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Well,I,ve been diagnosed today..

User
Posted 08 Apr 2015 at 09:26
Hi, Sonic,

I am 9 days post op (laparoscopic). Getting stronger each day. Not had a date for catheter removal yet but can't wait mainly so I can sleep on my side again. I had some constipation problems and was concerned about blood in thd bag but, like you, still feel I have made the best choice for me. I saw my dad die with advanced prostate cancer at 82 and it wasn't pleasant so being only 58 I thought lets get rid of this little rascal, hopefully, before it spreads as it did with Dad.

Today I'm planning a nice shower, getting into some day clothes and asking my wonderful wife to take me for a drive out.

Wishing you well for the future especially the histology feedback.

Paul

Edited by member 08 Apr 2015 at 09:29  | Reason: Not specified

THE CHILD HAS GROWN, THE DREAM HAS GONE
User
Posted 08 Apr 2015 at 12:00

Hey Dave,thanks mate,hope your well yoself👍
Hey Paul,glad alls going well, I was due my catheter out tomorrow but after a knock at the door earlier this AM,it seemed the efficiency of our local District nurses,knew no bounds.
Straight in they came,no beating about the bush,a few words of comfort and Wham!,out she came like Sh..t of a shiny shovel!
Much to my relief,it wasn't exactly painful,more eye tingling..if u know what I mean.
No incontinence probs so far,so very happy with my short term outcome to date.
Btw,I was operated on on the 2nd,last week,so I guess catheter removal is subjective time wise.i,m feeling no ill effects,and the old pelvic floor muscles still seem to kick in when I need them!
Best of luck mate,you,ll be fine..think positive all the way.

User
Posted 08 Apr 2015 at 14:40
Sonic

wow ..so you made the decision and stuck with it and now it is done Bravo!!

The most important thing is that you now know in your own mind that you did what was right for you.

I am really pleased to read that all is going so well for you, sounds like you are well on track. Remember all your exercises not just the pelvic ones (anyhow I am confidently told the other ones are much more fun??!)

Best wishes

xx

Mo

Edited by member 08 Apr 2015 at 14:46  | Reason: Not specified

User
Posted 08 Apr 2015 at 15:48

Hi Sonic,

Good to learn you had your op and things are going well.

I would make a point that I have expressed in the past and is that one should not put too much store on the treatment success or otherwise of an individual one knows who has heard about, to the extent that is sways one's feeling as to what is best treatment for one's self.

I have a friend who had surgery which didn't completely do the job. He subsequently had HT and IMRT and his PSA after some 8 years is virtually undetectable. He was lucky in that it seems to have worked for him but salvage treatment such as this or of any kind might not give such good results for many but illustrates that a multi treatment can sometimes work. It is for consideration as to whether this should form part of one's thinking when deciding on a primary treatment option.

As regards an aspect that was mentioned earlier regarding there being no well qualified medical people as forum members, this does seem to be the case. We did have a retired GP post in the past but he has not done so for a long time and he did not have the knowledge of a Consultant anyway. No doubt the moderators in need can call on advice from specialist where dubious information is posted. Perhaps an article by a specialist detailing latest advances in various treatments would be interesting but it's a question of finding somebody with the time and inclination. Specific advice for individuals should, I feel, be best left to their Consultants who are in the best position to advise. So it is perhaps not surprising that we have no consultants on what is after all a support forum.

Edited by member 08 Apr 2015 at 15:50  | Reason: Not specified

Barry
User
Posted 08 Apr 2015 at 16:13

Sonic,

If you are already dry after just having the pipe taken out, you are a very lucky lucky man, congratulations. If I were you I would go out now and buy a Lottery ticket, with luck like yours, you will only need the one! It is good to read about some men who are dry instantly, it balances out for those of us who take a tad longer, and longer.

Quick regaining of urinary control also enables you to play about more often with less chances of leakage or seepage to regain some EF. Get on with it!

well done.

dave

User
Posted 08 Apr 2015 at 16:40

Blimey Sonic!

That's really good news so far regarding catheter removal and continence...

I can only echo Dave's comments.......Go out and buy a lottery ticket this weekend!....http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-smile.gif

Hopefully your histology report and subsequent PSA results will show that your procedure was successful as far as can be ascertained at this stage of your recovery.

Very encouraging news indeed!

Best Wishes

Luther

User
Posted 08 Apr 2015 at 16:51

Sonic and Paul

Looks like job's a gud'n for you both.

Catheter removal certainly makes your eyes water. My nurse asked me to cough whilst she removed it. Don't think I was coughing at the end!

It's 2 days short of my 1st anniversary for me, but still leak a little. The next step is to see what happens if your little sticky can become a big sticky. I'm still struggling on that one, but there are signs that sildenafil is beginning to work. As it can take 2 or more years for nerves to heal, I am not overly worried at the moment.

Hope your recoveries continue to go well.

Paul

Stay Calm And Carry On.
User
Posted 08 Apr 2015 at 18:22
Hi Sonic

Glad to hear the good news so far.

Op is over

You are alive

Catheter is out

Continance looks positive

You have "youth" on your side so odds of EF returning are much better

Wishing you all the best with your recovery.

User
Posted 08 Apr 2015 at 18:49
Cheeers guys,,lottery is bought,plus signed up for about 5 betting sites,lol!..well hey..u could be right.

Seriously tho,I never expected results like this,in such a short space of time..just hope I,m feeling this way in a year.time will tell..

