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User
Posted 24 Sep 2025 at 19:40

Lots of boards to tread Chris, keep strong young man. 

User
Posted 24 Sep 2025 at 19:42

Lots of boards yet to tread for both you and David, enjoy every day. 

User
Posted 06 Dec 2025 at 18:14

Once again it’s PSA time on Monday, it’s always a stressful time and as time goes on it doesn’t get any easier. David’s well happy and fit, but we never get complacent. Fingers crossed for Monday.

I’m not posting much these days as it’s such a trial getting on, such a shame as this community is invaluable for so many. 
Leila 

User
Posted 06 Dec 2025 at 18:53

"Staying Alive" just on the radio when this update came through, very apt for us lot. Keep on keeping on both.

ATB Hawkz.

Edited by member 06 Dec 2025 at 18:56  | Reason: Not specified

User
Posted 08 Dec 2025 at 08:26
All the best for David's PSA test today!
User
Posted 09 Dec 2025 at 10:50
Just received David’s results it’s a happy <0.1 we are delighted. He is still on his alternative protocol with additional supplements. We are planning a sociable happy Christmas πŸŽ„

Today we have very high winds and heavy rain, so we will stay tucked up at home enjoying his results.

It’s over 10 years since his diagnosis, his heath is otherwise good, regular excercise, home grown veggies and good diet.

May I take this opportunity to wish you all a very good Christmas and New Year.

Leila

User
Posted 09 Dec 2025 at 19:12
Excelent news again Leila. No gardening with that weather, good excuse to stay inside and celebrate😁

Long may it continue

Cheers

Bill

User
Posted 12 Dec 2025 at 09:21

Originally Posted by: Online Community Member

Today we have very high winds

It'll be all those  home grown veggies, Leila. πŸ˜‰

David's result is fabulous, the perfect early Xmas present. Keep enjoying the good life!

User
Posted 12 Dec 2025 at 14:09
Great news...
User
Posted 23 Dec 2025 at 09:14

That’s wonderful news, Leila. A <0.1 is something to truly breathe out over. Sounds like a well-earned, peaceful Christmas ahead. Long may those good results continue.

User
Posted 24 Dec 2025 at 14:36
That's smashing news, happy Christmas, bxxxy good present
User
Posted 25 Dec 2025 at 08:39
Great news and I hope that makes for a joyous Christmas!
User
Posted 14 Jan 2026 at 11:15

test 12

Edited by member 14 Jan 2026 at 11:16  | Reason: Not specified

User
Posted 19 Mar 2026 at 19:19

Just got David’s PSA it’s once again <0.1 once  we are delighted. He has decided to have a hormone holiday the Prostap as it’s been undetectable, and has been so for four years now. 
it is 10 years since his HDR Brachytherapy and radiotherapy.

His PSA went up four years ago, and he went back in the Prostap, but also following an alternative programme

( not prescribed by the oncologist) we researched and decided as he was Gleason 9 Tb3 we’d give it a go, and he is doing well. 
David is 76 this year, and we are still managing our acre of garden growing our veggies, living mostly off grid. Today we worked outside beginning the tidy up, and sowing seeds. 
David is still playing, singing and writing music in winter and we are in the garden in spring and summer. Evidently Prostap can cause heart problems and as he had a heart attack 5 1/2 years ago, and he doesn’t want further heart damage, he has one stent and mild angina. 
So, all you lovely G9 lads I hope this gives you hope. 
Next month we celebrate my birthday  our wedding anniversary and 10 years since his  diagnosis. 
Now time for a glass on red wine and supper.

Leila 

 

 

 

Edited by member 20 Mar 2026 at 00:14  | Reason: Not specified

User
Posted 19 Mar 2026 at 23:52

Leila, great news, hope it continues for a lot longer. 

Thanks Chris. 

User
Posted 27 May 2026 at 12:03

Just got the PSA results in a happy < 0.1 again, it’s now 11 years since diagnosis. David’s is now on his ‘ hormone holiday’ he’s hoping for a very long holiday. 
With an original diagnosis of Gleason 9 Tb3 he is a happy lad. He is still taking his alternative meds and will continue on the regime.

He is 76 this year, has had a few problems with palpitations recently and a heart attack six years ago. 
We are looking forward to a good summer and continuing to grow our veggies, enjoy our garden maybe a glass of decent red wine on a summers evening in our garden.

