On going

Dave, you’ve made my day! Peppa Pig World it is then. 

We have been chatting and decided to try and talk to the urologist  calling his secretary Monday morning. 

What we want to know is will having both scans and the PSMA scan over load  him with radio waves. I don’t want a glow in the dark husband. 😉

Leila 

Edited by member 27 Nov 2021 at 15:17  | Reason: Not specified

Tomorrow is the third scan, David’s has had a CT,MRI and tomorrow he’s having an radioistropic scan. He seems to have recovered well from his heart attack in July, and been signed off. I hope one day the different medical teams will talk to each other, this doesn’t seem to happen now, sadly. His last PSA was 2.3, we hope to see the urologist in January to discuss the outcomes of his three scans. Fingers crossed for a good outcome and the appointment not being cancelled again. 

We have been doing all our usual stuff, David feels well, and we are planning a small but good Christmas with a few celebrations. 
We have been part of this group for over five years, a group that given us smiles tears, support, good advice and clear information.

So, may we wish you all a Merry Christmas and a Happy New Year, and a heathly, 2022 to  each one of us.

Thanks for being there all of you.

Leila x

Thanks Lyn, We are planning a pleasant sociable safe Christmas, leaving all the scan stuff till next year.

I hope you and yours have a Safe Sociable and Happy Christmas.

Thanks for holding us together, your advice, common sense, and practical approach amongst all the emotional angst that can sometimes swamp us is invaluable. 

oh, I forgot the blessed humour and dry wit. 

Leila 

I’m sure you are the right gal for the job. I’m not practicing these days or having to make such decisions. I’m doing some supervision and other bits…. It’s hard times Lyn, keep doing the right thing.
Leila

Edited by member 20 Dec 2021 at 22:01  | Reason: Not specified

Quite, and we always will

Leila x

David had his PSMA pet scan last week, and yesterday he had a call from the urologist. The cancer has woken up sadly and spread to his lymph nodes. His situation will be discussed at the next MDT mtg and he will be referred to an oncologist. 
Not what he wanted to hear. It seems treatment options are doxetaxel with hormone treatment of some sort, or enzalutamide. The urologist wasn’t sure if enzalutamide is funded in Wales, anyone know? 

David is not keen on chemo, he’s seen what it can do,but it will be discussed with the oncologist.
The scan results report will be posted to us, and we can have a good read, as the phone consultation is hard going, we were not prepared, and it was a bit difficult to digest all the information  with the emotional feelings washing about.

The urologist is good, but he dashes off his answers, takes questions and responds, but it’s hard to take it all in an unplanned call. 
I'm not sure why the urologist is recommending enzalutamide as David was doing well on prostrap for three yrs, it seems it is usually for castrate  resistant men, he was not resistant to prostrap at anytime.He is not an oncologist so, we have to wait and discuss when we can.

Im am pi##@d off and upset, but gathering my thoughts and questions.

Thanks for being there all.

Leila 

Thanks Phil, these lymph nodes are a pain aren’t they. Seems you ‘boys’ are on a similar path. Please let us know how you get on.
Keep in touch and stay strong 💪 you G9 lads are magic.

Leila  

Sorry to hear this news Leila, it really is a rollercoaster ride.

When Rob (hubby) was initially diagnosed with advanced PCa he was put straight onto prostap. When we spoke with oncology they offered him docetaxel or enzalutimide to have along the prostap.

My understanding was it was an alternative to chemo and it was for Rob to decide which he wanted first. I remember Lyn advised me at the time that because of covid they were offering enza instead of chemo because of risk of catching the virus….before this enza wouldn’t have been offered because of cost.

Wishing you both all the very best with all future treatment.

Elaine

Hi Lyn, Thanks for that. I'm hoping he can access the enzo, as I doubt he'd cope with the chemo very well. He gets a jippy tummy very easily, skin rashes, he is a sensitive soul, unlike me. 😉Now in the waiting game for MDT to discuss options.

Currently wishing I was still a smoker, but thankfully I have none in the house!I gave up 25yrs ago. The craving seems strong today. I might have to go into town and stand downwind.

Thanks again.

Leila