Just diagnosed and terrified.

It also helps with Reaching to wipe your bottom a bit as well, if you can get hold of some moistened toilet tissues they are much easier to use or if you still cannot reach use the shower head like a hand held bidet.

Things will start to ease off soon.

I am so pleased your brother is coming up to stay to give you help and also just for the company.

I am sure there will be other Men here who have been through this without a wife or partner who will be able to come up with more ideas that might help.

best wishes

xx

Mo

Edited by member 10 Jul 2015 at 00:19  | Reason: Not specified

interesting about the nose hold and hand breathe idea, that is also a very old cure for hiccups, my Nan always made us breathe in and out of a brown paper bag (not a plastic one that wuld be cruel!!) It works every time for me. I would imagine there is science behind that i.e. breathing in your own processed air which has now been converted to carbon dioxide which in turn must be a mild natural muscle relaxant. It seems to work much better than the other usual ones like holding your breath or drinking water through a cup backwards as they just reduce the amount of oxygen you take in.

Steve, sorry just a little diversion on a bright friday morning.

Have a much more comfortable weekend

xx

Mo

I'm not sure of the science of the bladder and bowel except to say that if you have a very full bowel, and you must have by now, then it will put pressure on other organs close by so maybe that's what causes the leakage.

Just so we are reading from the same page, are you talking a urinary leak from the penis.
Is it "normal" colour or bloody or what.

I appreciate that with a catheter in you wouldn't expect leakage at all.

When you sat there "waiting to go" were you using any pressure at all ie trying to evacuate or just waiting around so to speak?

Not necessary to apologise. Unlike the Queen, who is surely a different being as she is royalty, we all have bodies that behave in more or less the same way !

Personally I would say never ignore the slightest feeling that you might be able to go.
Are you drinking plenty of fluids?

I feel ok at the moment and the sensation to go has pretty much gone, I haven't eaten anything for 5 days now so I don't think I'm that bunged up. Drinking lots of water though.

It looks normal urinary leakage, colour is fine, didn't sting or anything.

I was just waiting around to let nature take its course, no pushing at all.

Yes drinking lots and lots of water.

Before wrapping toilet roll or anything else around the point where the catheter enters you penis I would check that this is not going to, or be likely to, increase the risk of an infection?

The importance of absolute hygiene at that area can not be over emphasised, as one who has had a UTI I can tell you you do not want one if you can avoid it, it is excruciatingly painful, or was for me.

You always wash away from the catheter entry point, washing out away from, rather than in towards, the penis.

Some catheters do leak, some less so or more so than others. If it is unbearable you may be able to have the balloon at the end filled up more to try to improve the seal? Worth asking the District Nurse or your GP about.

You are doing well so far.

atb

dave

I am being very careful with the cleansing and always wiping away from the entry point down the tube.

I've still not been a number 2, tried today but nothing happened after the leak I had.

I will remember the towel technique and I must start taking the liquid softener they gave me.

Phew what a relief !

All the best with your recovery.

Thanks Chris

You'll be fine Raiden.

You've just had a foreign object removed from a sensitive part of your anatomy and it's telling you it's damned sore so be patient.
The time to panic is a lot further down the line.

Did you do your pelvic floor exercises? As soon as you feel you can cope with them get them going again, they'll stand you in good stead in the future.

Glad you're feeling relatively back to normal anyway

great the catheter is out hooray now you can turn over in bed without fear of pulling it out. No more night stand and bags to change, wash. throw away etc.

you must try and let nature do its own thing, you can help by doing exercises, changing your pad regularly and keeping really clean to avoid any infection. I know the pads seem horrendous and many men go through the fears of leaking out of it or thinking it shows through clothing. Unless you are wearing snake hip pants they won't. It is a good idea to wear those slim fitting boxers not the loose shorts but the speedo short type. they help to keep everything where it should be. Us ladies kind of learned how to deal with pads and how to secure them in place when tampons were not adequate on their own or an option at all for some ladies, bridget jones pants rule! you will also get to know that spurts can easily be contained in fact quite big spurts can be. Those pads are incredibly absorbent. I know it is not exactly the same but you get my drift.

