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User
Posted 14 Jan 2016 at 15:53

I'm so pleased for you Duncan . It must be lovely to have that "cured" comment !
I hope the incontinence gets better . Lots of talk of late on here about PFE's . I was extremely lucky on the continence front yet I just do them each day anyway . Its not a prob while I'm reading the paper or watching TV .
The SOMAerect is the pump I have , and despite zero natural recovery yet , we find the pump superb and fits our needs mostly tbh . PM me if you have any questions on its use etc . I was supplied super stretchy rings and told NOT to use the ones supplied with the pump as they are basically outdated . I have the prescription numbers for all the SOMA gear if you need them
Chris

User
Posted 14 Jan 2016 at 16:33

Thanks Chris, I may just take you up on your kind offer...I'm grinning from ear to ear at the moment....

User
Posted 14 Jan 2016 at 16:51
Hi Duncan,

Your outcome somewhat mirrors mine but I am coming up to 12 months since my op. The incontinence issue seemed to improve daily after the first couple of months. I ended up just wearing pads as a kind of safety net then one day thought I would go without. I had the odd accident but nothing to write home about and now very occasionally if I sit on a chair in position that presses on my under carriage I get a small drop. It is certainly nothing like the scary Trumpton fire engine effect I had when the catheter was removed. I had no control at all.
My surgeon is a really dry chap and when I asked him if I could ride a bike he just said ' could you ride one before'. I have not experienced any negatives from cycling.

Onward and upward.

Paul
THE CHILD HAS GROWN, THE DREAM HAS GONE
User
Posted 14 Jan 2016 at 16:52
Good news Duncan
Get the cork popped mate.
Not far behind you, got my catheter removed yesterday.
Still stinging when I pee but better out than in.
anyway you enjoy your night mate.
Sandy
User
Posted 14 Jan 2016 at 17:43

Lovely news Duncan

So pleased for you (and your missus of course !!)

We can't control the winds - but we can adjust our sails
User
Posted 14 Jan 2016 at 21:22
Duncan
happy news makes me smile ... a lot
get that cork popped and enjoy
Several good Men on this forum who can give you really good advice about that pump.

Cheers

xx
Mo
User
Posted 15 Jan 2016 at 17:39

Good news for the weekend Duncan.

http://urology.jhu.edu/newsletter/prostate_cancer52.php

I read this some time ago, a bit dated now, but gives a suggested prognosis of likely recovery or recurrence. The longer you go with steady PSA at less than 0.1 or virtually undetectable, the better. I think I recall a comment that PSA at less than (<) 0.1 are all okay. So <0.1 or <0.001 etc, all are good. Some readings fluctuate and that may be due to the Lab, or the machine at the Lab?

Have a great weekend celebrating.

dave

All we can do - is do all that we can.


So, do all you can to help yourself, then make the best of your time. :-)


I am the statistic.

User
Posted 13 Mar 2016 at 18:39

Evening all, quick update...

Back to work tomorrow, although to be fair, they were happy for me to stay off longer....phased over 6 weeks, 3 mornings this week, I think they're playing it VERY safe....

Update on other activities....I've had a couple of good days where I've only used 1 pad, daily average is 2.12 over the last 6 weeks.....

Use the pump twice daily, we have had some "success" without it though (big smiles all round)...

Still waiting for my clinic appointments and my next PSA test is due early April

Speak soon

D

User
Posted 13 Mar 2016 at 21:27
D

All the best for your return to work,depending on your type of work you may find concentrating on your work takes your mind of the leaks.

Thanks Chris
User
Posted 14 Mar 2016 at 06:36
D
Good that your company recognise the need for a gradual return to work, you may be surprised how much just the routine of it takes out of you.

As for the other elements of making a full recovery then it sounds like you are making good progress.

All the best
Xx
Mo
User
Posted 11 Apr 2016 at 19:17

Evening all

Just had my latest PSA test, less than 0.1....happy bunny again

Had a good week in terms of pads, 6 out of 7 days I managed with 1 pad only....dry overnight....

