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OK, So I Have Prostate Cancer.

User
Posted 19 Jun 2016 at 18:12

Oh well, who would have thought it would have happened to me?!

I went to see my GP about three weeks ago to talk to him about my erectile dysfunction.  I thought he  might prescribe me some Viagra but he sent me for a full blood test.  He made an appointment for me to see him the next Wednesday regarding the results and possibly starting a course of Viagra.

Got a call on the Friday afternoon telling me to go to the surgery first thing Monday morning.  Went to see him and he made a hospital appointment for me there and then.  Got a hospital appointment the following Tuesday.  The consultant felt my prostrate through my back passage and told me that he wanted to do a biopsy that afternoon.

Went to the hospital last Thursday and and the news was not good. Stage 2 Intermediate cancer whatever that means, lol.  Anyway, it was all explained to me and my wife.  I'm to have an MRI scan as soon as the damage from the biopsy has cleared up.  Apparently, the cancer is impinging on a nerve or something so surgery has been recommended.  I don't really fancy six months of hormone treatment anyway.

I was told that the MRI scan will probably be within a couple of weeks with the op about  four weeks after that.

So, I'm looking for information from anyone who can help me.  I'm not exactly "scared" but I'm not exactly looking forward to what's going to happen and would be grateful for any support for myself and my wife.

 

Kind regards

 

Dave

 

User
Posted 27 Jun 2016 at 09:58

Morning, all -

Whether our side won or lost, I think we all woke up on Friday morning to some hard feelings about 50% of the UK's population. In offices around the country, people are arranging their sentences with great care this morning - not out of cowardice, a lack of conviction or because they think it's unimportant, but out of a mutual acknowledgement that we've all got a job to get on with, and inflaming each other won't help that to happen.

Part of what we're doing this morning is making sure that men and their loved ones have access to the right support. I'm appealing to you to do the same, as this community is far too valuable a source of support for it to become divided along political lines, inclusive to some and alienating for others.

Our house rules are 'be supportive', 'be kind' and 'help us keep the community peaceful':

http://prostatecanceruk.org/get-support/using-the-online-community#house-rules

So please, for the moment: bite your tongue, don't provoke people, and don't mention the war.

James

User
Posted 25 Jun 2016 at 13:20

Wouldn't have started a discussion on here about the referendum but since you have brought it up, I am gobsmacked that this is what you believe. There is absolutely nothing now to protect our doctors from being forced back to the bad old days of 72 hour weeks ... which means working to the point of exhaustion and more medical errors. The newly empowered far right will now finish privatising our NHS, which will run constantly on agency staff as all the European doctors, nurses, scientists, etc are sent away. Recession will reduce people's pensions, resulting in more old people starving or falling to hypothermia, putting even more pressure on the few services. Private providers will cherry pick the most lucrative health services, which means the already dreadful support for things like ED and incontinence - already a postcode lottery - will be the reserve of only those that can afford to pay. No more EU funding for crucial cancer drug trials either. I am afraid this has been a tragic week for people with cancer, and for our sons and grandsons.

In introducing politics you have just lost yourself some support, from me at least :-(

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 28 Jun 2016 at 00:51
Hi Glendower,

I will leave aside the referendum aspect of this post and wether I am in or out as it is irrelevant to what I am about to say. The fact that you were the first person to mention it and then didn't like the response from Lyn it was totally unnecessary for you to bring it up on a Prosate Cancer forum in the first instance.

Your comment that a female does not have prostate cancer so what is she doing on a PCa forum is so degrading that I am flabbergasted , I sincerely hope that your wife would not be spoken to like that by any of the members here. Maybe if you had taken a little time to read other posts you would realise that Lyn has every right to post on the forum and probably knows more about PCa than most it is a shame because you could have learnt a great deal from her.

I am female by the way so as you say what do I know about PCa I am not a man and do not have a prostate , I am just a mere woman living with a man who has prostate cancer.

I have always posted on the forum because I need to learn and be part of a community that understands. The flip side of that for Trevor is he benefits from my understanding even though he has never posted on the forum.

Just a few stats so you get the picture.

Starting PSA 13000

Terminal

Bone and lymph metastasis

I won't bore you with anymore but if you click on individual avatars you can read people's journeys.

