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User

Posted 24 Apr 2023 at 23:05

I had my PSMA scan this afternoon and see the oncologist on Thursday, although the report will be ready tomorrow morning.

Did anyone have kidney pain after having the gallium tracer, I have been drinking plenty of water and my kidneys are not in the best of condition.it is just painful when moving.

Franci, after a very brief discussion with the scan man he agreed to include the knees.

Thanks Chris

User

Posted 25 Apr 2023 at 05:56

Wishing you all the best for your results Chris

Cheers

Bill

User

Posted 25 Apr 2023 at 13:32

Fingers crossed for you Chris...

User

Posted 25 Apr 2023 at 13:33

Fingers crossed for you Chris...

User

Posted 25 Apr 2023 at 17:42

Fingers crossed for you. I’ve had a Gallium tracer a couple of times, no issues kidney wise.

Ido4

User

Posted 28 Apr 2023 at 07:05

Nine years ago today I was having surgery to remove my cancerous prostate. Around five years ago I was having salvage RT to my prostate bed. 8 months ago I had a lymph node treated with more radiation treatment.

Yesterday I was told there is still something in the lymph node treated last year and there is a new tumor in another lymph node in the pelvic abdominal area. Nothing showing in the troublesome knee.

The oncologist is to have a meeting with the radiology team to discuss options, the new tumor may be treatable. There is possibly a risk bowel or blood vessel damage by retreating the previously treated tumor and if the risk is considered too great they would not do it. He did point out that is thier choice not mine. It may be that they treat the new tumor and see what happens to the existing tumor.

Not sure how I feel at the moment, less optimistic of getting a cureable treatment. Plus the treatment would be carried out 110 miles away from home with 4 to 6 visits.

Thanks Chris

User

Posted 28 Apr 2023 at 09:28

Not the best news, Chris. I'm so sorry to read that. There's a difference between the terms "treatable" and "cureable" and, emotionally, it's not easy to move from "cureable" to "treatable", but at least, it's confined to the pelvis area and many ways to deal with this f**** desease are available these days. I hope everything goes ok and you can cope with it.

User

Posted 28 Apr 2023 at 11:38

Sorry to hear that Chris. I do hope they find a way to keep you on the curable pathway. At least the decision is taken out of your hands and you are not presented with a dilemma.

User

Posted 28 Apr 2023 at 12:01

Sorry to hear this news Chris. I guess you have to go with their judgement.

User

Posted 28 Apr 2023 at 12:33

Sorry to read this, any point in having a second opinion ? Might give another perspective.

This disease tests our strength, and resilience doesn’t it.

Take care.

User

Posted 28 Apr 2023 at 18:59

Hi Colwick Chris,

I'm so very sorry to hear your news. I reallly hope they can sort it. What a roller-coaster ride you have had over the years. Keep us all posted.

Take good care of yourself.

JedSee.

User

Posted 28 Apr 2023 at 19:01

Lola , Chris B, CJ, Leila and Jedsee, thanks for your replies. The meeting yesterday was a bit sobering to say the least.

I just need to get my head back on track.

Thanks Chris

Edited by member 28 Apr 2023 at 19:04 | Reason: Post crossed

User

Posted 29 Apr 2023 at 16:06

Hi Chris

You got through all the previous s*** thrown at you, I'm sure you'll get your "head back on track"

It seems you have no decision to make, unless of course you get a second opinion.

Best of luck

Cheers

Bill

User

Posted 29 Apr 2023 at 20:45

Bill63 thanks for the reply,just to elaborate on the onco meeting. The tumor found and treated last year is still lighting up the PSMA scan. When asked about the possibility of retreating it the reply was along the lines of , it was difficult to treat it in the first place and retreating it runs the risk of putting a hole in the bowel or a hole in a blood vessel,that could result in major emergency surgery and people do die in those situations. So the decision on retreating in not in my hands. The choice of other options,such as treat the new tumor or go for HT or other yet to be suggested treatments still lies with me.

I have another meeting with the onco within a couple of weeks to see what the experts think.

Thanks Chris

User

Posted 29 Apr 2023 at 21:33

Hi Chris, There is a video on YouTube where the oncologist says the risk of burning the intestine with modern equipment is very low. He does emphasise in the hands of a good operator and he probably wasn't talking about retreating an area. Perhaps it's something worth looking into although I can understand you not wanting to take the risk. Peter

User

Posted 29 Apr 2023 at 23:14

Sorry to read this Chris.

Ido4

User

Posted 29 Apr 2023 at 23:26

Is surgical removal out of the question too? Did he explain why it hadn't treated the lymph node successfully? Was it the difficulty of getting the ray gun passed your other parts?

As it lights up so we'll with PSMA is there no option for a leuticium trial??

User

Posted 30 Apr 2023 at 00:18

Peter, it was the onco who does not want to take the risk, hence his comment "that's our choice to make not yours."

Franci, don't know about surgery being an option, is an irradiated lymph node as challenging as and irradiated prostate, I don't know. I did ask the question of why my PSA was rising and he said it happens. There may be ways around it but I don't meet the criteria for leuticeum, not had HT.

Ido , thanks, my brain is regrouping, almost back to not worrying about things I can't control. Big concern at the moment is taping and filling my daughter's utility room ceiling 😁.

Thanks Chris

User

Posted 02 May 2023 at 00:51

Ah, so sorry to see this CC. The trouble is, if you go for local treatment on the new node, more are just going to pop up somewhere else at some point. I think if you were my OH, I would want you to start systemic treatment now before any more spots have the chance to develop. Good news on the knee though - time to see a physio?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 02 May 2023 at 20:22

Lyn, thanks for your reply, I did have physio on the knee but it didn't help ,a steroid injection helped for a few weeks.

Thanks for your thoughts, they are appreciated, certainly a subject to bring up with J.

Perhaps I am chasing a pipe dream and not ready to give up just yet.

Thanks Chris

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