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Chris J's Journey

User
Posted 13 Jul 2021 at 22:10
Great response CJ x
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 14 Jul 2021 at 00:29

Aaaah Chris that is such good news. 

Enjoy every minute you can.

Leila xx

User
Posted 14 Jul 2021 at 01:01

Cholesterol was the only one of my bloods which was a little high, the GP wasn't surprised and said it was the HT, there is a link between testosterone and cholesterol. As I was coming off HT he didn't suggest any treatment.

I don't know if statins have side effects, they were in the news a few years ago but I think blind trials showed placebo had the same side effects, nocebo it is called.

If I were offered statins I would probably decline them, but I guess there is no harm in trying them. You can always stop them if you don't like them.

I'm hoping you have a long life, your cancer is hormone naive, those little b*****rd cells, don't know what's hit them, let's hope it takes five or even fifteen years before they, wake up. 

Dave

User
Posted 14 Jul 2021 at 08:11

CJ 

Good news, keep going mate.

Thanks Chris

 

 

User
Posted 15 Jul 2021 at 02:06
Re the statins - something to talk to the oncologist about. NHS website says that 1 in 50 people taking statins will avoid a serious heart attack or stroke in 5 years - to be honest, a few months ago we would have been seriously doubting whether you would still be here in 5 years but I guess you have responded to the HT so well that it may still be feasible. Dying of a massive heart attack might be preferable to dying of prostate cancer but the prospect of a serious stroke is scary.

On the other hand, I have a deep suspicion that GPs are being paid to put people on statins. They suggested it to John and they hadn't even bothered to do a cholesterol test first to see if he actually needed them :-/

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 15 Jul 2021 at 19:35

Nice to hear 💪🏼👍🏼

User
Posted 16 Jul 2021 at 05:10

Chris, the response to HT is brilliant, and it seems you are in the 20% who can still get erections on HT.

My cholesterol was just over the normal range and statins offered if I wanted. This was a month before my PSA of 58 was discovered, and I deferred starting statins for 6 months to avoid starting them with all the PCa meds, so I'd know which side effect was which drug. I didn't get any side effect from the lowest dose statin I was on, and it halved my cholesterol, leaving me in the middle of the normal range.

HT can push up cholesterol, blood glucose, and blood pressure, so it's a good idea to keep an eye on all these. It is known that lack of testosterone increases the chances of death due to cardio or vascular events via this route.

Wishing you all the best in the circumstances, and keep it up, as they say...

User
Posted 16 Jul 2021 at 16:18
Onco zoom went well and he was so pleased we are going to leave it 4 months till next review ( and to help preserve my sanity ). He’s going to contact surgery re it being so difficult to organise my appointments and blood tests etc. He too feels statins is a best bet so starting low dose 10mg Simvastatin tonight with regular liver function tests as I’m on a lot of meds in general and like my wine 🍷😆

Cheers everyone

User
Posted 20 Jul 2021 at 08:50

Glad your Onco appointment went well and he was pleased with progress.

Fingers crossed the low dose statins work well and you can still have the odd tipple …

Phil

 

User
Posted 20 Jul 2021 at 10:02

Glad oncologist was pleased with your progress Chris. The 4 month gap till next review is good. 

Ido4

User
Posted 22 Jul 2021 at 13:01

So glad things are going ok, hope 4 monthly is a regular gap for you . Take care.

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User
Posted 22 Jul 2021 at 23:34
I hope the GP surgery takes the onco's comments on board CJ - it is difficult enough having cancer without ongoing battles about appointments. Dad's GP practice has just been taken over on a temporary basis following an unannounced CQC visit which they apparently failed dismally - partly for refusing to see any patients during the pandemic and (I am guessing) expecting 85 year olds with no internet to do Zoom appointments. I am told that a staff member whistleblew to CQC - well done them, I say 👏
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 16 Nov 2021 at 07:06
Hi , all ! Not using the forum much these days as you are aware , mainly for my mental state. I’m 9 months into injectable Decapeptyl hormone therapy now and it seems a success and long may it last. Most importantly my PSA has dropped from 990 to 14 to 4 and just recently 2.2.

I’ve picked up a dream job at a surgeons farm as general labourer and handyman. I feel stronger and fitter than I did this time last year ( mainly my back not giving me grief ) , and never think of cancer while I’m there , yet at the same time plenty of encouragement and inside info haha.

Main side-effects still hot flushes and evening tiredness , but I’ve actually lost weight , no moobs or soreness , but if memory fog , arms and legs weight routines keeping me strong , some low days and moods. Still use daily Cialis and my pump 3 times a week out of habit. Libido not gone , just need more encouragement these days , but function still reliable. I’ve set my test intervals at 4 months to help concentrate on life and not cancer. Holidays and road trips galore. I opted out of early Enza though offered !

Hoping you all ok and a Happy Xmas to you all

Chris x

User
Posted 16 Nov 2021 at 07:59

Hi Chris,

After all the ups and downs you’ve been through these are wonderful results. Pleased that you are feeling better in yourself as well both physically and mentally.

Long may it continue.

Best wishes, Arthur 

User
Posted 16 Nov 2021 at 08:40

Hi Chris, great the HT is working and without too much detriment to your living life to the full 👍

Long may it continue.

Phil

User
Posted 16 Nov 2021 at 08:41

These sound like fantastic results Chris. So pleased and long may it stay this way . Sounds like lots to be really positive about which is great 👍🏽 

User
Posted 16 Nov 2021 at 08:48

CJ 

Good to hear from you again, things sound quite positive. I am probably not far off making the decision on HT. 

Keep going mate.

Thanks Chris

 

User
Posted 16 Nov 2021 at 10:17

So good to hear from you and things seem to be progressing well.

Keep enjoying life Chris.

Roy

User
Posted 16 Nov 2021 at 10:49

Chris,

This is good to hear, and long may it last.

Andy.

User
Posted 16 Nov 2021 at 10:55

Great to hear from you Chris. So good to read how things are for you at the moment. Enjoy many road trips and holidays.

 

Ido4

 
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