New and concerned

User

Posted 22 Dec 2015 at 17:35

Hi Neville.

You have similar numbers to my OH. His psa was 9.2, he was 58 at diagnosis.

His Pca was contained and therefore operable.

My father also has Pca. He was 61 at diagnosis, psa 38, local spread. (He's still very much alive and well 15 years on).

My point being that maybe these psa scores will give you some idea of what to expect in your phone call. It doesn't always follow, but prepare for bad news and if it's not, you can rejoice and move on.

The pad and paper is essential. Write down your questions before hand. If there is a diagnosis of Pca, I would suggest you want to know the following

Gleason score

What percentage of cores were positive

What next

I shall keep everything crossed for you

Louise

User

Posted 24 Dec 2015 at 10:42

Just had phone call with results of my Biopsy.

consultant conformed I do have cancer, he is arranging for me to have a bone scan and an MRI scan within the the next ten days.

My Gleeson score was 9 (4+5) and at stage T2', but needs the MRI and bone scan to confirm this.

He discussed various treatments including surgery and radiotherapy and said that active surveillance was not an option.

Merry Christmas All

Neville

User

Posted 24 Dec 2015 at 12:54

Hi Neville,

Not good news to receive at any time of the year.

Once the MRI and bone scan results are back you will have a clearer idea of what treatment plans you need to focus on.

Meantime, try to enjoy your Christmas.

Best Wishes
Luther

User

Posted 24 Dec 2015 at 13:17

Sorry the news wasn't better Neville, but at least you know what you are dealing with now.

I don't suggest you do it over the Christmas period but if you haven't done so yet, then download the Toolkit.

Not easy I know, but it isn't going anywhere so try and put it to the back of your mind and get Christmas out of the way.

If you are pondering things and want answers or advice then post. I'm sure there will be somebody around to reassure you.

I hope that you and your family can have some semblance of a reasonably happy Christmas.

Best Wishes to you all.

Sandra

We can't control the winds - but we can adjust our sails

User

Posted 24 Dec 2015 at 13:18

Hi Neville
So sorry to hear your results.
The scans will be to see if there is any spread before they decide on the optimum treatment for you.
Not easy but try to enjoy Xmas. This whole disease is a waiting game.
Best wishes
Chris

User

Posted 24 Dec 2015 at 17:31

Hi Neville, just seen your update sorry it's not good news. It's very hard especially this time of the year my husband going into hospital on Monday for surgery feels very surreal at present but support here is great. Take care Jayne.

User

Posted 24 Dec 2015 at 21:07

Hi Neville,

Just as well you initiated the process by seeing your GP when you did. Your symptoms served as a good prompt. Not all men that have PCa have worrying symptoms and their cancer sometimes advances without their knowledge. Wish you well on your cancer journey.

Barry

User

Posted 24 Dec 2015 at 22:26

Hello Neville

I'm sorry it was the news you feared it would be.

The figures are very similar to my husband. He had a Gleason 7, upgraded to a 9 on pathology. He had surgery 12 months ago. Latest psa test four weeks ago was undetectable.

The good news is that if they are offering you surgery as an option, they consider it curable. Try and hold on to that.

Sending you best wishes

Louise x

User

Posted 24 Dec 2015 at 23:15

Neville

Lordy lord...not what you needed to hear

But...

Maybe not the best news but a T2 is better than a T3 or 4.

I would say the gleason 9 is why AS is not an option.

Still time to sit back and consider options that might be open to you.

Sometimes that takes a lot of patience and resolve .

Unfortunately timing could not be worse in terms of holidays so I just hope you can try to enjoy Christmas and them deal with all this in the New Year.

I wish you all the best

User

Posted 25 Dec 2015 at 03:48

Sorry to hear your news mate. We are all rooting for you, please try to ignore at this special time and enjoy the now.

Kev

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User

Posted 25 Dec 2015 at 08:31

Neville, not good news for you and family. Very sorry to hear results have gone the wrong way, try to stay positive through Christmas and new year and enjoy as best you can.

My thoughts are with you.

Regards Chris/Woody

Life seems different upside down, take another viewpoint.

User

Posted 25 Dec 2015 at 10:22

Hi neville

Stay focused and try to be positive - I had my surgery on 11 December and I am feeling pretty good - everyone on the forum is thinking about you

User

Posted 05 Jan 2016 at 07:35

Happy New Year everyone.

Yesterday I had an intravenous urography, I also have dates for a bone scan and also MRI scan on 18th and 22nd January.

Just have to wait for these results to see what treatment I need to focus on.

Neville

User

Posted 05 Jan 2016 at 09:12

Happy New Year to you too Neville.

2016 will be the start of your new life and a different you in some respects but you'll be around to enjoy many more I'm sure.

Good luck with the scans and the result of the urography.

Please keep us posted and as usual we will all be rooting for you.

All the best

Sandra

We can't control the winds - but we can adjust our sails

User

Posted 05 Jan 2016 at 16:59

Hi Neville,

just wanted to say good luck on the scans. Its a worrying time but sounds like you're getting everything done that needs doing and then once results are in, it can focus your mind. I was dx six months ago and found the site really useful and people so helpful when needing to get the information regarding the scans and what maybe ahead. Six months later I am going through the chemo and HT but at least I know what to expect and what some others have gone through and can relate it to myself.

All the best.

steven

User

Posted 06 Jan 2016 at 10:46

Hi Neville just catching up as been very busy since Paul's operation last Tuesday. It is horrible waiting for results but once your consultant has all the facts you will be surprised at how quickly your treatment plan will be sorted and you can start to get your head round what is happening to you. Keep us updated, there is always support here for you and your family. Jayne

User

Posted 06 Jan 2016 at 15:31

Neville

Definitely moving along steadily.

Remaining tests all seem to be booked up and then there will be a rather anxious time waiting for results and treatment options.

Let us know how it all goes

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