As Dave says cancer doesn't respect age , gender, race or politics it affects us all.

My gut feeling is that you wanted advice, help or just to vent your feelings well that is what we do best on here so just a word of advice next time you post leave politics, sexist remarks and your shoes at the door.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 25 Jun 2016 at 16:16
I am a complete wuss when it comes to confrontation.

So I will just say a few things and then select fine pitch (an aviation term for getting out of here quickly)

The forum is open to everyone it is public, we get all sorts on here but generally we all muddle along with each other. It tends to get heated if the usual inflammatory subjects of gender, religion, race or politics are brought up.

Best to leave those for elsewhere and stick to seeking help or giving support on all things PCA related.

Lyn is one of the most knowledgeable and respected ladies that post here, yes she has lost someone very close to PCa, she supports her own Dad and Husband who both have the disease.

You can check someone's profile by clicking on their avatar and it might be best to do that before passing comment or judgement.

It seems you are in good hands already.

Now please be nice after all life is far too short to bicker.

Mo

User
Posted 25 Jun 2016 at 16:02

Originally Posted by: Online Community Member

Mmm! This is a forum for men with prostate cancer.  Mmm!  Actually it's a lot more than that.  It's for wives, daughters, girlfriends, civil partners, and uncivil ones, in fact anyone who is affected by the PCa issue.  Have look around before typing and hitting send and you will realise that.

You obviously don't have prostate cancer so unless you are some sort of medical practitioner or your partner has/has had prostate cancer,  what on earth are you doing in this forum?  Actually her partner had PCa.  Have a look around before typing and hitting send and you will realise that.

If you are a medical professional, then regardless of my beliefs, you have a Hippocratic Oath to support me, not to denigrate me.  If you are not, then I would expect any decent human being NOT to make comments to someone who may well be feeling quite depressed at the prospect of the cancer having spread beyond the prostate itself, which from the biopsy results and the speed at which things are moving, could quite be a possibility, not to mention the psychological effect the news has had on my immediate family.  Actually I feel quite depressed at the EU referendum result because of the impact it is likely to have on me as I continue through my life with PCa, and on the life of my sons, and their sons and so on.  Have look around a bit, not here maybe, but elsewhere and you may realise that? 

So, thank you for your non-support.  I suggest you go for a rant on another forum. This is not the place for it.  Actually it is.  This is a public forum, open to the public, it is not just for hearing or reading what you or any of us want to hear. In fact sometimes being told the flip side helps?  Have a look around a bit and you may come to realise that.

Please don't bother to respond!  Matter closed!  Actually, it's not.  You don't have that authority or power.  Have look around a bit and you may come to realise that?

 

Hi Glendower,

My comments are in bold in with your post.

you may be depressed?  You may not.  That was a feisty old retort.  Depression manifests or presents in so many different ways in different folks. No one knows if you are or if you are having a bad day, or just naturally confrontational? Used to having your own way, or if this is a manifestation of your depression, if indeed you are?

And no one knows what sort of day LynEyre had when she posted, whether or not she is depressed or fed up, or just got out of her bed the wrong side.  

As much as you demand sensitivity, why not cut others some of the same sensitivity and understanding, eh? Be nice.  It costs nothing.

Hope you have a good weekend.

dave

Edited by member 25 Jun 2016 at 16:03  | Reason: Not specified

All we can do - is do all that we can.

So, do all you can to help yourself, then make the best of your time. :-)

I am the statistic.

User
Posted 28 Jun 2016 at 09:18

So, goodbye!

User
Posted 19 Jun 2016 at 18:12

Oh well, who would have thought it would have happened to me?!

I went to see my GP about three weeks ago to talk to him about my erectile dysfunction.  I thought he  might prescribe me some Viagra but he sent me for a full blood test.  He made an appointment for me to see him the next Wednesday regarding the results and possibly starting a course of Viagra.

Got a call on the Friday afternoon telling me to go to the surgery first thing Monday morning.  Went to see him and he made a hospital appointment for me there and then.  Got a hospital appointment the following Tuesday.  The consultant felt my prostrate through my back passage and told me that he wanted to do a biopsy that afternoon.

