Willy

Hi Henry, I see you have been a member for quite a long time so you have probably read all the relevant threads but just in case, have a look at this http://community.prostatecanceruk.org/posts/t9839-One-wife-s-story-of-ED#post119001

You will see my friend that there is nothing we can't talk about on here (as long as it isn't discriminatory or offensive)

It is great that you are using the pump regularly - do you also use the construction rings and use it to have sex? Have you tried Levitra which sometimes works for men that have had no luck with Cialis or Viagra.

Did the bend in your willy (Peyronies Disease) exist before you had the RP or is it a newish problem?

And final question from me, do you have a partner and if so, are they helping you or making you feel worse?

Thank you for chatting so open and honest about ED I have the bend since having operation
I find it difficult to talk about, however it's a bit easier on here because I think everyone understands, I thought about replying privately and thought somehow that would be me not facing up to my predicament
Yes I'm married but find it not as awkward to chat on here if that makes dance
I have tried using retention rings but any movement on my willy and it goes down and I feel stupid with the ring on

Do you have an ED clinic ? Worth asking for a re-visit ? Maybe the rings are the wrong size ? Have you tried daily Cialis rather than event doses ?
Some guys find it crippling to talk about which is a terrible shame , even with their own partners. It's the biggest hurdle for some. The pump with Cialis can give great results. I've learned to slow it all down a bit and not panic and just incorporate it in the bedroom.
Feel free to PM me if you have questions you feel unable to air in public.

Hi Henry, I have not had a RP but because of the HT I have no libido and no erections and also have a bent willy. I was to see the urologist about my Peyrones disease and potential surgery before Dx with PCa but PCa took precedence.

I have been taking Cialis20mg twice weekly and using the pump for the last six weeks and do get results from the Cialis without the pump and also get the same result when I do use it. There is definitely a loss of girth and length and when I have tried to use my Mr Hampton unfortunately the lack of libido takes over and I lose what there is and also lose the interest( what little there was)

As you have found out , now that " you have said it" sometimes it is a problem halved to speak out and share it.

Keep working at it Henry, best wishes to you

Chris/Woody

Life seems different upside down, take another viewpoint

Edited by member 18 Jun 2016 at 14:58  | Reason: Not specified

I seem to recall there were some issues with caverjet injections and alprostadil,with men who had Peyronie's problems. Also I know a pump can be used to treat Peyronie's disease but isn't the technique different.

Thanks Chris

Another here with ED and like Chris ( Puffingbilly ) it's from HT. I have not had a RP but have no libido. I am now on daily 5 mg Cialis and also use the pump. As both you and others have said its by being on this site that you realise that you are not alone in how you feel and what you've experienced. In fact if it hadn't been for this site then I don't think I would have sought ED help, having been overlooked by my otherwise great medical team for this.

Like Chris J I also wonder what has happened to the previous size I enjoyed - I did wonder but now I know that's it not unusual I'm more accepting of the situation! However there was an immediate benefit from Cialis and the pump and both girth and (reduced) length have returned.

Aside from the above I've found since dx I have lost most of my previous inhibitions and find that I can talk and discuss this issue without embarrassment now. As you've said , its not our fault we're in this situation.

Good luck and keep going !

John