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Libido Advice

User
Posted 25 Aug 2017 at 10:05

I am on 6 months hormone therapy (prostap injections) prior to Radiotherapy.


6 weeks into my hormone treatment I was very upbeat with nothing but minor side effects and good sex life. However not long after my second injection my libido disappeared - not diminished, it literally disappeared overnight. I have now gone about a month without a sexual thought or desire and consequently an erection (the erection thing is linked to the loss of libido rather than ED I think). I know that loss of libido is a common side effect from hormone therapy but my question is whether I should be thinking of using some medication to at least get the occasional erection even though I dont have any sexual urge - which is likely to continue now until my treatment ends.

User
Posted 25 Aug 2017 at 21:30

You are in exactly the position I'm dreading reaching , although it will be sometime in the next 12 months according to my Onco. My advice ? It's good that you care I reckon. I would buy or ask for a medical quality vacuum pump and use it very regularly just to maintain penile health and size. But you may not even want to be bothered with that. Best wishes anyway


If life gives you lemons , then make lemonade
User
Posted 25 Aug 2017 at 21:47

The tablets all require sexual desire to be effective so would be pointless. If you have a partner then orgasm can be achieved for you without an erection via oral sex or lubricated manual stimulation. A pump used regularly would keep things healthy. If used with a ring then penetration is possible. Otherwise you are looking at Alprostadil for sex in the form of injections or urethral pellets or urethral cream.


If life gives you lemons , then make lemonade
User
Posted 29 Aug 2017 at 14:58

"I wouldn't want any man whose libido is fine to panic and think that his HT must be failing"


Nor would I.
But lack of libido on hormone implants IS almost universal, and anyone in that position would be only sensible to get it checked out.

Sure, it could be that he is one of the tiny number of lucky people; equally, there could be a problem with the medication, and simply celebrating good luck could be a serious error.


Just as we advise people with unexpected bad effects to get checked out, so we should advise those with unexpected good luck to do the same.


The celebration will be that much sweeter once it's confirmed it's a bonus, not a treatment failure!

.
-- Andrew --
"I intend to live forever, or die trying" - Groucho Marx
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User
Posted 25 Aug 2017 at 20:40

I would be very careful about medication with your stated objective as this might counteract to some extent the HT which is to drastically reduce testosterone, which in almost all cases results in loss of libido. Suggest you clear this with your oncologist.

Barry
User
Posted 25 Aug 2017 at 21:30

You are in exactly the position I'm dreading reaching , although it will be sometime in the next 12 months according to my Onco. My advice ? It's good that you care I reckon. I would buy or ask for a medical quality vacuum pump and use it very regularly just to maintain penile health and size. But you may not even want to be bothered with that. Best wishes anyway


If life gives you lemons , then make lemonade
User
Posted 25 Aug 2017 at 21:35

Thanks Barry - I wasnt thinking of anything that interfered with the HT - I suppose I was thinking should I try the occasional viagra or cialis or would this be pointless ?

User
Posted 25 Aug 2017 at 21:47

The tablets all require sexual desire to be effective so would be pointless. If you have a partner then orgasm can be achieved for you without an erection via oral sex or lubricated manual stimulation. A pump used regularly would keep things healthy. If used with a ring then penetration is possible. Otherwise you are looking at Alprostadil for sex in the form of injections or urethral pellets or urethral cream.


If life gives you lemons , then make lemonade
User
Posted 28 Aug 2017 at 19:15

"loss of libido is a common side effect from hormone therapy"


It's more than common; it's pretty much universal, indeed, if it didn't happen, your consultants would be concerned!


If you have a partner, this is obviously something you need to discuss right now; if you don't at the moment, then don't worry overmuch!

.
-- Andrew --
"I intend to live forever, or die trying" - Groucho Marx
User
Posted 28 Aug 2017 at 20:50

Almost universal but not quite - there are always exceptions. I wouldn't want any man whose libido is fine to panic and think that his HT must be failing - Alathays went through all the various hormone treatments, and outlived all predictions, but never lost his interest or ability.


Tony, as already said, Viagra etc will not work if you have no libido. However, men on HT are entitled to a pump on the NHS just the same as men that have had RP, but PCUK has previously raised concerns that many GPs and oncologists don't think to refer men on HT to the ED nurse or andrology clinic unless they are asked. You may have to push your medics to get what you need.


 


You might find some wise words and reassurance in this thread http://community.prostatecanceruk.org/posts/t6875-Impotence-during-hormone-therapy#post105396 

Edited by member 28 Aug 2017 at 20:56  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 29 Aug 2017 at 09:17

interesting,i have been off ht for a year now also had rt in 2014 i never really lost my libido and lately i have found i can get a semi erection and also have a dry orgasm for the first time in 3/1/2 years never used any tablets or anything is that a good sign or is it normal.

User
Posted 29 Aug 2017 at 11:58

Just to say that I'm not sure it affects all men that Sildenafil (Viagra) won't work without a libido !

