Hi there again Lyn & Nidge
I have taken a little while to reply as I have been getting the correct information from Mum & Dad. So here goes, lymphodema has been mentioned but according to some of the tests they have done, they are quite sure that it has not spread into the lymph nodes.
No, he has not been asked to measure his fluid intake against his urine passed.
He has been given 2 different lots of water tablets, but neither of these have made any difference and a heart scan has been mentioned but nothing has happened yet. He says the skin is hard to touch but there is no substance oozing out at all.
It just seems more of the same again, the Onco saying your GP should sort that out and the GP saying the Onco should sort him out. In the meantime, he is struggling along.
They would understand if it was said that it was just an effect of coming off the chemo and steroids but no-one seems to want to commit to actually saying this. Apparently Nidge, he was on 5mg steroids too. Hope your breathlessness and bloatedness subsides. Have they told you that this is a normal after effect?
Thanks for your help ............. again :-)