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Docetaxel Chemo – the highs and the lows

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User

Posted 10 May 2017 at 21:49

Hi Linda,

Thanks for the update let's hope the Aunty Bs kick in quickly and he can come home to some home cooked food very soon.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON

User

Posted 10 May 2017 at 22:25

Originally Posted by: Online Community Member

Hi Linda,

Thanks for the update let's hope the Aunty Bs kick in quickly and he can come home to some home cooked food very soon.

BFN

Julie X

And some real ale!

User

Posted 11 May 2017 at 01:45

Oh no! To get to round 9 in one piece and then this! Keep us updated x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 11 May 2017 at 09:30

Not sure about draught real ale as we'll probably have to avoid pubs etc for a few days after he gets home. So, unless I can get Otter Brewery to deliver a small barrel, it'll have to be from a bottle.

I'm about to visit the hospital and will be taking the laptop in with me, so he'll probably post updates himself.

Linda

User

Posted 11 May 2017 at 09:34

Please pass on best wishes to David, chemo can be a b**tch. He is in the best place of course and I'm sure will bounce back quickly. I did not have a great chemo experience early last year, but the crap passed and onwards and upwards.

"And Rocky said, doc it's only a scratch. And I'll be better, I'll be better doc as soon as I am able"

User

Posted 11 May 2017 at 10:44

Oh No,

Please pass on my very best wishes to David.

And it was all going along so well

Regards

Dave

"Incurable cancer does not mean it is untreatable and does not mean it is terminal either"

User

Posted 11 May 2017 at 12:44

Hi Linda

My oh had to go in twice with the same thing and it was David that reassured me we were not making a fuss when I was worried. Please send my regards

Yvonne (Mountain stream)

User

Posted 11 May 2017 at 13:31

Infusion 9 Day 10

So I'm sitting here in my chair in my own room in The Yarty Ward at the Royal Devon & Exeter hospital. The Lancashire hotpot last night was really rather good and the Fish pie I've just had for lunch was tasty although the brussel sprouts were put on at Christmas. The RD&E has been looking after me for nearly four years now. I've had contact with Oncology, MRI/CT/Nuclear Medicine departments, the Dental service, Radiology, A&E and now have been admitted to a ward. In every area the people I've come across have been cheerful towards me as a patient and always explained exactly what they are doing and why. They are all fan-f'ing-tastic and I'm making it my business now to tell them how good they are.

I was an IT Project Manager and managed teams of up to 20 people. I know just what can be achieved by a happy, motivated team who understand the common goal. There's nowt I can teach the RD&E.

As Linda has said I'm on IV Aunty B's and will hopefully be restored to full working order within the next day or two.

Edited by member 11 May 2017 at 13:35 | Reason: Not specified

User

Posted 11 May 2017 at 20:39

I hope things continue to improve and you are released soon. I'll have an Otter Ale for you!

Cheers, Gromit.

User

Posted 11 May 2017 at 21:17

Looking forward to full working order .😄

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON

User

Posted 11 May 2017 at 21:19

Hi Colin,

Glad to hear positive thinking

Barry

User

Posted 12 May 2017 at 14:43

Infusion 9 Day 11

I have a diagnosis of pneumonia. The antibiotics will continue. A consultant will be seeing me tomorrow. So it's stay in for now, depending how things go, the consultant may decide to release me with oral antibiotics. A further chest X-Ray in 6 weeks time. I asked about the 10th docetaxel infusion due on Tuesday week (which I am now very very reluctant to have) and the doctor thinks this is best discussed tomorrow with the consultant. So at least now we know what's going on.

User

Posted 12 May 2017 at 16:14

Good to see you are in safe hands David,

In hindsight I am glad my Onco bailed me out after Infusion 8, although I was happy to carry on, but enough is enough David.

All the best for a speedy recovery.

