Don't know what's goin on

Hi iv managed to get the pain under control kinda it's just the bladder issues is it normal .my kidneys kinda hurt too .lm sorry if I'm goin on I rang yesterday asked for another gp they said 2weeks just not getting any support .im suppose to be back at work in 3weeks to is there anybody that cann offer financial advice .

Hi Happy, I have suffered with continual flare ups since Summer 2014. Extreme pain in Prostate, burning pain which radiates to epidymis and stomach and then feel as if have flu symptoms and cant stop going to loo. Originally treated with Ciprofloxacin which calmed things but symptoms came back. so have tried repeated courses of Ciprofloxacin as well as Ofloxacin and Doxycycline which have all calmed things at various points but never cleared things up completely. Coamoxyclav has resolved recent flare ups, but again never completely cleared. Ibuprofen, Naproxen all help with pain but again flare ups continue. Have had blood tests and urine test and all have come back clear. Urologist and GP all indicatet its Prostatitis however they have exhausted all treatment protocols but pretty much told that now there is no cure so its something I will have to live with.

I totally understand you pain and frustrations and there should be things that can be done to help - I understand totally your pain and have spent the last 3 years trying to cope with varying level of pain and symptoms - but that pretty much means worrying about where the toilet is everywhere I go whether at work or with family, which isn't much fun however life still goes on. My main frustration is the lack of knowledge or understanding within the medical profession and the acceptance that its Prostatitis, its difficult to understand and you'll just have to live with it. I really wish I could find someone who could be more understanding and helpful.

wish I could help but have kept presenting myself at GP and urologist in hope they can at least find some relief. Do you suffere from any other inflammatory problems? I have had issues with psoriasis, spondylitis, irritable bowel, etc so may be a link to all of these inflammatory conditions and I have found that cutting out gluten, alcohol and dairy have helped as well as coffee and fizzy drinks but it may be a case of finding what works for you - try eating as much mush fresh fruit/veg as you can.

good luck and you are not alone!