Post op PSA testing regime query

User

Posted 20 Feb 2015 at 23:05

Yep I agree Lyn....my point was that with aT3a Dave's PCa puts him in the high risk category even though his PCa isn't particularly aggressive

High risk appliies to men with a pre treatment PSA above 20 and or Gleason above 7 and or extra capsular extension
Bri

User

Posted 20 Feb 2015 at 23:34

Quote:

Yes, but really can you envisage not being tested after the ten years is up? Surely no-one that has had cancer can afford not to check every so often that they are still clear?

Agree. I would probably maintain my monitoring way past any 'official' remission at least yearly! Living in hope ..... 😉

Jacey.

User

Posted 20 Feb 2015 at 23:42

Thanks Brian.

I thought I was in the low to middle risk category, mistakenly, apparently.

Really made my weekend.

Dratsab.

enjoy.

dave

PS Lerve you really. Life is limited. Make the most of it. Almost 2 into a possible 5

User

Posted 21 Feb 2015 at 07:45

Hello Lynn,
My contribution wasn't about what happens after ten years, I simply wanted to add what the Radicals requirements are.

In 8 years time, should I make it that far and still be undetectable, I expect (I haven't asked it is to far away, too uncertain to be bothered about) that testing will continue probably under the auspices of my GP rather than the hospital. I will certainly ask for them to be done at that point if it doesn't happen automatically.

If my PSA starts to rise again before the 10 years is up then as my oncologist is on the ball, I imagine he will want to increase the test frequency beyond that expected by Radicals. He told me when I had the PSA rise in October that he would not start further treatment until my PSA reaches 2.

Cheers
Andy

User

Posted 25 Feb 2015 at 15:18

Another day and a half of anxiety behind me as the blood was taken yesterday morning. If I include the 3 days leading up to the blood test, 4.5 days of angst in all. And despite my coming to terms with whatever may be, I still retreat into me as the test day approaches. Not as much as I used to though.

But, another milestone successfully put behind me, and I can relax again, until the next one.

New lab so can not directly compare to my previous results, but given to me by the receptionist as "0.1, normal, Doctor has seen it and says it is normal, nothing to worry about".

So, 22 months 'ish post op and still apparently okay. Take heart anyone else in a similar position.

atb

dave

User

Posted 25 Feb 2015 at 17:58

Only one thing I can say Dave, Fantastic

User

Posted 25 Feb 2015 at 18:23

Dave,

What a great result! You must be really pleased. Hope you have many more good results.

Steve

User

Posted 25 Feb 2015 at 18:46

Don't want to ssip you off again Dave...but I thought you were on the sensitive PSA testing regime..

Sorry mate but I'd want to know if the receptionist had missed a < symbol before the 0.1 which imo is significant

Bri

User

Posted 25 Feb 2015 at 20:14

Originally Posted by: Online Community Member

Don't want to ssip you off again Dave...but I thought you were on the sensitive PSA testing regime..

Sorry mate but I'd want to know if the receptionist had missed a < symbol before the 0.1 which imo is significant

Bri

AGAIN Brian? When did you do that then? What have I missed? Forget the Pca, old age is getting to me now!

When I got through to the receptionist I did ask about any "symbols" and said to her that normally there would be a sign for "more than" or "less than".

She could not enlighten me further. And she has told me what the reading is, and that the GP has said "all normal, nothing to worry about", then that is what I have to go on.

Like I said above this is a different machine to that which had been measuring me previously. I will just have to establish my new normals.

I am pleased tat it is another test in the normal range.

atb

dave

User

Posted 25 Feb 2015 at 20:31

Good news Dave
You can relax for 6 months till the next one!

I know what you mean about the time between the test and the result, it's certainly a worrisome time. My wait is 10 days min as my hospital doesn't have the high sensitivity test equipment so they send it away to Sheffield.

Best wishes and good luck
Andy

User

Posted 25 Feb 2015 at 21:02

Thanks Andy,

Does the quick turnaround indicate that the Horton Lab has a sensitive machine?

When I was tested at the Buckingham Hospital I had to wait 3 days for the result.

Anyway, I am pleased and intend enjoy the week and the weekend. And the next 3 to 4 months.

dave

User

Posted 25 Feb 2015 at 21:57

No, I think it indicates whether the tests are done in house or sent to an external provider, that's all.

Brilliant news, CB xxx

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 25 Feb 2015 at 22:04

Great news Dave, onwards and upwards.

User

Posted 25 Feb 2015 at 22:06

Thank you Paul, and thank you also Lyn.

dave

who is somewhat ylddit tonight!

LOL

Edited by member 26 Feb 2015 at 09:01 | Reason: Not specified

User

Posted 25 Feb 2015 at 22:28

Brilliant, Dave. My results were done in an hour today. The miracles of modern science.

I have not allowed myself to get over anxious about the results. We were out at the theatre last night, and I always seem to have something to do.

Long may our good results continue!

Stay Calm And Carry On.

User

Posted 26 Feb 2015 at 19:26

Lynn is right Dave, it just means my hospital doesn't have the equipment

cheers

Andy

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