I've only just found this site - so, here goes.
Diagnosed February 2005 (psa 70 ish - Gleeson 9 so highly aggressive). Prognosis was not good - 50% chance of surviving 5 years, 10% chance of 10 years. Casodex initially, then RT, then HT (Zoladex implant quarterly). PSA held very low (0.05 typical) for many years - currently PSA is around 0.2ish. About 5 years ago, Bicalutamide was added as a daily pill. I was retaining urine so about 8 years ago started nightly self cathetarising - 3-400ml. Prior to using catheters I was up 3, 4, 5 or even 6 times a night - now nil. We moved to Devon about 2 years ago so, a new GP. He changed the Zoladex to Prostap (cheaper) - WOW. Red, swollen, tender injection site and nightly catheters were around 8-900ml. GP changed back to Zoladex after 3 months - everything returned to normal. Still on Zoladex, Bicalutamide and catheters.
Currently living a good, enjoyable life (70 now) with no real side effects (got sweats and tiredness when on Prostap). PSA remains low - so, OK 12+ years on and currently beating the prognosis. I try to treat every day as a blessing and try to enjoy it as much as possible (don't always achieve this but, such is life - at least I'm still here). Sex is a distant memory - but with no desires, it doesn't really bother me - I just feel sorry for my wife - I try to make up for it in other ways - she says she's fine about it.
In the early days (when I had no acceptance of it - "why me") I researched alternatives. The only one that seemed to me to have a chance of being "right" was B17 (or laetrile or amigdalin). The history looked right with the incidence of cancer in the Hunza valley, apricot kernals, etc.. The operation of it (how it "works") again looked feasible (confirmed by a doctor friend and one of my daughters who is a vet). Also, the almost vitriolic comments about it on the Cancer Reasearch UK web site rang alarm bells - why so vitriolic?. CRUK now have a much more moderate comment on B17. So, I started taking one 500mg pill per day (I couldn't afford to take the then recommended 4 per day) and I've been taking them ever since. Now, I make no claims for B17. The pills MAY be a contributing factor to me still being around 12 years on. It may be that they have been efficacious, or it may just be that they have given me hope (a bit scarce with cancer). The Oncologist seemed curious about my survival so, about 4 years ago, he had an MRI done. In his report on the MRI to me he told me that I had a highly aggressive cancer of the prostate that was behaving as if it were benign - he could offer no explanation for this. I told him - "I can live with that".
So, the point of me coming onto this forum is to encourage others - some people DO live a long time with an agressive cancer - it is NOT all doom and gloom. Statistics are just that - some do better, some worse - you could be one who does better. So, don't give up - try to be positive - live as good a life as you can. Also, spare a thought for your wife, partner, significant other, children, etc. They have to live with the thought of losing you and they seem to get little sympathy or concern for this - all the sympathy and concern goes to the one with cancer.
My wife, children and I know that I may start to deteriorate next month, or whenever, but I've tried to live as good a life as I can and I've enjoyed most of it. May you do likewise.