Give it a couple of weeks to start improving you are now on the road to recovery so as Dave says be a patient patient.

best wishes

xx

Mo

R

To get an idea of what a pad will hold,  stand in the bath or shower with your pad on and some urine in the bladder and let it go. Might give some assurance if you get caught short. Try to get a happy medium between going when you have the urge and not going just in case you need to retrain the bladder. I can hold it for quite a while but can not stop, it mid stream (not that you should be doing that anyway).

Thanks Chris

First night post catheter removal....

Morning friends

Its 06:18am I have just woken from my first night without the catheter and I'm totally dry. I could feel I needed a wee although a different sensation to how it used to feel pre operation, I have just been for a wee and it was quite a big one, but nothing in my pad, completely dry. Let's hope it continues like this.

Weeing is a bit of hit and miss at the moment, I don't seem to have much control over the flow and I'm quite spurty, getting started is taking me a little bit of time to get going, also it seems when I am empty or near empty I get this sudden sharp ache in my tummy, the nurse said its the bladder muscle contracting and I'm feeling it because of the wound site.

I have to say I am very surprised, will see how I get on during the day with the leaking.

X

Stuart is so looking forward to be Cathetar free and jogging bottoms free that he is bringing his jeans and a nice shirt to change into when it's removed = he's so vain 😂😂😂😂😂

Hey Peeps

I thought I would post my 8 week update 09/09/15

I had a good 8 weeks (well over 9 weeks really) result, my PSA was 0.06, the pathologist report didnt change my staging which was good I was still T2C which they changed pre op from T3A, one thing he did say about the report was there were cancerous cells up to the boundary of the margin point, not on it or over just right up to it which he said is very normal but will need to keep an eye on it for anything microscopic.

He was happy with the result but said my next 3 month PSA test is the more important one. He wants to see it down to 0.01 if it goes up or more importantly if it goes to 0.1 or above he said because of my age he would want to start alternative treatment immediately. I didn't like this part I have to say cause to me it felt like a positive then negative. I just feel a bit like today has just been delayed for 3 months and then I have to go through it all again...

I feel great though, and back to work and stuff, everything normal apart from Mr Wiggles.

Still not much happening on the ED front, but I know its still early days. I got two pumps but not really working for me right now, it just hurts, doesn't give me an erection more like a lazy lob, it also hurts being an uncut guy, it seems to pull my bell out of the foreskin and stretches on my banjo string, almost like its just the tip that is being suck so uncomfortably hard..
I'm going for a pump demo in two weeks, I think I will wait for that as I don't want to damage anything by doing it wrong.

I looked in the mirror and laughed thinking "What in earth do you look like" lol, never did I think all those years of pumping up my bicycle tyre's that I'd be having to pump up my winkle lol

Hi Steve -- Good news I reckon mate but I get the whole " another 3 month wait " thing . I think I should have found a robot somewhere maybe , but probably would have ended up with the Brian robot from confused.com knowing my luck . Im beginning to feel that even good news can be bad news -- chasing results that can barely be measured accurately for the rest of your life , and waiting month after month for news . Having said that i'd rather be in your shoes than mine at the moment friend.
The pump detail is making me wince ouch !! I heard you're the man , but two pumps , honestly , is just bragging.
Take care and speak soon
Chris

Chris, you have mets - the best robot in the world wouldn't have done any better for you my friend

Thanks for the message and the kind words, it sounds like you have done brilliantly and are moving forward to having everything back just as it used to be

Thanks

If I can be of any help to you and the community please let me know.I wish that I'd found this website earlier as the support and advice offered is terrific.I am actually finding the support just as important post-op as pre-op as myself and my family come to terms with what we have been through.

Chris J.suggested that I introduce myself to the community but as a total loss with computers I have no idea how to do this. Any suggestions please. I would love to offer whatever help and support I can to the community.

All the best,

Cubes