Went to the hospital last Thursday and and the news was not good. Stage 2 Intermediate cancer whatever that means, lol.  Anyway, it was all explained to me and my wife.  I'm to have an MRI scan as soon as the damage from the biopsy has cleared up.  Apparently, the cancer is impinging on a nerve or something so surgery has been recommended.  I don't really fancy six months of hormone treatment anyway.

I was told that the MRI scan will probably be within a couple of weeks with the op about  four weeks after that.

So, I'm looking for information from anyone who can help me.  I'm not exactly "scared" but I'm not exactly looking forward to what's going to happen and would be grateful for any support for myself and my wife.

 

Kind regards

 

Dave

 

User
Posted 27 Jun 2016 at 20:31

Cancer is blind to politics. Cancer is blind to gender specification. It is becoming blind to age, sadly.

The idea that anyone should turn the other cheek is all well and good until you are out of cheeks!

Be nice, or leave, is the overriding message.

No matter now much anyone is a knob, total, partial or temporary, they will get my support and help if I am able to offer to them, and I suspect everybody else here will act likewise.

But, that they may be suffering from knobnednitus, should be pointed out.  http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif   

dave ;-)

 

Edited by member 27 Jun 2016 at 22:40  | Reason: Not specified

All we can do - is do all that we can.

So, do all you can to help yourself, then make the best of your time. :-)

I am the statistic.

User
Posted 28 Jun 2016 at 07:36

Originally Posted by: Online Community Member

Glendower, i don't usually read or respond to private messages. Best that all is in the open so there can be no misunderstandings.

What is really interesting is the people that posted agreeing with me and then deleted their posts - I shall leave mine until the moderator comes along to decide whether either of us broke the rules.

Lyn - I have pm'd you, yes I know you don't like ;-) but its a public forum.  But your inbox is full.  Might be worth reading and discarding some messages?  It's just registered with me that some folks deleted posts.  Shame that anyone may have felt pressured to do so.  

For anyone in the position of needing PCa support, there should be no avenue of help or support closed or unavailable to you, or where you feel discouraged from going.

So, putting your usual Lyn hat back on, what did you make of Glendower's PCa situation?

I remind you PSA was 8.5, Gleason score was right side 3+4 and left side benign.  MRI 9th July.  His comment that the NHS does not hang about. That would frighten me!  Certainly frightened me at my diagnosis.  Being told that you will be called in 2 or 3 weeks about an appointment, and getting the call in 2 days, makes you think?  The NHS usually move quickly only when there is good reason to do so, and something is seriously wrong?

Lets hope he has taken good advice on future options.

He still visits the site, last here at 1545 yesterday.

dave

 

 

All we can do - is do all that we can.

So, do all you can to help yourself, then make the best of your time. :-)

I am the statistic.

Show Most Thanked Posts
User
Posted 19 Jun 2016 at 18:52

Hi dave sorry that you have to be on here asking for help but now you are you will find that there will be someone that can give you information to all your situation.

It would be helpful if you can give details as and when you get them in PSA and also your Gleason score which will assist others in answering you.

If you look at publications on here and download the "toolkit" or ask for it to be sent to you it will be very helpful.

When you have appointments with your specialists it is also useful to take a notepad to write down what you are told and also to have pre written questions to ask them and if there is someone that can go with you so that there is a second pair of ears to take in what might be told to you.

You are on the path for treatment now and some of it is unavoidable but where there is a choice there are guys on here, and their OH's and relatives, that can steer you towards a decision. You are the only one that can make them for yourself but being furnished with facts and experiences from others will assist.

My treatment path is different from yours so cannot offer the benefit of my journey but all on here are with you every step of the way.

Best wishes and stay in touch with us, Chris/Woody

Life seems different upside down, take another viewpoint

User
Posted 19 Jun 2016 at 18:57

Thanks Chris,

PSA was 8.5 and the Gleason score was right side 3+4 and left side benign.

Thanks and regards

Dave

User
Posted 19 Jun 2016 at 20:13

Hello Dave and Mrs Dave and welcome to the site.

I hope somebody else will come along with their knowledge and advice but just wanted to welcome you.

