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A New Chapter

User
Posted 22 Mar 2018 at 11:15
Steve

Sorry to hear about the rise but at least we are both still here to moan about it. Keep smiling mate.

Thanks Chris

User
Posted 01 Apr 2018 at 17:48

Hi,

Well, it's 12 days since I restarted hormone treatment (HT) again and today, I've been suffering chest pains again.  Only mild, but irritating.  Using my GTN spray did help get rid of them but the return of cardiac problems is

not what I wanted to happen. 

Last week, the oncologist was concerned that I might have cardiac problems again if I restarted HT,  but in many ways, I didn't have a choice.  

Since the effects of my previous HT had worn off, I've not had any heart problems.  I was really enjoying getting back to normal. 

I really hope cardiac issues aren't going to start again, I really have enough to deal with.

Steve

Edited by member 02 Apr 2018 at 20:02  | Reason: Not specified

User
Posted 01 Apr 2018 at 20:59
That’s crap! Horrid to have to weigh risks and benefits. Consider all options, including not having hormones that make daily life worse. Medic.s tend to find it hard to factor simple quality of life issues when offering advice as they can get stuck on ensuring the right treatment for their bit in the puzzle goes ahead.

Be brave! Henry

User
Posted 01 Apr 2018 at 21:15
Hi Steve, so sorry to read that. Hope the medics can come up with something to make the HT tolerable.

Are you getting a cardiac check done?

Best wishes, Ian.

Ido4

User
Posted 02 Apr 2018 at 06:18

I am sorry to learn your news too Steve. Does you oncologist liaise with the consultant involved with your cardiac condition?

Barry
User
Posted 02 Apr 2018 at 08:55

Thinking of you as usual Steve.

We can't control the winds - but we can adjust our sails
User
Posted 02 Apr 2018 at 10:10

Steve

sorry to read you're having troubled times yet again. Fingers crossed they get the treatment for you sorted.

Ray

User
Posted 03 Apr 2018 at 11:26
Hi Steve, have you had any of the newer PSMA scans to try and localise the recurrence?? If it's in a node that can still be irradiated this could help??
User
Posted 03 Apr 2018 at 20:28

Sorry to hear about the poor result Steve. Hope you get back out running soon, good weather on its way.

User
Posted 05 Apr 2018 at 01:57

Hi,

Thank you all your supportive messages.

Fortunately, the chest pains I suffered at the weekend have stopped since I decided to take some tablets that my oncologist gave me over a year ago which are supposed to help with controlling angina.  Since I recovered from the effects of my original HT, I had found that most of the heart issues hadn't caused me any problems.  My cardiologist had agreed at that time that I needn't start taking the tablets unless I was having problems again.  What happened at the weekend seemed the right time to try them out and fortunately, they seem to be working. 

My regular Oncologist worked in the cardiac field prior to moving over to cancer treatment so usually the decisions about my cancer care is based on my current heart situation.  Otherwise I'm not sure if the two departments share info.  It's always in my notes anyway.

Well, on Tuesday morning I had my first Zoladex implant.  Interesting because my GP couldn't find any of the freezing agent he would normally use to deaden the point of entry.  He asked me if it was ok for him to continue and I said it was fine with me.  After some of the stomach injections I've had in the cardiac unit in the past, this was a piece of cake.  It was soon over and didn't really hurt that much.  

This morning (Thursday), I'm due to have a Bone Scan at the hospital.  The oncologist who I saw two weeks ago, thought that this would be the only scan worth doing at this stage as CT & MRI Scans probably wouldn't supply any new information.  With already having had about the maximum radiation during Radiotherapy I don't think there's much they could do unless in the future, I had a lot of pain from a particular area and they needed to give me a blast of RT to try and control that. 

So I think the plan for me is very much about trying to control the cancer's development.  Lets hope that will be for many years.

