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referred for biopsy.

User
Posted 12 May 2017 at 09:46

Hi Gordon

You may want to remove the name of the surgeon before the moderators do so - we have a no name policy on here.

I had my RARP in March, and had my follow up with the consultant yesterday. I have been one of the lucky ones. They caught it at the right time and the results are as good as can be expected re the cancer - clear margins, all contained within the prostate, and PSA around 0.

After the op I just tried to get back to normal as quickly as possible. The first week I obviously took it easy with the catheter, but as soon as it was removed I started to move around and probably did things that my consultant and nurses would have been mightily concerned about :)

PFEs are essential to getting the continence on track. This area seems to be a real roll of the dice for most men, but like you I didn't have any urinary issues beforehand, and that may help post-op. I was dry overnight almost immediately, and I get a slight dribble very occasionally, but nothing to worry about, and there are the "phantom" spurts.

I was prescribed Sildenafil for first 28 days - unfortunately no sign of life there. I will get a referral for the ED clinic but there is a long waiting list in East Kent. The consultant has prescribed further 50mg Sildenafil with a once per week 100mg. He has also given me the all-clear to ride my bike, although I was playing tennis after 3 weeks, it was more the issue with the bike saddle and its possible effects.

Good luck with your recovery.
Chris

User
Posted 12 May 2017 at 09:57
Thanks Chris,

I've edited the original post. Great to hear you're doing well and thanks for the advice. I feel I can only really focus on hoping for clear margins at the moment but I need to think about continence too.

Gordon.

User
Posted 12 May 2017 at 09:58
Hi Gordon

Try to take things steady so although you don't want to be just sitting around don't do too much too soon. You know your body so listen to what it tells you. All the swelling will gradually reduce but you may have discomfort in your groin area for a few weeks. Try to focus on the things you enjoy doing and don't worry about the results of the biopsy as there is nothing you can do about that as there are basically two outcomes - all looks good or we may need to consider doing something else. Either outcome is manageable so no point wasting today worrying about tomorrow. I am envious of you being a drummer I wish I had the ability to play them as they are what holds most music together. Be kind to yourself and I hope everything goes well.

Kevan

User
Posted 12 May 2017 at 10:31

Hi Kevan,

Thanks for your help, much appreciated. I probably over think most things in my life - part and parcel of being a drummer:) How are things with you now? I just read your profile. Gw

User
Posted 12 May 2017 at 17:51
Hello again Gordon

In response to your enquiry I am feeling pretty good but a bit frustrated at not being allowed to do too much for another 2 weeks as a result of hernia op.

As far as PCA is concerned I am not experiencing any side effects from the HT as yet so long may it continue. I am still out and about driving minibuses for the school and thoroughly enjoying myself.

Perhaps the reason I would be rubbish as a drummer is that maybe I under think things but I like to keep life simple.

Please remember that no matter how well you feel don't do too much too soon and run the risk of undoing some of the good work the medics have done

.

All the best with the catheter removal. It doesn't hurt just feels a bit weird.

All the very best

User
Posted 12 May 2017 at 18:56
Originally Posted by: Online Community Member

I was prescribed Sildenafil for first 28 days - unfortunately no sign of life there. I will get a referral for the ED clinic but there is a long waiting list in East Kent. The consultant has prescribed further 50mg Sildenafil with a once per week 100mg. He has also given me the all-clear to ride my bike, although I was playing tennis after 3 weeks, it was more the issue with the bike saddle and its possible effects.

Good luck with your recovery.
Chris

I am surprised by your onco's advice on two levels - 1) unless something has been published recently there is little research to support the idea that daily sildenafil assists with nerve repair / recovery of erections and 2) giving you the okay to get on your bike. What was his view about the risk that cycling would inhibit nerve repair? It would be a shame if you ended up with long term ED and looked back regretting the impatience to get back on a bike. John was and is a keen cyclist so he found the 6 month break very frustrating at the time but since he did recover erectile function the 6 months seems a short time in relation to the rest of our life. It also seems a bit counterintuitive to on the one hand be taking tablets to prevent ED while engaging in a pastime which may make long term ED more likely?

Edited by member 12 May 2017 at 20:21  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 12 May 2017 at 20:32

Brilliant Kevan,

Great to hear your news:)

Gordon.

User
Posted 13 May 2017 at 19:07
Hi Gordon,

I just had RARP earlier this week and I've been reading through some posts and bio's from a few months back. Reading through yours and it's great to hear your PSA is so low and you're doing well. All the best to you.

Gordon

 
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