Incontinence 8 week post op

User

Posted 08 Jan 2016 at 22:11

Why would anyone shout you down Louise? you and your OH have had a tough time from the start with all the various issues. What you have said to Johny sounds like good practical advice borne out of experience.

User

Posted 08 Jan 2016 at 22:17

Lol thanks Mo.

I just read it through and added that bit. I wondered if people would think what the hell would I know, I'm not the one who has to put up with pads (yet!)

And I'm not sure we've been through that much more than others, it's just that my oh is a typical tough boy farmer, and I need to talk to someone! And you all listen so well x

User

Posted 09 Jan 2016 at 14:55

Hi all.

thanks for the reply's, i really do appreciate the support, guess im a bit fed up at the moment, bit frustrated to.

The incontinence is a b**** for sure but i get on with life so to speak, its just taking so long.

Erectile dysfunction is another thing altogether, iv been given 50mg Viagra 3 times a week, not sure what the score is with it results wise, are the effects gradual? i will start another post with ref to this as i have some specific questions for members.

And my Lymphodema continues to plague me around the op site, i had 26 nodes removed but fluid continues to gather, at times it can be rather uncomfortable.

Hey oh , im still here that is the main thing.

Johny

User

Posted 09 Jan 2016 at 14:59

Johny , you're a hero mate truly
I feel sorry for myself but you are coping with ED , incontinence and Lympho all together . I admire you mate and your attitude , and know what you are going through as a whole family . Keep strong brother and talk anytime . Ask anything
Chris

User

Posted 09 Jan 2016 at 15:33

Thanks Chris,

Appreciate it for sure

User

Posted 09 Jan 2016 at 22:23

Johny

you certainly are having a rough time with it all. The questions you want to ask can and will all be answered. I am amazed constantly about the open and honest sharing of the most intimate things on here all in the interest of helping each other.

User

Posted 03 Jun 2016 at 10:21

Hi All,

Quick update on my incontinence........no change!

Post op 12 months now....still on 3 pads a day.......starting to get to me now.

Anyone out there had any changes and dried up after 12 month plus?

The doc is taking about a sling or artificial on off valve of some sort, but that means going under the knife again, something im trying to avoid.

Advice, thoughts, experiences anyone?

User

Posted 03 Jun 2016 at 14:19

My experience may not be typical, but I reached my plateau at about six months, on at least three pads per day.

Obviously the next step is entirely up to you and your medical team, but having undergone both operations, I can report that they were no big deal when compared with the original prostatectomy. Try not to let the leakage get to you; I did and ended up in a pretty dark place - not much fun for the rest of my family.

My AUS, while not perfect, continues to work extremely well (now six months on from activation).

Tony

TURP then LRP in 2009/2010. Lots of leakage but PSA < 0.1 AMS-800 Artificial Sphincter activated 2015.

User

Posted 03 Jun 2016 at 14:40

Why not try the sheath system for three months to see if it has any benefit. My Second bout of incontinence was not a direct result of the RARPbut, perhaps just coincidence but with the sheath system I went from 200 mls a day to about 5 mls. I also stopped doing PFEs and perhaps again coincidence but my incontinence improved.

Thanks Chris

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