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Chris J's Journey

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User

Posted 02 May 2022 at 16:28

Thank you so much for that Jogler. Very kind words indeed and thanks for reading my story. I know I’ve been a bit of a pain on my journey and rocked the boat a bit , but my Onco loves that I challenge him and am not just a sheep following all treatments that they are duty bound to offer. Two years ago I was told I may only have a year to live if I didn’t start HT. It’s a shock like that that kick starts the brain. Anyway who knows — I’m grateful for what I have and my expert care.

I wish you all the very best in your recovery, and if you’ve read my story you will know there is hope out there on so many levels to get through this. Keep well 👍

User

Posted 14 Jun 2022 at 09:15

Just a quick update. Tomorrow is the 7th anniversary of my RP where I was diagnosed G9T4N1 , and 7 1/2 yrs since diagnosis. Minimal intervention and no SRT as it didn’t seem worth it ( and we were proved right ). No signs of metastasis until about 19 months ago and is now widespread in spine and 4 lymphs involved.

Been on HT 18 months next week and touch wood all staying controlled for now but I know the end is catching up on me surely ? I’m living , working and loving still and have very little problems with the HT — mainly flushes and fatigue. Everyone that meets me says just how well I look which is nice but we all know the enemy within. Another cruise booked for September and insurance ok now I have scan evidence that things are calm.

Aiming for the 10 year club but maybe optimistic heh.

Psa in 2 weeks and the dread that it turns up instead of keeping dropping. It’s a strain …… fingers crossed 🤞

Keep well all x

User

Posted 14 Jun 2022 at 09:34

Happy Anniversary Chris 🤣🤣.

Fingers crossed for your next PSA test . All seems to be working to plan so far and I’m sure you’ll be seeing the 10 year anniversary. And hoping I’m still around to send my wishes …

You’ve trodden your own path and although it’s been a more unusual route it’s seems to have worked out for you . You have inspired others to at least question the pathway offered by their consultant.

Goud luck, take care

Phil

User

Posted 14 Jun 2022 at 12:45

Chris, always good to get an update and see how you're doing. Glad you're still living life. Thank you for the help you've been to me over the years.....even though you might not have realised it.

User

Posted 14 Jun 2022 at 13:08

CJ, good to see things are going reasonably well. Take care.

Thanks Chris

User

Posted 15 Jun 2022 at 00:09

I told you you would still be around to bug me in 10 years - I am not changing my prediction yet xxx

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 15 Jun 2022 at 08:23

Good to hear an update, and that you are coping with the HT better than you thought beforehand. Long may you remain stable.

User

Posted 15 Jun 2022 at 10:07

Great news Chris. What a journey you have had. I’m quite sure you’ll be seeing through your 10 year anniversary. All the very best x

User

Posted 15 Jun 2022 at 13:26

Great news, your example is a wonderful support to others with G9+ David was diagnosed in 2015, he’s doing well too. His last PSA was<0.1 must be party time eh.

Keep doing whatever your doing and enjoy the cruises.

Leila x

User

Posted 15 Jun 2022 at 23:57

Keep living the life Chris!

User

Posted 15 Jun 2022 at 23:57

Keep living the life Chris!

User

Posted 19 Jun 2022 at 20:05

Just popped in the site , so pleased to read that life is as good as it can be . Well done , why stop at 10 years ? Take care

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User

Posted 21 Jun 2022 at 19:50

Sounds like things are going as well as possible Chris. Travel insurance sounds manageable, enjoy the cruise in September. Keep living well.

Best wishes to you and yours,

Ido4

User

Posted 28 Jun 2022 at 20:22

Best news ever. Feeling blessed and so lucky given how stubborn I am. Psa has come back at 0.77. Not only is this the lowest psa I have had on this whole journey , but lower than my post op results also.

Can’t think of anything else to say. I realise I’ve been so lucky , incurable or not , after 18 months of Decapeptyl. Thanks to all of you and best wishes x

User

Posted 28 Jun 2022 at 20:26

Absolutely brilliant news, keep on trucking… 👍

User

Posted 28 Jun 2022 at 20:33

Brilliant, Chris! Great news.

Very best wishes,

Chris

User

Posted 28 Jun 2022 at 20:34

Brilliant, Chris! Great news.

Very best wishes,

Chris

User

Posted 28 Jun 2022 at 21:13

👍Excellent

Your proving sometimes it pays to be stubborn

Cheers

Bill

User

Posted 28 Jun 2022 at 21:14

👍Excellent

Your proving sometimes it pays to be stubborn

Cheers

Bill

User

Posted 28 Jun 2022 at 21:26

CJ , great news , keep going.

Thanks Chris

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