Havent posted for a while but glad to say I eventually came out of the RP aftermath and ditched the catheter after 8 weeks. This after post opp leakage internally within joint connections.
My first PSA after 6 weeks was 0.02 and everything appears to be hunky dory, apart from some stress incontinence and being dead from the waste down from a sexual perspective. All that aside I am told I have been very lucky as the cancer found by pathologist was confirmed as very aggressive Gleason 9.
I should be overwhelmed and happy that I now have an undetectable PSA but cant stop myself reading stories that Gleason 9's very rarely achieve full remission - even reading a Havard University study which puts my chances of reoccurence as 85% in the next 5 years. My tumour was confirmed as contained and border line T2. This as in one area it was close to 1mm from touching the margin.
Question: am I flapping over nothing with this PSA anxiety, because I was diagnosed Gleason 9 or is there some truth in what the internet tells you on the subject of potential reoccurence.
I am not recieving anymore treatment other than that to deal with the ED, but I am half way through a rehab course which touches on all things linked to surviving prostrate cancer. One aspect of the course is other treatments and salvage radiotherapy, which again pulls my mind back to the fear of reocurrence.
Would appreciate anyone in a similar position getting in touch i.e Gleason 9, PSA 6.9, cancer contained, currently post RP with PSA anxiety.