingers crossed that he tolerates this round of chemo well xxx

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard


User
Posted 06 February 2015 08:45:02(UTC)

I agree Lyn he has had 2 yrs 7 months so far which is alot more than i ever read about(although the internet is not always a good idea).I feel we have been very lucky with Mum too.This is her 8 th yr since she was diagnosed as stage 4 cancerxxx

User
Posted 25 February 2015 20:48:03(UTC)

chemo cancelled again next week now plus injection and 3 scans at different hospitals.Otherwise all good except for his bad moods which are understandable.Mum and Dad celebrated 49 yrs married.

User
Posted 25 February 2015 22:50:20(UTC)

Let's hope they make 50, get the telegram, and are able to celebrate it in style!

Stay Calm And Carry On.
Thanked 1 time
User
Posted 25 February 2015 23:20:46(UTC)

Congratulations to your Mum and Dad Paula, not only for all they have been through and for what you have been through . I know it has been tough but 49 years together , Wow A HUGE CONGRATULATIONS to you all . X

BFN

JULIE X

NEVER LAUGH AT A LIVE DRAGON
Thanked 1 time
User
Posted 26 February 2015 00:48:52(UTC)

Paula, I was just sitting here imagining what an achievement it is to share your life with someone for 50 years - I will be 68 when we have our golden wedding but i think that someone will have to give me a medal for putting up with him that long - he of course says that only a saint could put up with me. Your mum and dad seem so strong in each other's care - a gift that not everyone is blessed with. I guess he is allowed to be grumpy when the treatment plan is being messed up and causing uncertainty.
My love to you all x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard


Thanked 2 times
User
Posted 26 February 2015 00:57:20(UTC)
Paula
you are a fabulous daughter and I promise you they are very precious to have. Your Dad does well to be just a little grumpy as Lyn says.
49 years together is such a rare thing these days as others have said a truly WOW achievement.
XX
Mo
Thanked 1 time
User
Posted 26 February 2015 16:59:59(UTC)

oh thank you all.Dads parents made 52 yrs wed too :) The fact they are both still here after one yr prognosis each is amazing.dad has been struggling lately but this is the 4th chemo between them and it does takes its toll.dad is at his friends funeral fri another lovely man lost to prostate cancer.
Lets hope they make 50 yrs wed then they can have all the fostered and adopted kids around them and their 3 and 13 grandkids. love to all on this site Heres hoping Dads 3 scans are ok :)

Thanked 1 time
User
Posted 12 March 2015 23:39:16(UTC)

Dad saw onco and didnt get bone scan result from mon or ct scan from last week.I was worried as he had shoulder pain last week has anyone ever heard of delays in scan results? Anyway he seems well according to Mum and he will see the doc again in April.i did wonder if he was told something and wants to take it on board before telling anyone.Bit confused as this was the half way scan for chemo.

User
Posted 14 March 2015 16:03:24(UTC)
Paula

the results of both scans are usually up on the hospital system within a few days unless the people that check them are backed up. Oncologists do sometimes forget to mention them so sometimes you have to prompt them. Your Dad may just have been a bit relieved they were not mentioned.
If he is happy for you to chase it up then maybe you could call the oncologist with your Dad.
If they are happily continuing with the chemo I would not worry too much until your Dad gets his next meeting in April.
xx
Mo
User
Posted 20 March 2015 00:03:29(UTC)

Thanks Mo Dad did ask so did Mum or as the chemo nurse calls her "the boss" they said they werent even on the system The images one week after the ct was done.Mum was cross as you get hyped up for good or bad news.Anyway Dad seemed happy enough this week so that is the main thing,life cant only be chemo or scan results can it.im so busy doing double shifts i guess i will hear soon enough and i hope it is good news :) Take care Paula xx

User
Posted 24 March 2015 22:55:54(UTC)

Dads been admitted to hospital passing alot of blood in his urine.He had a call chemo is cancelled due to low white blood cells so is in isolation to prevent infection.He is on antibiotic drip.Mum sees the onco weds with him to chase up ct and bone scan results everything crossed for him (them) xx

User
Posted 24 March 2015 23:00:05(UTC)

Prayers and best wishes to you all.


Chris.

Thanked 1 time
User
Posted 24 March 2015 23:08:11(UTC)
Paula
just to let you know that I am thinking of you all, your Dad is in the best possible place right now he needs medical care on hand to help him through this.

xx
Mo
Thanked 1 time
User
Posted 25 March 2015 00:32:54(UTC)

Cookiegirl, I hope dad is more comfortable soon x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard


Thanked 1 time
User
Posted 25 March 2015 07:38:22(UTC)

Thank you all.Off to take Mum to the hospital and she will be demanding answers ha ha.They call her the boss but as she has had alot of chemo herself she knows the score.Dad has been so good the last 2 weeks going to Rugby and decoarating the house to make it more sellable when he is no longer here.(it is immaculate already).
Bless him i hate seeing him vunerable as he is such a strong get on with it type of man. xxx update later

User
Posted 25 March 2015 09:11:36(UTC)

Just to let you know that I am thinking of Mum and Dad for you Paula , I hope that they can get Dad stabalised and back home soon.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
Thanked 1 time
User
Posted 25 March 2015 10:47:03(UTC)

many thanks Trevor/Julie he has had 3 bags of antibiotics and is in isolation slept well Mum was told the cancer is causing the bleed eventhough he has had 3 chemos so far on a reduced dose as last time he developed an infection.We should get bone scan and ct scan results from 3 weeks ago !! Off to hosp now Paula xxx

User
Posted 25 March 2015 18:31:51(UTC)

seen Dad he is in good spirits and several bags of antibiotics later feels good.He has to stay another night.Mum mentioned spots on bone scan and he said he maybe getting radiotherapy at a different hospital.He saw an onco who reassurred him and i think he sees his consultant thursday.Love to all on here on journeys of your own and thank you for all the support Paula xx

User
Posted 25 March 2015 21:00:19(UTC)
Good news thanks Paula

hope your Dad is home tomorrow as planned
xx
Mo
Thanked 1 time
 
©2017 Prostate Cancer UK