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Robotic RP post op recovery

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User

Posted 24 Feb 2017 at 11:59

Well we had a good giggle this morning. Catheter out yesterday and totally dry so far. So he says, "can we have a bit of an experiment". Ok I think. Anyway after a bit of stimulation he wakes up and a little more gets him to orgasm. Except he spurts pee everywhere!
"Got to be happy with that" I say. "Well I would be" he says "if I wasn't going to die".
Oh well can't win 'em all.
😂😂😂😂

User

Posted 24 Feb 2017 at 12:52

Haha cracking post.
Cheered me up. Good on you girl. I was 98% dry too from day one. I barely leaked at all. But I could get on the bed , start getting jiggy jiggy and he'd start spurting haha.
My orgasms were awfully poor post op for a long while, yet I have to say they seem completely pre op now I'm 20 months on

User

Posted 24 Feb 2017 at 13:30

Ha ha Chris. I had a feeling this post would tickle you.

User

Posted 24 Feb 2017 at 13:36

Good news in the long term - fingers crossed he can overcome the mental anguish, Wife :-/

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 24 Feb 2017 at 14:19

I hope so too Lyn. For us I fear that is going to be the more difficult battle.

User

Posted 22 Mar 2017 at 17:28

Well, today we got our post op PSA result. 🥁 Roll please.
0.01 🥂🥂🥂
Couldn't be happier. Well actually I could because i have now been waiting an hour for him to leave the hospital and get in the car. Is it a mistake, should it be lower, did he get it wrong.
I f******g hate anxiety and OCD.

Edited by member 22 Mar 2017 at 17:34 | Reason: Not specified

User

Posted 22 Mar 2017 at 17:54

So happy to read you! Great👍👍👍👍

May good news continue for ever.

Lola

User

Posted 22 Mar 2017 at 19:19

0.01... Fantastic news..

Good luck for future.

User

Posted 22 Mar 2017 at 19:26

Fantastic! Let's hope it sinks in soon and you are both able to enjoy the good news...

User

Posted 22 Mar 2017 at 19:28

Thats great news, really pleased for you both. Hopefully he will come " off the boil " over the next few days and weeks. Good luck x

User

Posted 22 Mar 2017 at 19:38

Brilliant news for you both - now relax and enjoy 👍

User

Posted 23 Mar 2017 at 11:09

Great news, I just had my second test post OP, undetectable, I don't think the worry ever goes away, I know someone 3 years post OP and still gets nervous before every test,
best wishes
Paul

User

Posted 23 Mar 2017 at 12:15

Great, Paul! So happy for you.
My husband is going through robotic RP as soon as his pprostate recovers from biopsy. Has just had bone scan and pelvic TC. Expecting results. Hope he will be as lucky as you.
Best wishes,

Lola.

User

Posted 23 Mar 2017 at 12:42

Paul, great news for you.
Nervous i can deal with, i think that's normal for anyone in that situation.
Julie

User

Posted 23 Mar 2017 at 18:44

Hi lola,

Hope you get good results, any questions about the RARP OP just ask,
best wishes

Paul

User

Posted 23 Mar 2017 at 19:21

Paul, did you have Da Vinci surgery? If yes, how about incontinence and recovery?

Did they remove any else than prostate? In case surgeon finds the node has broken the capsule, is it possible to remove lymphatic nodes and seminal vesicles aswell by robotic system?

Sorry, too many questions. We are meeting the uro on 28th. I am scary, as you can see.

Keep well,

Lola

User

Posted 23 Mar 2017 at 22:47

Hi Lola, yes seminal vesicles and local nodes can be removed by Da Vinci robot. You should ask surgeon about whether he can do nerve sparing or not. This will depend on how close the tumour is to the edge of the capsule or whether it has broken through. The scans and biopsy will provide information to determine whether he thinks it is possible or not. If he does get nerve sparing this will improve the outlook in terms of ED and continence but i think you need to be prepared that on both counts things will certainly be different post operation.
I'm sure when you have spoken to the surgeon and understand better what will happen you will feel more comfortable with the operation.
Julie

User

Posted 23 Mar 2017 at 23:00

Some hospitals in the UK will not remove lymph nodes with keyhole surgery - that was one of the two main reasons my husband had open RP. You would need to ask your surgeon a) whether he thinks it is necessary to remove any nodes and b) whether he can do that by Da Vinci.

The seminal vesicles are always removed Lola - they can't get the prostate out without them.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 23 Mar 2017 at 23:26

Lyn, I absolutely agree that node removal should be discussed with the surgeon. It was quite a long discussion in our case.
One thing we did discuss was whether removing the nodes was likely to reduce the potential for spread. In our case the surgeon didn't think so, he felt the only reason to remove the nodes was to gather information and be better able to stage the cancer.
I'm not sure that it is still true that some hospitals won't do node removal during robotic surgery. Certainly in Leeds this is no longer the case. I guess they have gained more experience over the last 5 years since your OHs op and have pushed the boundaries a bit further.

User

Posted 23 Mar 2017 at 23:29

Thanks a lot, Julie and Lyn. The information you give me is very helpful.

I'll talk to Paco tomorrow about it so he can ask the surgeon on 28th . He doesn't like it when I ask myself, and to make matter worse he doesn't ask much either. I'll read your posts to him.

The MRI previous to biopsy report says nodes and seminal vesicles seem to be OK but I'm not sure whether this test is reliable enough and, may be, during operation something worse could be found out 🤔😣

I've got another question: PSA level is related to the fact that the tumor has spread or not?

This is the second time he has cancer. First when he was 36. He has one only kidney. This is one of the reasons why the surgeon recommended prostate removal. Because RT could damage his kidney or around?

Thanks again.

Best wishes,

Lola.

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