Understand what your saying Barry,but what else do we base our decisions on ultimately.we can only take on board the experiences of others,the positives and the negatives,and make personal judgement based on that.in the end without the help of all o u guys I may have found making that decision far harder,and possibly wrong.

Being thrown into the world of prostate cancer is not an easy one for any of us,with no prior knowledge of what that entails,you have to find others who can share experiences,ops,treatments,meds..etc,

Just glad I found u lot..warts and all..:)

User
Posted 08 Apr 2015 at 18:51
Cheers Tweedy,

'Youth' lol..u old fogie...I,ll have you know I,m a grandad of 8.

User
Posted 08 Apr 2015 at 18:53
Sonic

Great news mate, continence result fantastic, hope it all continues.

Thanks Chris

User
Posted 08 Apr 2015 at 19:04

Pleased to hear your op went well Sonic.

It surprised me to hear that the district nurse removed the cathetar rather than you attending the clinic for a trial without cathetar (twoc).

Did the district nurse check your urine output following removal of the cathetar. They usually want to be confident that everything is as it should be once the cathetar is out.

Bri

User
Posted 08 Apr 2015 at 21:10

Cheers Chris,hope your doing ok.
Hi Bri,no she told me that if I didnt pee within 6-7 hours to get myself up to A&E.
Was all done in my living room,over a cuppa.
My consultant recommended either the district nurse or my local hospital.having spoken to my surgery,they offered the DN,s services.
I will say though that I may have jumped the gun a little,I,m peeing ok, but am now experiencing a pretty strong pain in my groin post pee.
Rang 111 and was advised to get a urine sample up to hosp tomoz,just in case.
If this persists though I,ll be up there sooner than the morning,should add that I,ve no temperature,sweats,nothing unusual you might associate with infection other than this pain,which dies down relatively quickly,maybe 15 mins after.
Could be due to all the recent action my groin has seen recently so will monitor and see how it goes

Take care all.

User
Posted 08 Apr 2015 at 22:25
Originally Posted by: Online Community Member
Cheers Tweedy,

'Youth' lol..u old fogie...I,ll have you know I,m a grandad of 8.

I am no expert of course but the paperwork given to me about my op claimed that the younger you are (particularly under 60) then the chances of EF returning are much better. So I would regard 48 as "young" and something in your favour!

Congratulations on being a "young" grandad of 8!

I hope the pain you are experiencing quickly sorts itself out.

Best wishes from the "old fogie"! 😄

Edited by member 08 Apr 2015 at 22:28  | Reason: Not specified

User
Posted 09 Apr 2015 at 11:50

Lol Tweed,old man,and thanks for the aged advice:)
Spent 3 and half hours in my local A&E last night,a harrowing experience!.but one I needed to do,if not for the antibiotics I finally walked out with, then just for the reassurance that this was no more than the urinary infection I thought it was.
The pain was excruciating when peeing but passed very quickly,the cause? My catheter had roughed up the inner walls of my urethra and was being agitated by the flow of urine. Damn that catheter,first time I ever have one and on its way out,having caused me nothing but satisfaction,it leaves me a little reminder that nothing is often pain free,lol
Strong antis and 3 litres of water will I hope bring things back stable.

Good luck Guys.

User
Posted 09 Apr 2015 at 13:15

Sonic

Like Bri was surprised the district nurse took it out, I was given strict instructions not to let the district nurse do anything with the catheter.

Did you have the Da Vinci op, let me know ? My surgeon is convinced the way my catheter was removed has caused my on going stricture.

Thanks Chris

User
Posted 09 Apr 2015 at 14:35
Owwwwwch .. not the best night out ever huh?

UTIs do usually clear up quickly with anti Bs but be aware that they can also recur so don't wait until things become unbearable before you seek medical help.

The guys are right the removal of your catheter so quickly did seem unusual and rough removal can cause other pee related issues so make sure you drink lots of fluids, water particularly although cranberry juice also helps. Beer will not but it would take your mind off things!

Best wishes

Mo

User
Posted 09 Apr 2015 at 15:29

Good luck, hope you make a speedy recovery, my other half went down the brachy route (as I said earlier on in this post) we thought he had taken the easier option, but 3 and a half months down the line he is still suffering with severe burning with every pee and can't sit down for long as it hurts inside. I think they must have damaged inside with the catheter, he was in agony the whole time the catheter was in (only overnight) So things don't always go to plan! 

All the best.

User
Posted 09 Apr 2015 at 21:18

Hey guys,thanx for posting,
Chris,whats a stricture?
Mo,I,m on it,i,ve downed 3litres today,and have taken tramadol and paracetamol,the only thing that could touch the pain.
ibroprofen and the codeine from the hospital were a big zero.
Have used tramadol before,for other muscle strains,and it's a wonder drug.unfortunately can't down the beers with it,lol
Sjtb-hi,sorry to hear the other half is still having trouble,I think damage by catheter is a common problem,although not everyone suffers i,m sure,but any tube down your tube for any length of time,is bound to cause some friction,possible damage to the eurethra,aggravated by urine flow.
I had mine in for 6 days and developed a little light blood spotting at the tip,but thought little of it.on reflection this was probably catheter friction on the inner walls.
Hope all goes well

Take care guys

User
Posted 09 Apr 2015 at 21:21

Chris,I googled it...wonderful thing Google.;)
Is there treatment for that? Who removed your catheter?

 
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