I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error

<12

Cabazitaxel Journey

Email this conversation Print this conversation
User
Posted 11 Aug 2016 at 22:35
Glen, I know what you mean about delays and plans, I hope that the pain relief has been adjusted since your post.

AlwAys thinking of you

Love

Devonmaid xxx

User
Posted 12 Aug 2016 at 14:10
Still unable to have chemo following blood test Wednesday. Hb ok but platelets just a bit too low now!

Not eating well and pain not under control.

Been admitted to local hospice to get him back on track pain wise and build his strength and appetite up so can have chemo. Just checked in today very impressed so far.

Also gives me a break from constant worrying that he's not eating.

Glen

User
Posted 12 Aug 2016 at 17:34

I'm sure he's in good hands, Glen. We have had two home visits from the hospice nurse so far and are very impressedby the care they offer. Tony is still trying to get his medication right, and seems to be having daily phone calls about the amount of morphine etc. Is Phil taking steroids? They often help with appetite.
Hope he soon ger sorted and can come home to you.
Marje

User
Posted 12 Aug 2016 at 18:45

Hi Marje, yes he is on a low dose steroid. I feel so much better now he is in there and they can sort him. It's so difficult getting the pain relief right. I've just spoken to him and he already seems brighter! Here's hoping! Sometimes everything compounds and you get in a vicious circle and I think the Hospice will help him out of this.

Take care and hope you get the pain relief sorted too! Thinking of you.

Glen

x

User
Posted 12 Aug 2016 at 22:54

I hope all continues well with the hospice. Make sure you get some rest and a bit of recuperation for yourself as well while he's being looked after!

User
Posted 12 Aug 2016 at 23:31
Rosy makes a great point Glen, I can only imagine how shattered you must be. He's being looked after and I hope that means you are getting some decent sleep.

Lots of love

Devonmaid xxx

User
Posted 13 Aug 2016 at 21:06
Just wanted you to know that I am thinking of you Glen fingers crossed that the hospice can get everything sorted .

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 14 Aug 2016 at 09:48
Hi Glen

If the hospice is as good as the Hospice Mick was In and where I subsequently worked for 18m, he is in the very best place to get things under some control. They should be able to get his pain meds balanced to provide relief but prevent over drowsy effects. They will definitely work on his appetite, encouraging him to eat high protein and possibly boosting calorific intake with some drink supplements. If he needs any blood work doing they should be able to arrange for that to be done there too.

They should also really encouraage him to stay mobile and doing as much as he possibly can every day.

The pastoral care team there will probably want to have a chat with you both to see if there is anything needed at home that will make life easier and more comfortable.

Please do take Rosy's advice and take advantage yourself of the time he is in the hospice to get some rest and treat yourself to a bit of quality pampering.

I will be thinking of you

xxx

Mo

User
Posted 14 Aug 2016 at 16:42

Thanks for your kind words. I went in to have lunch with him today and then got him to walk rounds the gardens to get him outside and in the nice fresh air.

The staff are marvellous and very caring. He seems to be needing less morphine now so maybe they are getting the pain patch nearer the correct dose.

He is supposed to be having palliative radiotherapy on his spine but the appointment to see the consultant has come through and not until 3 Sept!!! I think a phone call is in order on Monday.

He is eating better, small meals but full of calories by the looks of them! It is hard to see what was a big fell walker just wanting to sit though.

Although I really miss him, it is a lot less stressful knowing that his pain and eating needs are being managed and he is happy to be there to get him back on track hopefully.

Hoping that he will get some therapies tomorrow when full staff are back in, he loves Reflexology.

Glen

 

 
Forum Jump  
<12
Email this conversation Print this conversation

Join the online community now.

Click through to become a member and gain access to support, information and real time replies.




MenuTop ▲
©2025 Prostate Cancer UK