John has been saying for a while now that he seems to have lost his and it would appear to be the case that he no longer gets early morning stirrings and mostly doesn't feel the inclination to show an interest, but (presumably) for my benefit, he will take a Sildenafil occasionally and it usually works (Well for us anyway )

We can't control the winds - but we can adjust our sails
User
Posted 29 Aug 2017 at 14:58

"I wouldn't want any man whose libido is fine to panic and think that his HT must be failing"


Nor would I.
But lack of libido on hormone implants IS almost universal, and anyone in that position would be only sensible to get it checked out.

Sure, it could be that he is one of the tiny number of lucky people; equally, there could be a problem with the medication, and simply celebrating good luck could be a serious error.


Just as we advise people with unexpected bad effects to get checked out, so we should advise those with unexpected good luck to do the same.


The celebration will be that much sweeter once it's confirmed it's a bonus, not a treatment failure!

.
-- Andrew --
"I intend to live forever, or die trying" - Groucho Marx
User
Posted 30 Aug 2017 at 11:06

Thanks for that reply Johsan -  I agree you can get an erection with no libido its just that maintaining it without libido is much much harder.


Even though I have no libido at the moment which means no spontaneous erections I can with some time and work with my wife get a good erection without a pump or similar - however maintaining that erection to orgasm is another thing. My initial question I suppose was whether in this situation using Sildenafil or similar would help maintain that erection.


My thoughts were that when i stop hormone therapy my testosterone levels will rise again and i should recover some libido. In the meantime to make sure things keep working down there I will do all I can to try and maintain the occasional erection.

User
Posted 30 Aug 2017 at 13:38

Hello again Tony.

I do know what you mean about maintaining the erection, even with Sildenafil (some of which I feel is caused by doubt but that's another story)

Someone recently (sorry I can't remember the man's name) posted to say that Asda were selling a Durex 1 Pleasure Ring, it costs around £5 and once placed around the erect penis helps to maintain it.

I have recently discussed this with my other half and he has agreed that it is worth pursuing so next time I go into town, guess where I'm heading ? It helps that you can put it in your basket and go through the self checkout !!!

We can't control the winds - but we can adjust our sails
User
Posted 02 Sep 2017 at 14:46

Thanks for all the input - further to my thoughts about when I eventually come off HT is there anyone out there that can reassure me that libido does return eventually. In an ideal world I will be on Prostap once a month for 5 months and then with a month of RT I should be done - I know this is hoping for the best outcome but I have always concentrated on the best outcome since diagnosis so anyone who has been through this and recovered libido would be nice to hear from.

User
Posted 02 Sep 2017 at 15:58

Almost all men regain their ooomph. TopGun was on IHT for 14 years but every time he had a hormone holiday his libido reappeared fairly quickly; after only 6 months you should have no problem.

Edited by member 02 Sep 2017 at 19:28  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 02 Sep 2017 at 16:50
Hi

It took a lot for me to rediscover my oomph after two years on ADT and bi lateral nerve sparing but a good woman, a little wine and a tight rubber ring from a pump (without the pump) can lead to joy. My CNS said that if you are turned on and the endophins are firing, good sex is possible despite ADT. She is right, although non penetrative can be bliss also. Good luck brother

Bazza (Barry)
I am Spartacus - with the strength of iron, a will of steel and the fight to give this disease a real run for its money.
User
Posted 02 Sep 2017 at 18:09

Yay - thanks Lyn thats good to know - that information helps to keep me positive in my outlook for the future.


I was looking the other way expecting erectile disfunction to be my main side effect concern and the loss of libido snuck up and hit me from leftfield.


Its amazing how weird a total lack of libido is. Most men have had regular sexual thoughts and urges since their puberty. Almost everyone goes through periods when erections are a problem and you can usually deal with that in various ways or get sexually involved and fulfilled without erection - but libido is different - When it dissapears overnight no matter what you and your partner try (and I still believe I have the sexiest wife in the world) theres just no sexual urge, thoughts or desire at all.


Its no coincidence they tried Prostap on sex offenders as a form of chemical castration - however this side effect for those of us going through HT means it is working and in our cases its better that the treatment is working than not !


For those going through the same side effect - Its really important to let your partner know this is different to ED and the fact that your just not interested has no connection to specific desire for them and that thankfully love is still there good and strong.


Discuss everything you feel with your partner and do whatever you can to keep the machinery exercised (yours and your partners !) - I have never really been interested in porn but last week I found, if left on my own (with a laptop!), I can just about get an erection or semi and acheive orgasm (dry) -  Its hard and seems a bit mechanical to do this without sexual thoughts but my initial post was just to ask, if I was able to achieve some erection in this way then would taking a pill help maintain what small response I can get for longer - Im thinking this may develop into something I can do with my wife. The general consensus seems to be, possibly or to try a ring. Anyway,  Ive got this feeing that if I try to keep the machine oiled its better than just pulling up the drawbridge for the next 6months or so - and now with Lyn's positive post I am even more filled with desire to stay "in training".


Tony

 
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