Steve

 

Edited by member 05 Apr 2018 at 02:07  | Reason: Not specified

User
Posted 05 Apr 2018 at 08:43

Glad you got some of it sorted Steve

Good luck with the scan

We can't control the winds - but we can adjust our sails
User
Posted 05 Apr 2018 at 11:11
Glad you have resolved cardiac issues with the medication Steve.

I had a bone scan 26/2, still waiting on results. Hope all goes well, Ian.

Ido4

User
Posted 05 Apr 2018 at 23:57
Hi,

Bone Scan done. Hopefully, may get the results by the end of next week. I feel ok.

I face a really busy weekend and week ahead. It will be tiring but then my wife and I are off for a short break in Amsterdam to see the tulips. Looking forward to that, it's been a tough month, in many ways.

Steve

User
Posted 11 Jun 2018 at 18:41

Hi,

Today is four years since I was given the news that I had Prostate Cancer.  News that was to change my life forever. Little did I know how much.  

I always thought that I was pretty healthy but following my diagnosis and radiotherapy treatment, I suffered a heart attack resulting in nine cardiac admissions into hospital, three heart operations and receiving the news last year that I am also pre-diabetic.

Perhaps the worst news was, three months ago, finding out that my curative treatment for my cancer had failed.

I now face a journey that no one wants to do but it will be one that so many face here.  

I know that journey will be difficult but I know that the support I have received and continue to receive here will help me through.

Thank you.

Steve

 

Edited by member 11 Jun 2018 at 18:44  | Reason: Not specified

User
Posted 11 Jun 2018 at 19:03
Steve, so sorry that your have been going through all this. I understand how you feel: tired, sad, but after having fought life so hard, please, keep on going. This is not the end of the way.

It seems your PC is still there, but even so, come on. Try to find some relief to your dolency and live

You know better than me that even with that f***** disease men can survive.

Big hug!

Lola

User
Posted 11 Jun 2018 at 21:28

Hi Steve, it’s a difficult road we are travelling, I hope you can get to a point where you feel better than you do right now.

Last time you posted you had a bone scan. How were the results?

Have you had any other scans?

best wishes, Ian

Ido4

User
Posted 11 Jun 2018 at 21:33
Hi Steve,

So sorry the RT failed to do the job and for all your cardiac problems. Hope HT works well long term and anything else that needs to be added or changed in due course. Do let us know how it goes.

Barry
User
Posted 11 Jun 2018 at 22:30
Hi Steve,

Sorry to read your update - what treatment are you having now?

Keep strong.

Best wishes,

Arthur

User
Posted 22 Jun 2018 at 03:22

Hi,

Sorry for not posting recently, there's a lot going on at the moment. 

It was our 35th. Wedding Anniversary on Monday, had a nice day in the Cotswolds to celebrate.  Last week I was busy at Wimbledon photographing the preparations for the start of the tennis tournament.  A few weeks ago we went to see the Harlem Globetrotters play which was fun and was especially nice as we got to meet the players after the game.

Healthwise, when the bone scan was done back in March it came out clear, so good news on that front.

The hormone treatment (Zoladex) is going as before with the usual side effects: fatigue, hot flushes, ED etc. but really I will just have to get used to the idea that this is my life now.

I did have my first PSA test (last Friday) since starting treatment again and the results were that my PSA has fallen from 4 in March to 0.775 now, so I'm happy with that.  I see the oncologist next Tuesday but I expect that to be a very routine appointment with those results.

Disappointed about missing the MOTS meetup at the weekend but I have a wedding to photograph.  I hope everyone who is lucky enough to be there has a great time.  Maybe I might be able to make it next year.

Steve

 

 

User
Posted 22 Jun 2018 at 18:25
Steve

All sounds pretty good in your new life.

I understand totally what new life means and like you have to adapt to the new level

I'm so glad you are still doing the photography to keep you active.

Great numbers on the scorecard.

Keep on trucking

All the best

Paul

 
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