Lynne - I really hadn't appreciated I was breaching a protocol so now noted- thank you. For explaining. I really am trying to fill a gap in info that I experienced.
Chris - yes I will do as you suggest and that is true there is available I a number of US centres plus being run as clinical trials at phase 2 in many more across the USA.
I am not trying to be controversial in any way but a thread on the growth of focal alternatives would have been helpful to me certainly when we first got the increased PsA result .
Things I would liked to have had more info about:
1. The diagnostic alternative approaches .This site was fab at explaining the push for Mp MRI scanning before biopsy but the wider this message is spread and the more demanding men are for access the better. Only from USA sites have I gleaned the difference between a 3T version and a a 1.5 ( lower resolution) version
2. The impact of a prostate biopsy was not explained I.e the strength of erection can be impacted after a biopsy so I think this should be spelt out.
3. The complete list of side effects of surgery was not spelt out. We had no mention made of impact on penus length or penal atrophy
4. Headline stats given on iED post surgery were presented in my opinion in a misleading way stating 86% success re ED but when the detail is looked at 45% never get an erection strong enough for penetrative sex again. All go forward drug dependent. These are stats of a top UK surgeon.
5. The definition of 'dry' after surgery is when you only use one pad a day-this is not how we would define dry.
6. The availability of focal treatments was not discussed. - surgery was recommended with an oncology referral. The over treatment issue of G6 was not mentioned ( though AS was on the list given as ways forward.
So our Dec 2016 experience has been interesting and. I think the UK has some way to go in urology before the standards we achieve in breast cancer care are reached.