Erecting the Erection - Medication

Hi Pablito
You're living the dream in my eyes !! Very best wishes with the test next week. I'm chuffed to nuts that the odd ED success story comes out , as to be honest it seems quite rare. Long may it continue and I pray the two months that I'm behind you makes the difference.
Chris

Some men (although surprisingly few) fear death but so many fear the loss of erectile function or continence.

That fear can promote so much anxiety, depression and loss of confidence that these mental issues can seriously contribute to the physical problems.

I really wish the medical teams and the NHS could truly recognise the impact this has on so many lives.

Billions are spent helping those who have chosen to lead a lifestyle that brings them medical problems and yet so little is invested in the life changing and devastating issues that ED and incontinence can cause.

We hear from quite a few men honest enough and concerned enough to talk openly about the issues on this forum. Sadly sometimes with partners who have lost their own mojo for whatever reason. Sometimes we even get a wife or partner who opens up about their frustration or sadness when missing intimacy, how difficult it can be dealing with both the physical and mental issues their Husband or partner is struggling with.

It is fantastic to read success stories like Pablito's, CB99's and others. Success that has taken a matter of months, has happened gradually and with lots of self help or has happened with that rare persistence of medical help when virtually all hope seemed lost.

I do think PCUK can help to make changes that will focus on this major issue, just like the fantastic job they are doing with awareness, treatment research and community support et al.

I know that these problems reach far wider than prostate cancer, all the more reason why more NHS help should be offered and readily provided.

In the meantime, the more people who share their experiences and talk about things that have helped both mentally and physically the better.

I wish every one of you the very best as always

Xx

Mo

Hi guys
I just wanted to post an update on this important topic that some people find it hard to discuss , mainly to give encouragement to men behind me in terms of surgery and HT.
I am now exactly 16 months post surgery and although I was on Bicalutamide HT for 11months , I have now been off that for exactly 2 months.
I have recently returned to what I would call normal erectile function. A full erection (albeit smaller and a bit bent ) capable of penetration and orgasm , but only when with my wife. Solo doesn't work !
I have put every ounce of my energy into getting this function back as most of you know.
I have used the pump religiously for exercise every day from 8 weeks post op. I still do.
I tried event doses of Viagra Levitra Cialis and Spedra.
I used injections maybe 12 times but the pain was unbearable.
I started daily 5mg Cialis and things instantly improved !!
Thing is , I think the present success is down to pump , Cialis , 16 month healing , and withdrawal from HT altogether. That and a lasting desire to maintain a sex life.
If I was in the cure camp with an undetectable psa I think I would be in a pretty damn good place right now with further improvement possible.
Thing is , as expected , my psa is immediately on the rise and I will be having a PET scan at Oxford very early next year so we can locate any extra spread as well as my lymph node and bladder involvement. Then I will be straight back on HT and/or RT which quite frankly makes me feel sick with fear. And I will lose erectile function for a second time , or my libido , or both which grieves me to the core having got this far.
This damn cancer has sat on my shoulder everyday for 25 months now , and more or less consumes me.
I send wishes to all fellow sufferers , men and women.
Chris

To Chris et all!

Great post Chris and thanks for sharing!

I have an appointment next Monday at the ED Clinic.

Guess what, I've just returned from holiday, during which time because of the side effects, I decided to take a break from Cialis.

Somewhat to my surprise, I manged a "full on fit for purpose erection" c 48hrs post taking my last tablet!

Just over a week on, and I seemingly am now able to get a "natural erection" and also achieve orgasms.

I feel like a "born again virgin" discovering the joys of penetrative sex for the first time.

I'm a week shy of my 18mth post-op anniversary, I'm so chuffed!

I would reiterate from Chris's post that my own success is down to the pump, Cialis, 18 mths of healing, a desire to maintain regain a sex life and the skill of the surgeon!

I also wish the same recovery for all other sufferers!

Pablo

Brilliant news and not so great, all rolled into one. Even if you do decide at some point to go ahead with it, RT may not cause ED (it didn't seem to cause John any problem) and your existing track record with the HT suggests that you may not lose your libido when HT is reintroduced ... Alathays was one of those enigmas whose desire remained all the way through many different treatments.

Lots of love x

A positive update for all you warriors !
Even though relatively happy on daily Cialis I have been waiting six months to trial the new super-injection. Indeed twice I have turned up to clinic and they had not received it. But at least I found out it's name Invicorp 25mg. It's from the same family as Alprostadil but is two chemicals in one injection. One to increase blood flow to the penis and the other to stop blood escaping. It has been shown in trials to work for upto 75% of men where all other treatments have failed , including Caverject and Viridal which I have used. Very few side effects.
So I looked it up and it is available everywhere except the NHS apparently. Being me , I filled in an on-line questionnaire and received it privately for £24 per injection.
The golden chalice ? ..................... YES !!
The best erection with internal firmness in 17 months post operation.
Lasted as long as I wanted it to really. 90nminutes and it faded at will.
Slightly fiddly injection with glass phial but tiny needle.
I had ZERO pain from start to finish. Non whatsoever , whereas Caverject and Viridal caused me almighty grief on the pain front.
So it is utterly the perfect event drug for me but obviously may not work as well next time as all injection users know.
The downside is that I had to buy 5 , and they need to be stored in the fridge. Unfortunately the shelf life is only 2 months so this is a problem
Remember to take the sticker off that says " inject into the penis " , to save embarrassment.
Always be safe and consult your GP , but drive your own recovery or you can be forgotten very easily.
Best wishes to all blighted
Chris

PS Only side effect was severe initial flushing of face. Almost like CT scan dye. Was quite pleasant tbh.

Edited by member 08 Nov 2016 at 18:34  | Reason: Not specified

Chuffed for you Johny! Great news mate