In terms of ED, we've had some "fun" without the pump, which is just as well as I broke the handle on it....waiting for it to be replaced under warranty....

My last week as part of my phased return to work, full time from next week, and they've approved a flexible working arrangement from mid June so I'm going to a 4 day week (compressed hours)... If you don't ask you don't get :-)

Duncan

User
Posted 11 Apr 2016 at 19:28

Great news, good luck with the return to work.

User
Posted 11 Apr 2016 at 20:39
Hi duncanac really good news on psa, my oh had his first psa result 2 weeks ago post op and it really does feel like a weight has been lifted - enjoy crack open the wine or in our case I got the champagne 😊 Paul was on phased return to work did first full last week all good just got weary towards end but to be expected. Getting there slowly ... Take care jx
User
Posted 11 Apr 2016 at 21:17

That's good. Well done.
In my work I can sit a lot, so I am going to go back full time a month post-op and hope it goes OK. It feels at the moment as if the main task is to cope emotionally with leaking. I ordered some samples of different types of pads yesterday, so I can work out what makes me most confident. The district nurses locally have been conspicuous by their absence ...
Best of luck!
Henry

User
Posted 11 Apr 2016 at 21:37
D

Good news on the PSA long may it continue. Is being occupied working taking the mind off leaking, hence the improvement.

Thanks Chris

User
Posted 12 Apr 2016 at 16:51
Duncan, great psa result and improvements all round. I don't think I dare ask how you broke the handle on your pump, swinging from the chandeliers comes later down the recovery path.
xxx
Mo
User
Posted 15 Jul 2016 at 18:31

Evening all

Not posted for a while so I thought I should give you all an update

Got the latest PSA results today....less than 0.1 so we're happy

On the incontinence front, still using a pad a day most days, occasion two, PFEs continuing, Solifenacon 5mg daily, leak more when I'm tired or had a "sherbet" or two, mostly dry at night, being honest I wish I was totally dry but it's work in progress

On the ED front, using the pump daily, Cialis 20mg twice weekly....and we've had some naturally occurring success too, so we're both happy on that front too...

Work wise, I'm piloting compressed hours and a 4 day week (taking Momdays off) which is brilliant....

Duncan

User
Posted 15 Jul 2016 at 18:52

Glad it's all going well for you Duncan.

We can't control the winds - but we can adjust our sails
User
Posted 16 Jul 2016 at 08:05
D

Another good result,well done. I see you are taking Solifenacon,how effective has it been and have you suffered with side effects ? Hope they have not compressed your salary.

Thanks Chris
User
Posted 17 Jul 2016 at 17:40

Afternoon Chris

I really notice the difference on Solifenacin, helps control the urges...no side effects that have bothered me at all...and no, they ain't cut the salary, my boss worked it out that if I did 15 mins extra 4 days a week, I could get a day off...shows just how many extra hours I was doing...I have to say they've been very supportive throughout the whole episode...

Duncan

User
Posted 07 Oct 2016 at 16:58

Afternoon all

The latest bloods this week, rang today for the results...."All ok...".... Had to ask for the specific PSA value...."less than 0.1"... Yippee, another milestone

Still using a pad a day, but dry at night (unless I've had a wee swally where I use a pad just to be safe)....really good progress on the ED front when we've seen a few natural spontaneous erections. Still use the pump on a regular basis though....back to see the Professor next month

So apart from slowly progress on the bladder front I'm pretty happy with where I am....still have the build up and release round about the blood tests, haven't quite got my head in the space where I can forget about them.....but the town called Acceptance is still a pretty good place to be....

Duncan

User
Posted 07 Oct 2016 at 18:26

Well done Duncan

***

We can't control the winds - but we can adjust our sails
User
Posted 07 Oct 2016 at 18:57
Duncan, all sounding very positive, long may it continue
xx
Mo
User
Posted 07 Oct 2016 at 19:00
D

Good news on the PSA, onwards and upwards on the ED. Might have a swalley myself tonight.

Thanks Chris
 
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