David has never met his NHS oncologist and continues with his off label regime without their support, our private guy is fully supportive and promotes David’s off label programme. 

Leila 

 

User
Posted 27 May 2026 at 12:28
Lovely news Leila 😊
User
Posted 28 May 2026 at 05:58

Great news again, you can't beat a < sign

Long may it continue

Cheers
Bill

Edited by member 28 May 2026 at 17:58  | Reason: Not specified

User
Posted 28 May 2026 at 08:31
Great news , have a wonderful summer xx

Debby x

User
Posted 28 Jul 2026 at 14:13

Good afternoon, David’s just got his latest PSA results, it a thankful<0.1.Eleven years from a  diagnosis of Gleason 9 Tb3,he is now  no longer on Prostap injections.
We are delighted! He continues on his  ‘ not NHS.  recommended’  and sadly occasionally mocked alternative protocol, and he’s doing very well. 

Whether he is  one lucky lad or just maybe his off label regimen is possibly working, what ever it is we are celebrating with a cuppa and planning a night out at his favourite real ale pub and he’s planning on a decent steak dinner tomorrow at a local lovely restaurant.
Now off to side shoot me tomatoes, and harvest cucumbers courgettes peaches  & runner beans. 

Thanks for the ongoing support from you all. 
Leila. 

 

Edited by member 28 Jul 2026 at 14:16  | Reason: Not specified

User
Posted 28 Jul 2026 at 17:32
Great stuff
User
Posted 28 Jul 2026 at 17:53
πŸ‘ŒπŸ‘πŸ™πŸ’ͺ x
User
Posted 28 Jul 2026 at 18:54

Great news Leila.

Keep on leading The Good Life. You both deserve it! πŸ‘

Edited by member 28 Jul 2026 at 20:59  | Reason: Typo

User
Posted 28 Jul 2026 at 20:22
Great news Leila.

It's inspirational how your OH has got off HT and remained "<".

I find your lifestyle and alternative supplementary treatment very interesting.

Long may your good news posts continue

Cheers

Bill

User
Posted 28 Jul 2026 at 22:24

Lelia, Great news, you can't beat fresh veg.

Thanks Chris 

User
Posted 29 Jul 2026 at 11:08

Thank you for the lovely responses, now onward and upward for the next three months. We  both still find the three monthly PSA check stressful, that’s life eh. 
Leila 

User
Posted 20 Oct 2026 at 18:12

These three months seem to go so very quickly. David’s PSA results are a very happy <0.1 he had his last Prostap injection in April and is no longer having the apalutamide. Oncology have sacked him and he now has a call from a specialist urology nurse every three months. He is still on his alternative regime based on the Otto Warburg protocol. He is now getting morning erections but very little in the way of sexual feelings, though we are ever hopeful. 
He also has angina  and one stent after his after his heart attack 6 years ago, he also gets palpitations, but thankfullly less so recently. 
He feels better since stopping the Prostap, he has increased his excercise regime, has less muscle cramps and weakness. We are still growing our organic veggies and fruits had over 100 peaches this year, trees grown in our poly tunnel. Our tomato crop was amazing, and i have made sauce and all sorts of tomato dishes. 
David is 76, still singing, playing and writing music, currently writing a new album. So we are grateful for every day. Once again thank you for the ongoing support lads, it’s been over 10 years since I found this group. I know we may have different views on some treatments but the support has been very special. 

Leila. 

User
Posted 20 Oct 2026 at 18:28
Leila epic cheery news !! Stay strong and well done πŸ’ͺπŸ’ͺ
User
Posted 20 Oct 2026 at 22:59
Great stuff
User
Posted 21 Oct 2026 at 09:48

Originally Posted by: Online Community Member
We are still growing our organic veggies and fruits had over 100 peaches this year, trees grown in our poly tunnel. Our tomato crop was amazing, and i have made sauce and all sorts of tomato dishes.

Everytime I watch Tom and Barbara in the Good Life, I think of you and David. Long may the good things in your life continue. πŸ‘

User
Posted 21 Oct 2026 at 12:07

Thank you for the support, yes it is the good life here, we but enjoy it though it’s hard work sometimes. Winter draws nigh, we are looking at lighting out Rayburn and log burners and bedding in. 

