Bone scan with PSA 13?

User

Posted 27 May 2016 at 20:13

Pleased to hear your bone scan has come back normal David 👍🏼
My dad has a PSA of 14 with a T2/T3 cancer with suspicion of invasion of capsule, A Gleason score of 4+3=7 and 3+3=6, His consultant has said he doesn't think it has spread elsewhere (don't think he should have said that as I am now holding on to those words for dear life !!) He is having a bone scan on Wednesday of next week, I'm now feeling worried that people are saying this isn't usually routine, fingers crossed for good results
Viv
X

The only time you should look back is to see how far you have come

User

Posted 27 May 2016 at 20:24

Hi David, Still going well, only a few drips when I practice PFEs. Getting back to normal, external wounds disappearing. Still very tender underneath, so take a cushion to some venues. When is your team meeting equivalent, mine is 24th June - Addenbrokes said they would phone the week before with summary of findings.
Good luck for future!

User

Posted 02 Jun 2016 at 20:36

Mazdad, my meeting is dated for June 21st. No planned phone call first, Lister, Stevenage.
It's the lymph node worry for me. They took them all out, so I am hoping that IF anything had got there (nothing showed on MRI), then it has been removed, but that may be wishful thinking. 'Live' pathology during the RP showed negative margins everywhere hence they spared both nerves. It's the microscopic spread possibility......however unlikely!
Belly button wound still a bit open, being looked at every 2 days locally, but it's ok.

Vivienne, thanks for your comments and good luck to your dad.

User

Posted 03 Jun 2016 at 09:12

Hi David. Good about tHe live pathology, I don't know if I had any nerve sparing, but I did have the lymph nodes done on the surgeon's advice. I'm expecting a call next week - it's not necessarily something to dread if there is a bit of positive margin, it can often be managed. I've had an allergic reaction around the 2 main wounds, possibly the glue, very rashy and itchy. I'm still bearing the cushion of shame most days, worst in the car, the sports suspension seemed a good idea at the time.
Good luck on the 21st.

User

Posted 03 Jun 2016 at 17:24

Just a warning note about side effects: surgeons don't always tell you about lymphodoema associated with lymph node removal. In my case, my left leg is appreciably fuller than my right. The lymph fluid doesn't drain so well with part of the system removed and gathers in one or both legs. You may be offered support stockings (which I found useless, dropping like Nora Batty's) and massage, which can give some relief, but is of course temporary. My answer is to prop up my feet on a footstool when sitting down or try to sprawl with my feel on the sofa arm (when the dog gets off and lets me!).

I was very glad to learn that my lymph nodes were clear, but how I wish they could have been left in situ and scanned somehow to tell me that! No doubt one day that will be possible.

User

Posted 03 Jun 2016 at 18:08

Hi, my legs were very swollen in the hospital overnight, but since have been Ok. They kept telling me I was dehydrated and getting me to drink more. I wore the stockings for nearly 4 weeks and was very relieved to finish that. I've not had my feedback yet, so time will tell if I' m clear or not.

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