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User
Posted 10 Feb 2025 at 10:55

Originally Posted by: Online Community Member

Thanks Chris, looks like a combination of getting older and the HT. Think I’ll be putting up my tent in the garden. 

Seems likely that the low testosterone from ADT  is causing low dopamine resulting in hypothyroidism 

You see dopamine kick starts the thyroid system but if dopamine is low there is no instruction to make thyroid hormones 

The thyroid is responsible for keeping the body warm 

Since you like alternative remedies you might want to look into Guggul aka Guggulesterones to give your husbands thyroid some support 

 

 

 

 

 

 

 

 

 

 

User
Posted 26 Mar 2025 at 19:17

David’s PSA is a happy <0.1 no matter how strong we pretend to be the PSA stress doesn’t decrease, the relief when he gets the results is palpable. His iron levels are a bit low, all other bloods are good. He still feels the cold, and has aches n’ pains, gets tired after working in the garden, falls asleep in the chair. 
He is still writing and playing music every day as well as managing the garden. 

A decent glass of red wine is planned this evening. 

Plans for a good spring in the garden and hopefully a break somewhere if we get time. I’m even eyeing up my hot tub, if the weather stays sunny I might be tempted. 

As for travellers tales.

I was in a sheroot ( public taxi) sitting in the front on my way to Jordan via the Allenby bridge,  and the driver asked me to get something out of the glove box, it’s in a bag he said. I put my hand in bag to find it was a bl%@dy snake. You’ll be delighted to know I didn’t go all flaky and scream. The sheroot passengers all fell about laughing, the driver didn’t charge me for the journey all the way from Jerusalem to the bridge, he was impressed.  My Arabic isn’t brilliant but manageable and the other  passengers were impressed with the foreigner woman. 

once  again lads, thanks for all the support, patience and just bring there, you are special.

More travellers tales if you are interested. 

Leila 

 

 

Edited by moderator 26 Mar 2025 at 22:13  | Reason: Removed link

User
Posted 26 Mar 2025 at 20:59
Great news from another G9 member, Gary is post 9 yrs with PSA still undetectable. Long may your travels continue,it’s what keeps us going !

Best wishes

Debby

User
Posted 26 Mar 2025 at 23:40

Ahh bless you Debby, every day is a good un’

xx

 

 

Edited by member 27 Mar 2025 at 18:45  | Reason: Not specified

User
Posted 27 Mar 2025 at 13:17

Hi Leila and Debbie. 

Great news for both of you and your other halves. 


My PSA went down last test from 35 to 30 when I was expecting it to get into the hundreds without much holding in back now. 


Consultant thinks it might be because A&E upped the steroids back to 2mg instead of my regular 0.5mg. So we’ve only reduced back to 1mg to see what happens. 
Maybe the Degarelix has decided to join the party… 

We’ll see what’s happening in 4 weeks… 

Hope you’re enjoying this rather changeable weather. Im sat in the summerhouse and its bloody lovely. Got told by the missus not to cut the grass while shes at work and so I thought I’d give it a go anyway , but I remembered my son borrowed our extension lead so can’t do it anyway… 

Take care 

Phil

 

User
Posted 27 Mar 2025 at 13:21

Leila, I’m just gonna post a little travel tale on the place to have a chat thread. 

Phil

User
Posted 24 Jun 2025 at 11:04
David’s PSA results arrived this morning, another happy <0.1 we are delighted. It’s 10 years since diagnosis this September. We can now plan a wonderful summer (weather permitting) and David is 75 on July 8th.

He politely declined the offer of apalutamide and said he’d rather stick to the Prostap and it’s clearly the right decision. He takes a cocktail of supplements along with the ivermectin, fenbenzadole, menbenzadole and metformin. We have a low carb diet, home grown veggies, he enjoys a decent glass of red wine, and a real ale, on a summers evening.

He’s still writing music, singing and playing everyday, we. Continue to grow our veggies and manage our very rural lifestyle.

Our garden is looking wonderful, the veg are growing, as are the weeds, the flower garden is beautiful as well.

We have wood chopped for winter, and our solar panels are working a treat.

I’m still cooking all our food from scratch, no processed grub here.

Our lives are quite different now, from David’s life a a professional musician, and my career. Then travel and living abroad for work backpacking, around and both of us being a bit wild child lifestyle to a life of growing food, in a rural Welsh valley.

I’ve almost finished writing my first book too….nothing to do with cancer, or rural life, it’s the tales of a cat who arrived on our land seven years ago, he’s a real character, who now has the most amazing adventures.

On that note, I’ll close, thanks again for all the support, encouragement and patience from you all.

Stay strong lads, you are so special.

Leila

User
Posted 24 Jun 2025 at 13:23
Keep it up Leila
User
Posted 24 Jun 2025 at 19:32

Leila, Great news and what a lovely post, I look forward to reading the book.  Thank you for all the support you have given myself and others on here. Thanks Chris 

User
Posted 24 Jun 2025 at 20:22

Hi Leila.

Fantastic news about David's result. I shall have a pint this evening to celebrate the good news. Your lifestyle sounds idyllic and reminds me of The Good Life. Long may it continue.👍

User
Posted 24 Jun 2025 at 20:44
Love it Leila. Epic positive post and you are both living your best dream which I wholly applaud. Long may it continue. Fascinated by your cat book ❤️
 
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