Hi Stuchop. Im a newbie on here, having only recently started showing signs of this debilitating condition.
My problems kicked off 6 months ago after being disgnosed with a distended bladder (eg not emptying itself properly). My uro suggested getting me onto self catheterisation a few times a day, which I proceeded to do. This helps with emptying, however it has lead to repeat infections that I initially put down to UTI's. Various ab's prescribed, most of which help initially, however condition returns within a week to two - (did last 2 months on one occasion).
Uro has now taken another look and found soft prostate and believes the flare ups aren't UTI's and are in fact signs of prostatis. He called it grumbling prostatis - nobody else has ever heard of this condition which isnt paticularly helpful !.
Anyway, now nearly 2 weeks into course of cipro. After some initial relief, conditions returned. Still taking them however I am not hopeful they are going to make any difference. Sounds like a similar path to you. Getting really frustrated with this now, difficult to focus on work and maintain a happy life/work balance.
I'm interested to know if you have tried any relaxtion therapies as I am told they can help. Also are you aware of any specialists in this field who would be able to help ? I live in East Anglia.
I am going to go down the gluten/dair route to see if that helps.