Leila. 

User
Posted 21 Oct 2026 at 12:14

Ooohhh I forgot look up about folic acid, it’s really bad for people with stents and lads with PCa it’s in flour, bought baked goods and even bl%%dy marmite, my shopping now takes a lot longer as I’m reading labels. We bake our own bread and get flour that’s free of folic acid milled locally. 
Thankfully it’s not in beer or red wine 😹

Leila 

User
Posted 21 Oct 2026 at 13:52
Beer is a source of folate πŸ˜₯
User
Posted 21 Oct 2026 at 16:44

Yes it does, but it’s natural folate, not the same.
Leila 

User
Posted 21 Oct 2026 at 20:47

Leila, great news, glad life is being a little kinder to you both.

Thanks Chris 

User
Posted 21 Oct 2026 at 23:17

Interesting re folate: 

If microscopic cancer is already present: Prostate cancer cells grow and multiply at an incredibly rapid rate. Because human livers process synthetic folic acid very slowly, high doses leave excess, unmetabolised folic acid circulating in the blood. Prostate tumors express a specific protein on their surface called Prostate-Specific Membrane Antigen (PSMA), which acts as a highly efficient receiver for folate. The excess, easily accessible synthetic folic acid essentially acts as "fuel," accelerating the division and growth of these hidden tumor cells

Thanks Leila and Gemini

 

User
Posted 21 Oct 2026 at 23:58

You are most welcome, lots of information about folic acid available on line, in many places. I hope people read up on it. It also affects people who have stents. 

Leila 

User
Posted 22 Oct 2026 at 12:53

Originally Posted by: Online Community Member
If microscopic cancer is already present: Prostate cancer cells grow and multiply at an incredibly rapid rate.

I thought most prostate cancer cells are renowned for growing slowly. My understanding is only a relatively small group of prostate cells have been caught speeding? πŸ™‚

Edited by member 22 Oct 2026 at 12:56  | Reason: Typo

User
Posted 22 Oct 2026 at 17:50

From what Ive read Adrian, I think the folic acid works at speeding up the process and also not good  for people with stents are at risk. 
Life eh, they ain’t ever gonna make it easy are they.

Leila 

User
Posted 23 Oct 2026 at 07:47
Binds to the PSMA receptors unique to prostate cancer apparently, as we know prostate cancer doesn't give a xxxx about speed cameras or PET cameras sometimes πŸ˜΅β€πŸ’«
User
Posted 23 Oct 2026 at 09:32

Hi Leila and francij1.

As I fear PCa recurrence and heart attacks. I have done hours of research on folate, and folic acid, natural, synthetic, as dietary and vitamin supplements.

There is very little research on how it may affect PCa. There was research in 2013 which showed it does not effect PCa cancer recurrence after definitive treatments:

Results suggest that the consumption of foods and multivitamins that contain folate is not associated with prostate cancer progression after definitive treatment.

https://pmc.ncbi.nlm.nih.gov/articles/PMC5480381/

The evidence that very excessive levels of folic acids could increase the risk of getting PCa, is inconclusive.

Liver overload of folic acid can create problems and in very rare circumstances to men with specific genes increase the division rate of rare types of highly aggressive cancers.

All these possible side effects are usually linked to excessive folic acid usually in vitamin supplement tablet form.

I have a heart stent. Apparently folic acid and other B vitamins were once recommended to help keep the stents clear and prevent vascular restenosis. However years later, research showed that too much folic acid can in fact slightly increase that problem:

 Contrary to previous findings, the administration of folate, vitamin B6, and vitamin B12 after coronary stenting may increase the risk of in-stent restenosis and the need for target-vessel revascularization.

https://pubmed.ncbi.nlm.nih.gov/15215483/

From what I've learned, I won't be taking any folic acid supplements, but I'm not concerned about it being added as a dietary supplement.

This is a interesting link to a recent article on folic acid and PCa. It mentions some of the research I've referred to.

https://sperlingprostatecenter.com/folate-folic-acid-and-your-prostate/

 

Edited by member 24 Oct 2026 at 10:58  | Reason: Spelling

User
Posted 23 Oct 2026 at 22:52

Good news on PSA after the cessation of ADT.

What the hell is this Otto Warburg protocol now ?

Did Care Oncology Clinic go bust with their protocol?

 

 
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