Chris/Woody has offered very good advice about the Toolkit and the notebook and pen. If you get the toolkit in good time it will help as it will likely raise questions for you to ask, perhaps things you wouldn't have thought of beforehand.

Don't worry about appearing odd, lots of us do it and medical staff don't bat an eyelid. You will kick yourselves on the way home if you haven't asked relevant questions or made a note of the answers. Two pairs of ears are better than one as what one misses the other may pick up.

Being diagnosed with cancer, any cancer, can be terrifying because, like most cancers, it's a fear of the unknown.

Once decisions are made you may find that you cope better since a course is set.

The speed of your diagnosis is to be commended and you should be "grateful" for that.

If you decide on surgery, check the success rate of your surgeon. You want somebody really experienced !

The times ahead will be challenging for both you and your wife, but together you WILL get through it.

In the meantime, best wishes. Be patient with each other and remember to talk. Don't bottle up how you feel because talking does help.

Anything you want to know, come and ask. Somebody is bound to know the answer. Best not to Google. No subject it too personal or taboo. We are all in this together and although our experiences may differ because we chose different paths, we do all understand and appreciate how you both feel now.

Weekends tend to be quiet times on the site but I'm sure that others will be along at some stage.

Best Wishes

Sandra

PS. If you want more information (you might see from somebody's post that they had RP or whatever, then click on the name under their picture and you can read their profile)

We can't control the winds - but we can adjust our sails
User
Posted 19 Jun 2016 at 20:57
Hi both

As the others have said, take time to read information from the toolkit so that you feel that you have an understanding of treatments available. You say that surgery has been suggested but make sure that you ask questions about the various options so that you feel comfortable with the pros and cons of each. I elected for surgery and went into it with eyes wide open. I had urinary incontinence which took about 5 months to get over and following the op my PSA was never low enough to be undetectable. I am just completing 7 weeks of salvage RT to try to kill off the remaining cells. Others will have had no problems at all post op. We are all different. Take a step at a time and feel comfortable with what you both decide. If you have questions as you go along then ask away.

All the best

Kevan

User
Posted 25 Jun 2016 at 09:46

Progress report; MRI scan booked for 9th July. They certainly don't "hang about", do they?

The NHS have been superb with this and I have nothing but praise and admiration for their professionalism, dedication and skill.

I'm not going to rave, but now we are getting out of the EU, our NHS is safe from interference and possible destruction.  I for one, am very glad about it.  

Two decision on removals in one month: Removal of my prostate and removal from the EU.

Couldn't feel better!

Will keep you updated.

 

Dave

User
Posted 25 Jun 2016 at 13:20

Wouldn't have started a discussion on here about the referendum but since you have brought it up, I am gobsmacked that this is what you believe. There is absolutely nothing now to protect our doctors from being forced back to the bad old days of 72 hour weeks ... which means working to the point of exhaustion and more medical errors. The newly empowered far right will now finish privatising our NHS, which will run constantly on agency staff as all the European doctors, nurses, scientists, etc are sent away. Recession will reduce people's pensions, resulting in more old people starving or falling to hypothermia, putting even more pressure on the few services. Private providers will cherry pick the most lucrative health services, which means the already dreadful support for things like ED and incontinence - already a postcode lottery - will be the reserve of only those that can afford to pay. No more EU funding for crucial cancer drug trials either. I am afraid this has been a tragic week for people with cancer, and for our sons and grandsons.

In introducing politics you have just lost yourself some support, from me at least :-(

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 25 Jun 2016 at 13:34

Steady chaps. Let's get back to the subject.

Tony

TURP then LRP in 2009/2010. Lots of leakage but PSA < 0.1 AMS-800 Artificial Sphincter activated 2015.

User
Posted 25 Jun 2016 at 13:45
Originally Posted by: Online Community Member

In introducing politics you have just lost yourself some support, from me at least :-(

Nice...

User
Posted 25 Jun 2016 at 15:08

Mmm! This is a forum for men with prostate cancer.  You obviously don't have prostate cancer so unless you are some sort of medical practitioner or your partner has/has had prostate cancer,  what on earth are you doing in this forum?