Regards

Dave

"Incurable cancer does not mean it is untreatable and does not mean it is terminal either"

User

Posted 12 May 2017 at 16:14

Really sorry about the pneumonia :-( but good to hear that they are really on top of it. I'm not surprised you are nervous about the 10th cycle - hope you get to have a useful discussion about it with the consultant. As you have managed 9 I wonder what the 'real' extra benefits are of having one more.

User

Posted 12 May 2017 at 16:54

Originally Posted by: Online Community Member

As you have managed 9 I wonder what the 'real' extra benefits are of having one more.

On the nose sallyyy, right on the nose. However, I worship my Onco and have complete trust in her. I will discuss it fully with her and know if she is in favour of Infusion 10 taking place she will have and will explain some powerful reasons for doing so.

User

Posted 12 May 2017 at 19:01

It's funny isn't it - a friend of mine has just spent 2 weeks in hospital after her chemo caused a pulmonary embolism but the onco is insisting that she should continue with the 6th and final cycle. Not sure I would be beating down doors to have number 10 in your position ColU :-(

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 12 May 2017 at 19:32

My Onco is definitely a pragmatist. I'll lay odds of 20 to 1 right now that, without any prompting/questioning from me, she will say Infusion 10 is out of the window. We'll see. However, I will always remember I have the right to say no but I still bet with Dr S that I'll never have to say that.

User

Posted 12 May 2017 at 19:47

And so to my favorite MK song. The title track from his first solo album.

Soppy alert!

Whenever I listen to this song it makes my heart leap. When I hear it I think of Mrs_ColU. You see, she is my Golden Heart:

https://www.youtube.com/watch?v=dO_KA9EHJA0

She was swinging by the bangles in a main street store
A while before we met
The most dangerous angels that you ever saw
She spied her amulet

And she took a loop of leather for around her neck
And that was then the start
The most dangerous lady on her quarter deck
She found her Golden Heart
You found your Golden Heart

Then we swirled around each other and the thread was spun
to some Arcadian band
I would stop it from swinging like a pendulum
Just to hold time in my hand

And you shot me with a cannonball of history
And long forgotten art
I'd be turning it over as our words ran free
I'd hold your Golden Heart
I'd hold your Golden Heart

Nothing in the world prepared me for your heart, your heart
Nothing in the world that I love more your heart, your heart
Your Golden Heart

And every time I'm thinking of you from a distant shore
And all the time I sleep
I will have a reminder that my baby wore
A part of you to keep

And I'll send you all my promises across the sea
And while we are apart
I will carry the wonder that you gave to me
I'll wear your Golden Heart
I'll wear your Golden Heart

Nothing in the world prepared me for your heart, your heart
Nothing in the world that I love more your heart, your heart
Your Golden Heart

Edited by member 12 May 2017 at 19:52 | Reason: Not specified

User

Posted 13 May 2017 at 08:13

What can I say? I'm hoping you'll be out soon.

User

Posted 13 May 2017 at 14:00

Infusion 9 Day 12

My lovely Onco, Dr S, has been to see me. She said the neutros were still down at 0.6 so I would be staying in and continuing the AV Antibiotics until Monday when she will review the situation and see me again then.

I asked about Infusion 10. She said if the neutros were still not right by Monday she would cancel it. If they were right she might suggest going ahead but with a reduced dose. I didn't question this, that can wait to Tuesday week when I have a consultation with her.

I asked her the most important question of all re beer (Mrs_ColU brought me a bottle of Abbott Ale when she visited this morning). I said I'd have it at least 2 hours after and at least 2 hours before the 3rd and 4th IV's today. She said that's OK. She wanted to know whether I was going to have it to celebrate something special. I said no and also said "boys like beer". She said she wondered whether I intended to have it whist watching the Eurovision Song Contest. I said I'd rather have a frontal lobotomy than watch that. In fact I'd need a frontal lobotomy to watch that.

Edited by member 13 May 2017 at 20:50 | Reason: Not specified

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