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Just been diagnosed, age 31, Gleason 6

User
Posted 23 Oct 2016 at 22:54
Hi Law
Kids are wonderful, grandkids icing on the cake. My grandson aged 2 turned up very unexpectedly with my son a just few hours after my RP on ward. One of life's defining moments and one of the few occasions I have cried. Precious. Look after yourself. You can always ask for 3 monthly PSA tests or pay private for extra tests. (Labs do differ I understand .. However that probably only relevant at decimal point accuracy ) My PSA had been slightly raised for some years, hard to explain however I just felt it was time to biopsy. My wife and my decision was easy as Gleasson 7. You should be able to have nerve sparing. . Clarify all options with MDT (I have zero sparing). Also nerves I was told regrow at about 1mm per year. I need to Google this ! Lyn states it very clearly in her initial reply. AS is fine, keeping control. Do make sure the squeaky wheel gets the oil. Believe me , you are better knowing, in my humble opinion you are then in control.

Edited by member 23 Oct 2016 at 22:55  | Reason: Not specified

User
Posted 24 Oct 2016 at 08:35

Sorry Dave I have no idea what is happening but of late you seem intent at having a go at fellow posters and disrupting threads.

There are moderators who will intervene if rules are broke

Bri

User
Posted 24 Oct 2016 at 09:31
Here, Here Brian.

Water off a duck's back to me. I feel sorry for the poster and judging by the PMs of support I had for mine, it was taken in the spirit it was meant. I hope you're feeling well brother.

Bazza

User
Posted 17 Nov 2016 at 01:23

Had my first follow up today, 1 month post diagnosis.  Consultant today didn't seem at all concerned, AS is the recommendation from two separate boards of doctors so will see how that goes.  Clarified again that the MRI didn't show anything suspicious, 1.3mm <10% found in 1 core out or 24 apparently with this type of biopsy the chance of upgrade on removal from 3+3 is 5% or less, PSA velocity will tell I guess, I hope their right!

Edited by member 17 Nov 2016 at 01:24  | Reason: Not specified

User
Posted 17 Nov 2016 at 09:39

Well that's good in a weird sort of way. So what plan is in place to monitor this properly? 3 monthy PSA or 6 monthly? How often are they going to scan you and did they suggest annual DRE?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 17 Nov 2016 at 14:48

Hi Law,
That's good news.
I am in a similar position except I had two PCa samples one on each side.
If I was your age I think I may have made the same decision as you.
I suppose I had a period of accidental AS for a year when my first biopsy missed the cancer.
But everything worked out well with nothing unexpected.
I suppose I decided to go for RP (2 weeks from today) as I had a relation that had a very aggressive form, and when you reach 60 you wonder if you would be fit enough at say 70?

All the very best of luck,
Nigel

User
Posted 29 Mar 2017 at 16:36

Never got back to this. 3 monthly PSA though first was a month late. Got the result back last week, 7.8..... Really bad, retest and be seen again in 2 weeks. Got the result earlier dropped to 6.7.... This makes no sense to me both the big rise and the subsequent relatively large drop, seems very unstable, surely it shouldn't drop or if it does not by much if it's caused entirely by cancer... Least that's what I'm hoping. Waiting for next appointment expecting another MRI and biopsy at the very least.

User
Posted 29 Mar 2017 at 18:37

With PSA, it is overall trends and results in a certain timescale that provide better indications of the way things are going rather than one or two PSA tests in isolation. Infections can affect results as can other things, sex not long before blood is taken for a test or certain strenuous activities for example. Then like good cells, some cancer cells die and divide, sometimes further mutating in the process. Furthermore, some cancer cells give rise to greater or lesser PSA at any particular time and this can vary. The upshot of all of this is that quite often even men with a fairly stable PSA history may find that it fluctuates, ie PSA rises and falls from one test to the next and in itself may not be of any significance. However, a large one off increase where infection has been ruled out as the cause, may well need to be further investigated.

Barry
User
Posted 29 Mar 2017 at 19:09

Law,
have you been given a course of antibiotics? If not I would suggest you request some and then get another retest in case it is prostatitis that responds to antibiotics. Not all do I believe but my husband's definitely came down quite a bit after antibiotics.
Julie

 
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