If you are a medical professional, then regardless of my beliefs, you have a Hippocratic Oath to support me, not to denigrate me.  If you are not, then I would expect any decent human being NOT to make comments to someone who may well be feeling quite depressed at the prospect of the cancer having spread beyond the prostate itself, which from the biopsy results and the speed at which things are moving, could quite be a possibility, not to mention the psychological effect the news has had on my immediate family.

So, thank you for your non-support.  I suggest you go for a rant on another forum. This is not the place for it.

Please don't bother to respond!  Matter closed!

User
Posted 25 Jun 2016 at 15:09

Agreed!

User
Posted 25 Jun 2016 at 15:53

Glendower, i don't usually read or respond to private messages. Best that all is in the open so there can be no misunderstandings.

What is really interesting is the people that posted agreeing with me and then deleted their posts - I shall leave mine until the moderator comes along to decide whether either of us broke the rules.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 25 Jun 2016 at 16:02

Originally Posted by: Online Community Member

Mmm! This is a forum for men with prostate cancer.  Mmm!  Actually it's a lot more than that.  It's for wives, daughters, girlfriends, civil partners, and uncivil ones, in fact anyone who is affected by the PCa issue.  Have look around before typing and hitting send and you will realise that.

You obviously don't have prostate cancer so unless you are some sort of medical practitioner or your partner has/has had prostate cancer,  what on earth are you doing in this forum?  Actually her partner had PCa.  Have a look around before typing and hitting send and you will realise that.

If you are a medical professional, then regardless of my beliefs, you have a Hippocratic Oath to support me, not to denigrate me.  If you are not, then I would expect any decent human being NOT to make comments to someone who may well be feeling quite depressed at the prospect of the cancer having spread beyond the prostate itself, which from the biopsy results and the speed at which things are moving, could quite be a possibility, not to mention the psychological effect the news has had on my immediate family.  Actually I feel quite depressed at the EU referendum result because of the impact it is likely to have on me as I continue through my life with PCa, and on the life of my sons, and their sons and so on.  Have look around a bit, not here maybe, but elsewhere and you may realise that? 

So, thank you for your non-support.  I suggest you go for a rant on another forum. This is not the place for it.  Actually it is.  This is a public forum, open to the public, it is not just for hearing or reading what you or any of us want to hear. In fact sometimes being told the flip side helps?  Have a look around a bit and you may come to realise that.

Please don't bother to respond!  Matter closed!  Actually, it's not.  You don't have that authority or power.  Have look around a bit and you may come to realise that?

 

Hi Glendower,

My comments are in bold in with your post.

you may be depressed?  You may not.  That was a feisty old retort.  Depression manifests or presents in so many different ways in different folks. No one knows if you are or if you are having a bad day, or just naturally confrontational? Used to having your own way, or if this is a manifestation of your depression, if indeed you are?

And no one knows what sort of day LynEyre had when she posted, whether or not she is depressed or fed up, or just got out of her bed the wrong side.  

As much as you demand sensitivity, why not cut others some of the same sensitivity and understanding, eh? Be nice.  It costs nothing.

Hope you have a good weekend.

dave

Edited by member 25 Jun 2016 at 16:03  | Reason: Not specified

All we can do - is do all that we can.

So, do all you can to help yourself, then make the best of your time. :-)

I am the statistic.

User
Posted 25 Jun 2016 at 16:16
I am a complete wuss when it comes to confrontation.

So I will just say a few things and then select fine pitch (an aviation term for getting out of here quickly)

The forum is open to everyone it is public, we get all sorts on here but generally we all muddle along with each other. It tends to get heated if the usual inflammatory subjects of gender, religion, race or politics are brought up.

Best to leave those for elsewhere and stick to seeking help or giving support on all things PCA related.

Lyn is one of the most knowledgeable and respected ladies that post here, yes she has lost someone very close to PCa, she supports her own Dad and Husband who both have the disease.

You can check someone's profile by clicking on their avatar and it might be best to do that before passing comment or judgement.

It seems you are in good hands already.

Now please be nice after all life is far too short to bicker.

Mo

User
Posted 27 Jun 2016 at 09:58

Morning, all -

Whether our side won or lost, I think we all woke up on Friday morning to some hard feelings about 50% of the UK's population. In offices around the country, people are arranging their sentences with great care this morning - not out of cowardice, a lack of conviction or because they think it's unimportant, but out of a mutual acknowledgement that we've all got a job to get on with, and inflaming each other won't help that to happen.

