It's sometime since I've posted. I have been reading updates regularly. David has completed his RT, & HD Brachythearpy. We have spent the summer gardening, coming to terms with our life changing experiences and we are hopefully beginning to make some sense of it all.
We are both feeling less ' punchdrunk'we went away for a wonderful holiday, this also contributed to feeling ' normal' again, what ever that is.
David is getting stronger & fitter, although he still gets days of feeling tired. He has had an ongoing pain in his lower back and haunches, he's seen our GP and the radiologist consultant ..... none seem to have any suggestions :-( we just hope it's not the dreaded PCa. His bladder is a lot better, and he feels his flow has improved.
It really resonated with us talking about the anticipatory grieving process...lets be honest, we think and wonder about the future.... and what ever it holds. David will always be G9 and he's planning on living a long time yet..... we have soooo much to do. We hope he will....
We have had some conflicting advice from the consultants a) the onco, b) radiologist .... onco wants him to have a scan in January the radiologist is saying 6 monthly PSA tests .... any advice would be welcome. Not having too many cancer appointments has been good, but we are aware of the G9 needs constant monitoring.
On the ED front he tried with the pump and hated it, tried the viagra and it was ok.... but left him with a feeling of being light headed and hungover ....he's keen to keep going and said he had a few sexual feelings again which delighted him. The pump gave him days of discomfort... he felt awful.
It is now over a year since his diagnosis, a journey of tears, laughter fear and now we hope to move in to calmer waters, where we can emotionally heal, find space to plan and think.
To any newbies starting on their journey, talk to each other, be patient with each other... and value times of laughter.... use this site and value the advice here, it has been invaluable to us.
Edited by member 17 Nov 2016 at 10:24
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