Part of what we're doing this morning is making sure that men and their loved ones have access to the right support. I'm appealing to you to do the same, as this community is far too valuable a source of support for it to become divided along political lines, inclusive to some and alienating for others.

Our house rules are 'be supportive', 'be kind' and 'help us keep the community peaceful':

http://prostatecanceruk.org/get-support/using-the-online-community#house-rules

So please, for the moment: bite your tongue, don't provoke people, and don't mention the war.

James

User
Posted 27 Jun 2016 at 20:31

Cancer is blind to politics. Cancer is blind to gender specification. It is becoming blind to age, sadly.

The idea that anyone should turn the other cheek is all well and good until you are out of cheeks!

Be nice, or leave, is the overriding message.

No matter now much anyone is a knob, total, partial or temporary, they will get my support and help if I am able to offer to them, and I suspect everybody else here will act likewise.

But, that they may be suffering from knobnednitus, should be pointed out.  http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif   

dave ;-)

 

Edited by member 27 Jun 2016 at 22:40  | Reason: Not specified

All we can do - is do all that we can.

So, do all you can to help yourself, then make the best of your time. :-)

I am the statistic.

User
Posted 28 Jun 2016 at 00:51
Hi Glendower,

I will leave aside the referendum aspect of this post and wether I am in or out as it is irrelevant to what I am about to say. The fact that you were the first person to mention it and then didn't like the response from Lyn it was totally unnecessary for you to bring it up on a Prosate Cancer forum in the first instance.

Your comment that a female does not have prostate cancer so what is she doing on a PCa forum is so degrading that I am flabbergasted , I sincerely hope that your wife would not be spoken to like that by any of the members here. Maybe if you had taken a little time to read other posts you would realise that Lyn has every right to post on the forum and probably knows more about PCa than most it is a shame because you could have learnt a great deal from her.

I am female by the way so as you say what do I know about PCa I am not a man and do not have a prostate , I am just a mere woman living with a man who has prostate cancer.

I have always posted on the forum because I need to learn and be part of a community that understands. The flip side of that for Trevor is he benefits from my understanding even though he has never posted on the forum.

Just a few stats so you get the picture.

Starting PSA 13000

Terminal

Bone and lymph metastasis

I won't bore you with anymore but if you click on individual avatars you can read people's journeys.

As Dave says cancer doesn't respect age , gender, race or politics it affects us all.

My gut feeling is that you wanted advice, help or just to vent your feelings well that is what we do best on here so just a word of advice next time you post leave politics, sexist remarks and your shoes at the door.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 28 Jun 2016 at 07:36

Originally Posted by: Online Community Member

Glendower, i don't usually read or respond to private messages. Best that all is in the open so there can be no misunderstandings.

What is really interesting is the people that posted agreeing with me and then deleted their posts - I shall leave mine until the moderator comes along to decide whether either of us broke the rules.

Lyn - I have pm'd you, yes I know you don't like ;-) but its a public forum.  But your inbox is full.  Might be worth reading and discarding some messages?  It's just registered with me that some folks deleted posts.  Shame that anyone may have felt pressured to do so.  

For anyone in the position of needing PCa support, there should be no avenue of help or support closed or unavailable to you, or where you feel discouraged from going.

So, putting your usual Lyn hat back on, what did you make of Glendower's PCa situation?

I remind you PSA was 8.5, Gleason score was right side 3+4 and left side benign.  MRI 9th July.  His comment that the NHS does not hang about. That would frighten me!  Certainly frightened me at my diagnosis.  Being told that you will be called in 2 or 3 weeks about an appointment, and getting the call in 2 days, makes you think?  The NHS usually move quickly only when there is good reason to do so, and something is seriously wrong?

Lets hope he has taken good advice on future options.

He still visits the site, last here at 1545 yesterday.

dave

 

 

All we can do - is do all that we can.

So, do all you can to help yourself, then make the best of your time. :-)

I am the statistic.

User
Posted 28 Jun 2016 at 09:18

So, goodbye!

 
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